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Member Since 09 Jun 2013
Offline Last Active Aug 30 2013 08:18 AM

Posts I've Made

In Topic: Need Advice, Please!

26 July 2013 - 06:11 AM

Thyroid is critical.  It acts as a regulator for so many things in the body including constipation, body temperature, etc.  B12 is also critical and it seems different doctors have different views.  On my labs, the normal B12 range is 200- 1400...this is a huge range.  I asked my first family physician to give me B12 when my labs came back at 200 on the nose.  (This was 2 years before my celiac diagnosis and I already been diagnosed as anemic for quite a while).  She refused to give me injections.  Within a few months, I started having migraines.  I changed family physicians and complained of my headaches.  He sent me to a neurologist...first thing he did was look at my bloodwork and say that he thinks he can help just be raising my B12 level.  Sure enough my migraines stopped.  The continued to look at my blood work over time and continued to increase the frequency of my shots...eventually we reached a diagnosis of celiac.  I have been gluten free for about 3 months and continue to take B12 injections weekly. 

Best wishes for you and your daughter.  I hope you get answers very soon.

In Topic: Celiac And Ibs?

26 July 2013 - 05:43 AM

I'm still learning, but believe it's similar to celiac.  I wasn't looking for Crohns (don't feel like I have symptoms of it), but my doctor included something on my blood work that showed antibodies, similar to the celiac test, but these are specific to Crohns.  I believe it takes a scope/biopsy to confirm.  Are these new symptoms since your last scope?  I keep researching...it seems that one gets misdiagnosed as the other from time to time, and on the rare occasion confirm both diseases.

In Topic: Kinda Of New To Forum

26 July 2013 - 05:36 AM

Thank you for the welcome and the information.  This forum has proven invaluable already.  I'm so glad to have found this group!

In Topic: Celiac And Ibs?

20 July 2013 - 12:30 PM

Have either of you been tested for Crohns? I was just confirmed positive for Celiac and the doc mentioned that specific antibodies for Crohns are also elevated.  I didn't want to believe...still don't want to consider it....  I thought it was ridiculous to think of having celiac and crohns, but as I have continued reading, apparently it's not that uncommon.  I also have thyroid and adrenal issues.  I hope you both get answers soon.

In Topic: Common For Ncgi People To Be Nutrient Defficient?

14 June 2013 - 06:32 AM

Yes and yes. There are board members here who don't have either of the 2 most common genes... can't remember who though.   NCGI appears to affect nutrients levels - I'm guessing it has something to do with the inflammation it causes.


Thank you!  I'm very new to this forum.  Is there a way to have email notification on responses or an easy way to return to the forum and find your own post/topics?  I had to wait for my posts to be approved by a moderator and then find them again.  I'm guessing there is an easier way.  Thanks again

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