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Si & Ash's Mom

Member Since 14 May 2013
Offline Last Active Oct 23 2014 06:09 PM
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Topics I've Started

Just Did Elimination Diet - Are These Symptoms Indicative Of Ncgi?

07 October 2014 - 11:31 AM

Hi all. I had the attg iga blood test run (it's the only celiac blood test available here unfortunately). It came back completely negative. I eliminated gluten for 3 months anyway and was feeling really good. Not perfect, but much better than before.

A few days ago I added gluten back in. I ate a lot of gluten over the course of two days. I felt okay afterward but did notice some stomach pain - nothing really bad. Yesterday I felt really weepy and depressed and then before I went to bed I felt like I got hit with the flu. I had/have a headache and feel completely weak and tired.

Could this all be from gluten? Is it normal to feel okay for a couple days and then get hit hard with symptoms at that point? My doctor believes there is absolutely nothing wrong with me so it's hard for me to figure out what the heck is going on with all these vague but debilitating symptoms! Thanks for your thoughts and advice :)

 

ETA - I also felt like I had a sore throat and that a cold is coming on... could that be from gluten as well? It hasn't progressed into a cold at this point...


Gluten Intolerance May Not Exist? Thoughts?

08 August 2014 - 11:35 AM

Sorry if this was posted already somewhere else - I couldn't find anything... I just came across this article http://www.forbes.co...-may-not-exist/  

 

What are your thoughts on this? I tested negative on the attg iga blood test (the only blood test available here). My doctors don't think gluten is an issue. I went on a gluten free diet anyway and I feel better. My GI issues have almost completely resolved, and issues I have been having with my monthly cycle have improved as well. My nails have always split and broken off and now they are super long and strong. I guess I'm just really confused - is this really all in my head? I know what we believe and think have a great power over us physically but really? Nocebo effect? It's all psychological? What does the celiac/NCGI community think of this? Thanks!


How Long Do You Need To Be Off Steroid Meds To Get Accurate Blood Test?

04 June 2014 - 07:45 PM

My 5 year old has a requisition in for the attg iga blood test (the only test available here in Alberta, Canada). He has been on nasonex (mometasone) steroid nasal spray daily for quite a while now. How long should it be off it before we take him in for blood work? Thanks so much :)


Does The Aga Igg/iga Blood Test Tell You Anything?

06 April 2014 - 07:37 AM

Hi all. I had the ttg iga test run a few months ago and it was flat out negative (my total iga was normal). I still suspect I have an issue with gluten but our labs here don't run any other tests. I know that the local naturopath can run a 'celiac panel' that includes ttg iga (already know it's negative) along with antigliadin iga and igg. Now I know most labs don't run these tests any more as they aren't as specific (?) to celiac, but is there a possibility that they could tell me some useful information? Are there people who are actually celiac that only show positive antigliadin blood tests? Is there any proof that they show possible NCGI? I would love your opinions before I pay out of pocket to have these tests run. Thanks so much!


Would You Help Me Figure Out What My Genetic Test Results Mean?

18 October 2013 - 01:27 PM

Hello all, 

I recently ordered a genetic celiac test and got the results back. It says, "This patient has a genetic predisposition to celiac disease." But then one part says my risk factor is below the average population - and I have no idea what DQ I am or what that even means... Here's what it says...

 

Locus                         AG1                                      AG2

DQB1                         03:XPFJ                               03:XPFJ

Ser. Equiv                   DQ3                                    DQ3

Allelic results         a whole string of DQB1 plus a bunch of numbers I can post if needed...

DQA                           03:MN                                  05:CMM

Ser. Eqiv                    no corr. antigen                   no corr. antigen

Allelic results              DQA1*03:01/02/03              DQA1*05:05/09/11   

 

 

What does this mean? I really have no idea! And I already had a attg iga blood test done that came back negative (if that makes any difference). Thanks :)