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Si & Ash's Mom

Member Since 14 May 2013
Offline Last Active Jun 02 2015 11:31 AM

Posts I've Made

In Topic: Could This Be Dh In Child? Not Really Itchy...

02 June 2015 - 11:11 AM



Just an update - we have had my son on a low iodine diet and his rash seems to be clearing up. It's difficult to know what's what as his rash seems to flare up and then improve on its own for no apparent reason. It never seems to fully go away though (except when he was on prednisone). We'll get him back on iodine and see what happens!

In Topic: Could This Be Dh In Child? Not Really Itchy...

16 May 2015 - 04:43 PM

That looks exactly like my son's DH, especially those little craters where he has scratched off the tops. 


I know exactly the frustation of trying to figure out what's going on. What we did, was take our son off gluten to see if the tummy aches would get better. Tummy aches stopped immediately and the rash started healing. That was great information and it gave me something to go with when I went to the doctor. The trouble with that was we had to get him back on gluten for a full 12 weeks before we could do any testing. So most people would tell you for that reason, to not go off gluten at all until you a diagnosis. 

Thanks - it's nice to know I'm not way off track! Lol! We have never put him on a gluten-free diet so I'll probably try to get a biopsy before we eliminate it. A 12 week challenge would suck! I appreciate your input :)

In Topic: Could This Be Dh In Child? Not Really Itchy...

15 May 2015 - 07:34 PM

So it got all red & raised around the lesions right? I can see marks where he scratched it. DH gets really itchy when it gets that raised red puffy look. He's scratched those tops off so now you see it's open in those places. This is what my dh does now that I'm no longer getting the blisters. 


Try the low iodine & if it responds then you can further test by loading him up with iodine rich foods & see if it flares again. Now you have to realize that each person is different & reacts differently. For example, I reacted to iodine intake very quickly -- like a day at the most 2. When I went low iodine things would calm down very quickly also --- like 3 days. My husband however, took around 3 days to begin reacting but it would take him 10 days for it to calm upon removal of high iodine. AND I think it depends on what stage or severity the dh is in. 

That's good to know - we will give it some time when we lower his iodine intake. Thanks so much for all your help :)

In Topic: Could This Be Dh In Child? Not Really Itchy...

15 May 2015 - 12:22 PM

Thanks everyone. We will try to lower his iodine intake to see if it helps. So yesterday evening his elbows started looking inflamed/infected (I didn't get a picture as he's already really self-conscious about it). They are now like this...




He still claims it's not that itchy... I just don't know what to think. I'm afraid any derm will brush us off (though there's no harm in trying) and I'm scared that, if we do go through with a biopsy, he'll be super upset about it (particularly if it comes back negative). My husband thinks I'm way over-reacting and putting him through unnecessary stress but I would hate to leave him undiagnosed if gluten is a problem... What to do... 

In Topic: Could This Be Dh In Child? Not Really Itchy...

14 May 2015 - 01:05 PM

That looks like a lot of new blisters compared to the last picture you posted. 


Have you noticed any worsening of the rash after your son eats foods containing a lot of iodine? Iodine is connected to DH. For my son, it is a huge trigger. 

Hmm... I haven't really noticed that it gets worse with iodine but I'm not really familiar with high-iodine foods. Would that be foods with lots of iodized salt? He does crave salty foods...

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