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Si & Ash's Mom

Member Since 14 May 2013
Offline Last Active Oct 23 2014 06:09 PM
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Posts I've Made

In Topic: Just Did Elimination Diet - Are These Symptoms Indicative Of Ncgi?

08 October 2014 - 03:48 PM

Hi,

 

They probably won't find Hashimoto's except by testing for the TPO antibodies.  There may be a genetic link for Hashimoto's.  A number of people on the forum have reported having  Hashimoto's as well as celiac disease.  The linked wiki article has more info.  I thought of it because you mentioned throat irritation after eating gluten.  The TPO antibodies test isn't a standard test they give thyroid patients from my understanding.  It's something that has to be requested.  Hashimoto's is more common in women than men.

 

http://en.wikipedia....o's_thyroiditis

 

Here's another thread discussing Hashimoto's and some other stuff.  Has some discussion of thyroid testing in it.

 

http://www.celiac.co...-work-together/

Thank you for the info! I will give it a good thorough read when my kids are in bed tonight :)


In Topic: Just Did Elimination Diet - Are These Symptoms Indicative Of Ncgi?

08 October 2014 - 11:17 AM

Your symptoms could just be hormonal too.  If not eating gluten makes you feel better, then don't eat it.  You don't need a diagnosis to change your diet.  If your TSH is in the normal range, it's normal.  What was your reading and what was the range given by the lab?  Yes, the emotional issues can be associated with Celiac but it's really uncommon not to have some digestive issues if you have other "symptoms".  As for your child's teeth..what does your dentist say?

 

Yes it could definitely be hormonal. I just don't know. I would be fine eating gluten free without a diagnosis but I think gluten may be an issue for my kids and my family has been pretty unsupportive of any dietary changes because doctors say they're fine. If there is an issue, it would be great to actually have a doctor help - I know a diagnosis just might not be possible though. My TSH was 3.19 (lab normal range was up to 4). The American Association of Clinical Endocrinologists have said people over 3.0 should be considered for treatment (http://thyroid.about.../a/newrange.htm). At any rate, I thought it would warrant some further blood tests... We have a dentist appointment for my son next week so we're just waiting to hear what the she says.

It is possible you have NCGI but it is also possible you are celiac. Did your doctor run a total IGA test? If your total IGA is low that will cause a false negative. Your symptom cascade is a lot like mine. In my case it will be 3 or 4 days before the D hits but don't know if that will happen with you. It is IMHO significant that you were feeling alot better off gluten and then saw your symptoms return soon after you added gluten back in.

It would be a good idea to get your child evaluated further if you can. 

I hope you can get some answers soon for both of you. 

Yes, he did order the total IGA. It was totally normal. I suppose I will just stay off gluten and reap the benefits :). Thanks for your response.


In Topic: Just Did Elimination Diet - Are These Symptoms Indicative Of Ncgi?

07 October 2014 - 03:08 PM

There's an AI condition called Hashimoto's thyroiditis which is associated with celiac disease.  It is an autoimmune attack on the thyroid.  People with it can have throat swelling and pain.  Just something to consider.  They test for it by checking TPO antibodies.

Thanks so much. I did have a TSH test come back (what I consider) high. But since it was within the labs 'normal' range my doctor won't run any more thyroid tests. I may have to shop around for a better doctor! LOL. I appreciate the advice and I will look into it further. Is hashimoto's genetic? I have family members diagnosed with hypothyroid but I don't think they were tested specifically for the antibodies...


In Topic: Just Did Elimination Diet - Are These Symptoms Indicative Of Ncgi?

07 October 2014 - 02:28 PM

Absolutely you could order bloodwork while down in the U.S.

 

http://www.requestatest.com

Awesome! Thanks very much!


In Topic: Just Did Elimination Diet - Are These Symptoms Indicative Of Ncgi?

07 October 2014 - 01:14 PM

Where do you live?

 

In the U.S. it's possible for people to order bloodwork on their own from a private lab and self pay if their doctor refuses to order it.

Ugh, I wish I could! I am in Alberta, Canada. The attg iga is the only test here. I could pay $300+ for the antigliadin iga and igg tests from a naturopath but can't really justify it (especially since it isn't the most accurate test). If I travelled to the U.S. could I pay for tests while I'm there? We just noticed that my 5 year old's teeth are crumbling (plus he has lots of digestive/behaviour issues) but his attg iga was a big fat negative as well. I would love more tests for him...