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Member Since 02 Sep 2005
Offline Last Active Jun 05 2009 06:45 PM

Posts I've Made

In Topic: Sorry I Know This Is Gross

20 March 2009 - 03:51 PM

I don't have any specific advice. Just sorry you're going through this. Have you discussed your worries with your doctor in detail? He may not realize how serious your concerns are. If the doctor doesn't have any ideas on how to make this surgery workable, you might want to get a second opinion just to see if maybe another doctor might be able to figure out a way for you to have this surgery without worrying about everything else on top of it. There has to be something they can do for you.


In Topic: "Super Sensitive" Celiacs.....

20 March 2009 - 10:29 AM

Just so everyone here knows, the rant I posted here yesterday was actually split off into another topic and not deleted as a couple people who PMd me thought that it had been. For anyone who wants to find it it was put in the Board/Forum Technical Help area - or follow this link - (removed by Nancy)

Update - I PMd Scott earlier today and he PMd me letting me know that he had removed the thread containing my vent and the susequent fallout and drama. I agreed that that needed to be done because it turned into way more than I ever thought or intended. I just wanted to take the link to the new thread that was created that I put here earlier and make sure it was taken down from this post.

I was thinking about just deleting this post, but I didn't want anyone to think that someone deleted it without my knowledge.


In Topic: Wonder Why You May Be Reacting To Some Wines?

18 March 2009 - 02:49 PM

Have you thought about changing the varietal? I started getting really bad reactions to cabernet. It was almost like a gluten reaction, but not quite. When I changed to merlot, I stopped having problems, even with the same wineries I was having problems with from the cab. I have a friend who has the opposite problem, can't drink merlot, but has no problems with cabs. If that doesn't work, maybe try changing from red to white or vice versa.

I'm not as sensitive as you are (I've read your posts in the super sensitive threads), but it's worth a shot.. :)


In Topic: Glutened By Coffee?

18 March 2009 - 02:25 PM

Yea, it's probably cross contamination rather than the coffee. If you think about it, how many times before finding out about gluten did you think "I just touched some bread. I have to wash my hands before making the coffee." ;) The person behind the counter making the sandwiches and setting out the bagels is probably the same person making the coffee - touching the filter, reaching into the coffee canister, etc.

Unless people touch something like raw meat, they don't even think about something they touched making someone sick.


In Topic: For Those Not So Sensitive Celiacs

18 March 2009 - 02:15 PM

I'm relatively sensitive. Even though you are having possible reactions to larger amounts of gluten, I think my experience with smaller amounts might be helpful to you.

My big PITA product category is haircare products. There are products that others seem to have no problem with that I react to. But it can take a few days (I'm guessing the gluten builds up in my system?) to really feel the effects. I have found that it's really just a matter of trial and error. All you can do is stop eating it for a while and then add it back in and keep track of any symptoms you might have. If it makes you feel bad it might be gluten or it might not. Either way, you'll know that it doesn't agree with you. If you really feel like you want to know if it has gluten, you can always do one of those test kits. ??

You could always see if you can find a definite gluten free brand and see if you react the same. Or check the archives and see if other people have had reactions to the same brand you're having a problem with.

As far as being not very sensitive to gluten, I really believe that it builds up. My husband refuses to get tested for celiac and doesn't believe he has a problem with gluten, although he's supportive of having a gluten free house for me and the kids. When he's off gluten he definitely feels better and has more energy. If he goes away on a business trip for more than a few days (gluten-o-rama!) he comes back feeling like crud, acting like a jerk and exhausted. So just my observations with stupidly miniscule amounts of gluten for me, and seeing how business trips effect my husband, I think it totally makes sense.

Hope that helps.


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