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MaggieK

Member Since 05 Jun 2013
Offline Last Active Sep 02 2013 09:27 AM
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Posts I've Made

In Topic: Positive Ttg, Negative Ema 6 Year Old

28 August 2013 - 05:04 PM

Update, for those googling! We had the repeat labs, they came back pretty much the same (with the exception of the WBCs) coming back normal. He had the biopsy, and it came back positive. So we officially have a diagnosis.

In Topic: Positive Ttg, Negative Ema 6 Year Old

10 June 2013 - 05:58 PM

An update, in case anyone is in a similar situation later:

I really liked the GI doc we saw. He was quite thorough and had a good repoire with my son. The plan is to repeat the ttg, and CBC, and also check the dgp. He is also going to have a abdominal X-ray, and then if the ttg or dgp is positive again we will schedule a egd.

So we wait and see.

In Topic: Positive Ttg, Negative Ema 6 Year Old

05 June 2013 - 05:03 PM

Welcome, Maggie  :)
 
can you see if you are able to get the DGP iga/igg combo?
 
The low white cell count is common for those with autoimmune disorders. I know because I have had life long low WBC's. That is not a problem as long as a poerson isn't getting sick all the time. 
 
You have to sustain a lot of damage to the small intestine before you trip the EMA.  This is why kids rarely come up with a positive....it's more normally seen in adults who go years without a diagnosis.  I had a positive EMA but my gut was totally trashed by then.  You do not want this to happen to your son.
 
As far as pasta is concerned, there is no need to worry about taking away pasta.There is some phenomenal gluten-free pasta out there now and I doubt your son will be able to tell the difference...that's how good it is.  If you need the names after he is diagnosed, then let me know and I'll help you out with that!  :)

  

Thank you for the info. He's a super healthy kid, so if the WBCs are chronic it's not really affecting him. And yes, I will need pasta recommendations because I've always heard the gluten free stuff isnt good. That would be a huge relief!


Welcome, Maggie  :)
 
can you see if you are able to get the DGP iga/igg combo?
 
here are some pub med abstracts about the DGP igg test in a pediatric population:
http://www.ncbi.nlm....pubmed/22197936
http://www.ncbi.nlm....pubmed/21942854


Thanks for those links. I'll definitley ask about that at our appt.

In Topic: Positive Ttg, Negative Ema 6 Year Old

05 June 2013 - 08:51 AM

Thank you so much for all that info. I'm of course hoping that for some reason the test was wrong and he doesnt have it, but it's so helpful to prepare myself for the very real possibility.

We see the GI doc soon, which will be helpful. Luckily his symptoms are not very extreme so it's not a problem to let him have gluten until testing is finalized. He loves pasta so much so taking it away is going to be quite an ordeal anyway.

Again, thanks for taking the time to answer.