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Member Since 25 May 2013
Offline Last Active Jul 19 2015 10:00 AM

Topics I've Started

How I Am Doing

09 July 2015 - 12:10 PM

Well its been two years since I was DX'd its going pretty good. I was still having problems with energy levels. I finally went to the Dr. and said you have got to do something about this, he did blood work,  found out it was folic acid I was lacking. So I did a search and found I can be low on other stuff also. So tomorrow I have an appointment with my Dr. I am going to ask him if I can see a nutritionist. He asked me a long time ago if I wanted to see one and I was a lil hard headed about it. But then I found I was , corn, and soy intolerant and Lactose intolerant , I think I should go see one. Hopefully he will send me to a good one!  I did find out the folate is the cause of my hair graying, my hair falling out, my toenails falling off, sores in my mouth, I was kinda ticked with all the missed diagnoses. But it is what it is and what can ya do? Most of my friends are pretty supportive, my problem mostly is eating out. I prefer not to. I am going to travel to Mackanaw the end of the month I am going to find a small microwave and bring my own toaster and bread. Aldies has a nice bread that I love and is cheaper :) .... If we go to a restaurant I ask that they change gloves, Talk to the chef and they usually are very good. Sometimes they will lay a piece of foil down to cook your steak. And change to a clean utensil. But I am kinda cringing. Might take some cold meats and just live on sandwiches. Not sure yet.Have a nice day everyone!



Hank! :)

14 April 2015 - 05:07 AM

So I had to put my 11 yo Shih Tzu down not long after new years. At first I didn't want another dog because my heart was so broken. You take your dog to the vet to get a pill for issues and find out he is so sick he has to be put down. It is shocking and breaks your heart and all kinds of guilt. You think I am never getting another dog! Then the opportunity to get this lil guy :) 





gluten-free Cheerios

26 March 2015 - 07:08 AM

I was on FB and you know the adds they have on there? Well one was an add saying they have figured out how to take the Gluten out of Oats and came up with gluten-free Cheerios they will be coming out soon. Anyone eles see that? I will see if I can find it on line and post a link.

Grocery Store

26 March 2015 - 06:05 AM

Sorry if this is in the wrong spot, A mod can move it if it is. 

I was at the small grocery store in town yesterday, when I was checking out the check out girl was looking at all my gluten-free stuff, She said do you have to eat gluten-free?? I said yes I do. I was buying stuff for my Grand Kids that are spending the night. Cookies and stuff, She said They had a client come in and talked to the manager and asked that none of the clerks wear any lotion because it may CC any packaging , and her Grand daughter is highly sensitive, Celiac. I'm like what??? So the people who work at a store cannot wear their fav. Lotion because this lady "Might" come in to buy stuff? Isn't that a lil un reasonable?? I mean this stuff in the packages have been handled way before they made it to the store. I don't understand what reasoning for the girls not to wear any lotion. I mean they may have just got done eating a sandwich, and handled a bag of the cookies I just bought. Or have cookies in their pocket for a snack on break. 

Hand Tremors

20 March 2015 - 05:38 PM

Ok I have been noticing my hand tremors, I always used to pride myself on my hand writing and now my hand tremors, I even cut myself off of caffeine, thinking I was drinking too much tea in the am. I went to my friends and showed her a pic on my phone. She asked me why I was so shaky, I don't know it's just my hands. What the heck? What eles do I have to look forward to with Celiac Disease? Do you think it is stemming from my Folic Acid being low? I have been on 1 mg of Folic Acid a day since seeing my Dr. My Dr. Also said I have RA. Well mostly it is my Shoulders that hurt. My knees sometimes but I had my knee reconstructed. Also in the AM my eyes are so RED swollen, I get up they start watering like crazy! burn like wild fire! I know I just went to the eye Dr. And have healthy eyes. Allergies maybe? Right now it is 9;30 pm. My hands are not shaking. In the Am they will be. I have Started my Zyrtec back because I was starting to get hives again. Not like before, just very lightly. On my inner thighs. I thought taking the Folic I was feeling better then, I don't know, the zap of energy I got just up and went. I don't think I am getting Glutened. At my wits end, tired of Drs. thinking I am just a tired housewife. I  

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