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Si & Ash's Mom

Member Since 14 May 2013
Offline Last Active Jun 11 2014 12:51 PM
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Topics I've Started

How Long Do You Need To Be Off Steroid Meds To Get Accurate Blood Test?

04 June 2014 - 07:45 PM

My 5 year old has a requisition in for the attg iga blood test (the only test available here in Alberta, Canada). He has been on nasonex (mometasone) steroid nasal spray daily for quite a while now. How long should it be off it before we take him in for blood work? Thanks so much :)


Does The Aga Igg/iga Blood Test Tell You Anything?

06 April 2014 - 07:37 AM

Hi all. I had the ttg iga test run a few months ago and it was flat out negative (my total iga was normal). I still suspect I have an issue with gluten but our labs here don't run any other tests. I know that the local naturopath can run a 'celiac panel' that includes ttg iga (already know it's negative) along with antigliadin iga and igg. Now I know most labs don't run these tests any more as they aren't as specific (?) to celiac, but is there a possibility that they could tell me some useful information? Are there people who are actually celiac that only show positive antigliadin blood tests? Is there any proof that they show possible NCGI? I would love your opinions before I pay out of pocket to have these tests run. Thanks so much!


Would You Help Me Figure Out What My Genetic Test Results Mean?

18 October 2013 - 01:27 PM

Hello all, 

I recently ordered a genetic celiac test and got the results back. It says, "This patient has a genetic predisposition to celiac disease." But then one part says my risk factor is below the average population - and I have no idea what DQ I am or what that even means... Here's what it says...

 

Locus                         AG1                                      AG2

DQB1                         03:XPFJ                               03:XPFJ

Ser. Equiv                   DQ3                                    DQ3

Allelic results         a whole string of DQB1 plus a bunch of numbers I can post if needed...

DQA                           03:MN                                  05:CMM

Ser. Eqiv                    no corr. antigen                   no corr. antigen

Allelic results              DQA1*03:01/02/03              DQA1*05:05/09/11   

 

 

What does this mean? I really have no idea! And I already had a attg iga blood test done that came back negative (if that makes any difference). Thanks :)

 


My Local Labs Only Run Ttg Iga - What Do I Do Now?

28 August 2013 - 11:55 AM

So I asked my doctor for celiac blood tests a few months ago. He sent me for total IgA (1.32 g/L {ref 0.70-4.00}) and the tTG IgA (<1.0 U/mL {ref <7.0}). My total IgA is normal and my tTG IgA is a big fat negative. I then found out that they only run the EMA if there is an elevated tTG IgA so they didn't run that on me. The lab doesn't even do the gliadin tests or the DGP test.

I am almost certain I have an issue with gluten (life long GI issues which previous doc diagnosed as IBS, iron deficiency, depression, fatigue...) and would love to explore all angles so I can care for my kids' health properly. I recently was reading my full bloodwork results and realized that my TSH is high (3.19 mU/L). It wasn't flagged as the labs have a range of 0.20-4.00 but I believe that is high for me. I am going back to my doc next week to have my free T3's, free T4's and antibodies checked. I'm thinking it may be Hashimotos but we'll see. 

I really feel more exploration into celiac is warranted but am not sure how to proceed now. Is there another way to have the gliadin and DGP blood tests run since my local labs won't do it (I'm in Alberta, Canada)? Should I just push for an endoscopy? I appreciate your thoughts! Thanks!

 

ETA: I found this presentation that my lab put out about lab testing for celiac. I find it interesting that the only reason they give for not having the DGP test is that it's expensive :facepalm: 

http://dynalifedx.co...rina Capote.pdf


Another Pic - Do You Think This Is Dh?

10 July 2013 - 05:27 PM

Hello all. I know that you aren't able to diagnose my son but I would love to hear your thoughts. My 6 year old son has a rash on both of his elbows (one side is worse than the other) and I want to be armed with as much info as possible before we go see the doctor. Do you think it's possible that this is DH? He says it's itchy sometimes but not all the time so that leads me to believe that it isn't. I'll have the doctor look at it anyway but do you think it's worth asking for a biopsy? Just not sure what to do next (if anything at all!). Thanks for your input :)

http://www.flickr.co...84905/lightbox/