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Member Since 27 May 2013
Offline Last Active Mar 03 2014 02:04 AM

#905062 Importance Of Getting Professionally Diagnosed

Posted by on 04 February 2014 - 07:23 PM

I feel that if it's financially possible, it is important to get a diagnosis. I have found that having a diagnosis makes my friends and family take my diet much more seriously than they would otherwise, not to mention ME taking it seriously. I also found that after getting a diagnosis, I followed up on a few issues that many celiacs commonly suffer from, and found that I have severe osteoporosis for my age. Now I'm focused on treating it. I never would have known had I not gotten a diagnosis. 


That being said, I hear you on the no insurance thing. I'm lucky enough to live in Asia where I can afford medical care, but if I were in the U.S., there's no way I would be able to get the kind of care that I am getting here. If you really can't get tested, I think you have to make a choice to commit, COMPLETELY, to the gluten free diet. If you go halfway, you could open yourself up to a lot of other problems and suffering in the future. But it sounds like you really have to deal with the repercussions of eating gluten, which show up in the form of DH for you, so you're probably not as tempted to cheat as some people might be! 

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#901283 Need Help With Education To Give To Others.

Posted by on 02 January 2014 - 07:38 PM

The University of Chicago Celiac Center's materials are great. They have several PDFs explaining different issues associated with the gluten free diet and celiac disease. I actually suggested to them that they do one specifically on cross contamination a while back, but I'm not sure if they have yet or not. Here's a link to the existing materials: http://www.curecelia...ide/fact-sheets and these are specifically for medical professionals: http://www.cureceliacdisease.org/medical-professionals/guide/factsheets

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#900150 Going To A Korean Restaurant Tonight

Posted by on 18 December 2013 - 07:52 PM

Good.  :) Bibimbap was what I was going to suggest. Just make sure you don't eat the red pepper paste! (I am hoping you didn't!) 

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#898158 Ridiculous Conversations

Posted by on 04 December 2013 - 05:01 AM

I just had to share a funny conversation that I had today.


I was texting my mom and talking about how I've been sick the past week or so, and she asked me, "Why don't you just come back to the U.S. where celiac will be easier to deal with?"


And I start to think "Hey! Maybe my mom is getting it! She's really getting this whole celiac thing and being super understanding!"


And then she says...


"And I'll make you chicken noodle soup!"




Lol. It made me laugh so hard. 

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#898155 How Long Does It Take You To Show Symptoms After Ingesting Gluten?

Posted by on 04 December 2013 - 03:40 AM

I think it is different for everyone. For me, I start to feel a little bit "off" about ten or fifteen minutes after I start eating, and usually I get chills and I get what I call "the doom feeling," which is a sudden feeling in my gut that says "Oh no, something terrible is going to happen. This isn't right." Then I get really, really tired and sort of weak. Sometimes my stomach gets really swollen. Then I get the migraine. Then I feel sick for three or four days with joint pain/constipation/pinching pains in my stomach, mood swings/tiredness/etc. Sometimes the symptoms are slightly different. It just depends. 


A lot of people here have also said that their symptoms change over time. I'm not sure that there's any real "normal" as far as symptoms/time frames go. Our bodies are all so different! 

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#897999 Hahaha Glutenfreesingles Dot Com

Posted by on 02 December 2013 - 07:50 PM

I agree. Some people are lucky to have a partner who gets it, but some people have a really tough time with significant others. I'm so glad I was already in a relationship when I was diagnosed. I think gluten free dating sounds very difficult! Lol. It just seems awkward…"I want to kiss you…" 


"Hang on a second, I'm going to need you to floss and brush. Is that mouthwash gluten free? Okay, great. Okay. I'm ready."


Moment lost. Sigh.  :D

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#897252 How To Overcome The "wants" + Anxiety

Posted by on 25 November 2013 - 08:11 PM

Oh, also, I just read the greatest thing by W8in4dave. She said that she tells naysayers that eating gluten is like eating poison ivy. That image certainly resonated with me. Maybe it will with you as well, and will help you to say no to your cravings. I think it has to be mind over matter, and if gluten makes you ill enough, you will come to a day where you'll just say "enough is enough," and make the choice not to touch it again. 

