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Not crazy

Member Since 02 May 2013
Offline Last Active Private

Posts I've Made

In Topic: Betty Crocker gluten-free Brownies....

06 July 2014 - 08:23 AM

Their brownies are the best. I've made them and gluten eaters had no idea they were gluten free. Had a cheese cake with the brownie used as the crust. Their yellow cake mix makes a to die for (adult only) armetto cake. I've also used it to make kind of an apple spice cake and topped it cream cheese frosting. Don't care to much for plain yellow cake ( kind of dry).
Have several potluck events a year so have to get creative for desserts to take.

In Topic: Anyone Have Chiari Malformation And Does It Flare When You Get Glutened?

19 May 2014 - 03:51 PM

This is definitely chiari. I get dizzy, blurred vision, motion sickness, ringing in my ears, numb/t had pressure in the back of my head, numb/fingerling arms and hands, I can sometimes hear and feel my heart beat in my head, my neck popping echoes in my head. I get a sharp, stabbing, electric shock type pain starting at the base of my skull and goes up and deep into my head, this causes tunnel vision, then usually complete loss of vision. The pain is so intense I can't move, It has dropped me to the floor several times. It happens if I sneeze, cough, yawn, stretch, look up, or sometimes I don't even know what I did.

I thought dealing with doctors over celiac was bad, chiari is even worse. Neurosurgeon said he didn't think I needed surgery because the cine MRI showed good flow, didnt care what my symptoms were. Neurologist offered carpel tunnel surgery, drugs for my raynaud's , and a drug for something else (I can't remember for what). None of which I asked for (never looked for treatment because they didn't bother me enough to take drugs) or even had anything to do with the chiari I was seeing him for. As for the chiari, his advise "just don't look up".

In Topic: Getting My Home Gluten Free

18 May 2014 - 04:54 AM

I replaced anything that was wood or plastic(storage bowls, cutting boards, spatulas, rolling pin, measuring cups/spoons, etc) along with the toaster, mixer, can opener, scratched pots and pans. Any thing metal and not scratched or glass was scrubbed really well with hot soapy water. Every cabinet and drawer was emptied and scrubbed with soapy water inside and out. Every shelf and drawer in the fridge was scrubbed inside and out. Counters, door knobs(everyone in the house), drawer handles, light switches (whole house), and any other surface I though had a slight chance of having gluten like the TV remote and door ways were all scrubed with hot soapy water.
I'm sure it was over kill but I was tired of feeling like I was glutened and couldn't figure out where it was coming from. I tried the shared kitchen with a stand alone cabinet for gluten with dedicated counter on the other side of the kitchen for gluten. It didn't work. It was a pain, caused me stress and not with it. If they want gluten then can eat it somewhere else.

Check spices, spice blends can have gluten. Open condiments and spices can be contaiminated. As can sugar and other baking ingredients like baking soda, corn starch, etc.

In Topic: Could This Be Caused By Gluten?

13 May 2014 - 11:56 AM

Fibromyalgia is a very good reason to try going gluten free. But you need to be tested for celiac first. Make sure they run all the tests. If you improve on a gluten free diet it will be really hard to go back on it to be tested. I was told I had fibromyalgia and all those symptoms pretty much went away when I went gluten free. I have minor issues here and there but they really flare when I get glutened.

I refused to accept fibromyalgia as a diagnosis from my doctor. I feel that it is a name given to a group of symptoms that a doctor couldn't (or was to lazy to) figure out the cause. My gastroenterologist agreed with me, but you should of seen the look on his face when I told him I felt giving someone a diagnosis was IBS was basically the same.

In Topic: Positive Blood.. Any Need For "official" Diagnosis?

12 May 2014 - 02:57 PM

Crohns does not just affect the large intestine. It can affect anything from the mouth to the anus and anywhere in between.