Hi all, Just to recap from all thats been happening with me, I had positive blood tests for celiac desease and went for an endoscopy but that was normal. so my gastroenterology specialist said I do not have celiac desease and that I have gluten intolerance, I was really upset because I truly believed I had this and he was telling me I didn't have it, in that appointment he asked me to do a stool sample to check for inflammatory bowel desease, and I just received a letter saying the results were abnormal and the fecal calprotectin test showed that my bowels are probably inflamed :/ it had a result of 92 when the normal range for that test is between 0 to 50, does anyone know anything about this test and what this means if my result was 92, because it sounds scary, its a lot over 50 in the letter he wrote 'the evidence is that you still probably do not have celiac desease but you might have another condition causing your diarrhoea which might possibly be triggered by gluten-containing products. i would therefore like to organise a large bowel examination called a colonoscopy where we will take photos and biopsies afterwards if required. it might also be beneficial if you go back on a gluten containing diet for two to three weeks before the bowel examination.'
I'm kind of in shock at this letter because in the last meeting we had, he was sooo sure that I 100% did not have celiac desease and that it was just gluten intolerance, but in this letter he seems not so sure.. hmm. So I 'probably' don't have celiac desease.. I'm confused, oh and I would like to ask what other conditions can cause my bowel to be inflamed that is caused by gluten? Because I've never heard of any other conditions, just gluten intolerance and celiac desease. also to anyone who has had a colonoscopy before, what is it like? does it hurt and should I ask for general anaesthetic because I had a really bad experience before when I was awake through my endoscopy
Also can someone please explain to me about inflammatory bowel desease, because I googled it and it said that its not just one desease, thank you very much for reading xx