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#897249 How To Overcome The "wants" + Anxiety

Posted by on 25 November 2013 - 08:08 PM

Yes, gluten can cause anxiety. After diagnosis and going 100% gluten free, my "depression" and anxiety that I'd suffered with for years disappeared. 


If you are having really strong cravings to fatty or sweet things, it is likely that your body is lacking some nutrients. Do you like green smoothies? Try eating as many greens as possible, every day. I can almost guarantee you that it will help to get rid of your cravings. Also, drink lots and lots of water. I haven't had a sugar craving or bread craving in years, and I believe that it's because I try to eat plenty of greens and fresh veggies. I have found that after a while, your body just doesn't want the other things anymore. 


Working in a Pizza Hut is probably quite awful for you, as far as cross contamination goes. Even if you aren't eating things prepared there, just being in an environment with flour floating around could contaminate you. I know that a lot of members here don't even go into bakeries or pizza parlors, due to the flour in the air. You might look into finding another job someplace else, maybe not right away, but whenever something becomes available? 


Good luck! 

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#896828 The Uncommon Question

Posted by on 21 November 2013 - 09:07 PM

One of the many symptoms of a food intolerance is getting a metallic taste in the mouth after eating the offending food. I used to get a similar taste in my mouth after eating baked goods. 

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#896805 My gluten-free Birth Control Has Been Discontinued. Help!

Posted by on 21 November 2013 - 03:58 PM

I'm with you moosemalibu, I've had a paragard for six years now. Love it. WinterSong, I have heard both that Mirena causes cysts and that it can help to prevent cysts, so I guess you would have to talk to your doctor about it. I had cysts before as well, and once I got completely off hormones, they stopped occurring, with the exception of one, which was a dermoid cyst, that had to be surgically removed. Have you tried any alternative treatments to help with the cysts? 

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#896544 The What's For Dinner Tonight Chat

Posted by on 20 November 2013 - 03:40 AM

This morning, I put the following into my rice cooker: about 2 cups of beans, a jar of Prego pasta sauce, a tablespoon of brown sugar, 1 tbs chili, 1 tsp cumin powder, 1/2 tsp cayenne, a teensy dash of cinnamon, salt, pepper, diced sweet potato, onion, garlic, and chopped red pepper…then flipped it on and had an awesome pot of veggie chili ready when I got home. Delicious. 

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#896543 Brain Fog Recovery.

Posted by on 20 November 2013 - 03:33 AM

I have found that in addition to gluten causing brain fog, sugar spikes can cause it as well. If I eat something very starchy, like potatoes or a cup of sweet tea, I often feel brain-foggy very quickly. You might try limiting your carbohydrates for a while to see if that helps the problem. I hope you feel better soon! Brain fog is just AWFUL. 

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#888827 Grain Free Diet?

Posted by on 18 September 2013 - 05:05 AM

I'm considering it too! But I love the full feeling that I get from eating grains. I feel like eating veggies never makes me feel as satisfied as a bowl of veggies AND rice. 

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#886204 How Is It Posible To Gain Weigt On A Callange?

Posted by on 28 August 2013 - 01:51 AM

Could it be that your body is going into protection mode, and severely slowing down your metabolic processes? Could it also be bloating and water retention? Yikes, it sounds like you are not doing too well on a challenge! Are you sure you want to go through with it? Vomiting that much and dealing with that much diarrhea sounds as if your body is having a quite violent reaction to the challenge. 

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#877709 How Do You Explain Brain-Fog To People

Posted by on 02 July 2013 - 02:27 AM

The way I explain feeling that I get when my brain fog "turns on" is by explaining that it's as if most of my life my brain is set to a certain frequency, but as soon as the brain fog starts, it's like my brain switches to a static-filled frequency. I can literally feel the shift. It's like shhhhhhhh.....click. Different mindset. Can't focus. Can't think clearly. Can barely finish sentences sometimes. The whole world looks fuzzy. 

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