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Member Since 11 Jun 2013
Offline Last Active Jul 17 2013 10:46 AM

Posts I've Made

In Topic: Newly Gluten Free, New Symptoms

17 July 2013 - 08:15 AM

Thanks for replying. I hope there's no gluten sneaking in anymore! This fatigue is insane, I have been sleeping 12-14 hours a night and with 3 small kids that's too much!. My doctor recommended a low glycemic index diet as well as gluten free because of feeling hypoglycemic at times. Something along the lines of an effective pancreas hitting sugar with a high dose of insulin causing it to fall too quickly.

The strange thing about being diagnosed with celiac is that my symptoms were not gut related. My biggest complaints are memory loss, anxiety and strange feelings in my head. Along with no get up and go, joint and muscle pain, mouth problems, hair loss and weight loss. I actually spent the last 7 years trying to figure out and being told it was all anxiety. I am just really hoping that my issues are all caused by celiac and not something else.

On another note, does anyone have any supplements or vitamins they recommend? I was taking 2 centrum forte a day as per my psychiatrists recommendation for hair loss but recently stopped because I find them hard on my stomach.

In Topic: Years Of Searching

12 June 2013 - 03:57 PM

I am in canada, but my number comes in around 250 all the time with the range being >150 pmol/L.

My ferritin is always between 30-40 with a range of 15-200 ug/L. I eat alot of red meat and green vegetables.

Vitamin D hasn't been tested in 4 years but when it was it was 94.

In Topic: Years Of Searching

12 June 2013 - 08:38 AM

Thank you! Actually thyroid was my first route and with my numbers I'm not sure even my great new doctor would agree to a trial. My present numbers "while in a giant flare up of symptoms" are
Tsh- 2.37. (0.2-4.0)
Thyroxine free 10.3 (7.5-21.1)
Free t3 5.0 (3.5-6.5)

Tsh receptor antibody <0.30. (<1.75
Anti-thyroglobulin <20 (<40)
Anti tpo (in april) <10 (<50)

Anti dsdna 7 (<120)
ENA screen negative
Everything else is normal as well

I have normal ferritin, and vit b12. It could be better but def still in that normal range. Magnesium is good, calcium is good.

I have finally found a doctor who is thorough and willing to listen so I'm hoping this is a means to an end.

I also have sun sensitivity, and strange skim issues. The worst by far is the head is the head issues though. Thanks again for the help

In Topic: Years Of Searching

12 June 2013 - 05:43 AM

Thank you for your reply! If I have finally found an answer then I will be extatic. Even if it wil be very difficult, I will finally have an answer and be able to get better. My memory has gotten so bad lately!

I have my thyroid function tested numerous times, and while my numbers aren't ideal they are still within range. Also all my antibody tests are neg (tpo, tgab and TSI) so even if mild hypothyroidism were at play it would be secondary I would think. My eyebrows are falling out all over, the outer edge and the inner edge.

I also should add that my CBC, liver function and kidney function were normal. I also had a normal CRP and sed rate. They also tested for anti ds DNA and ENA which were neg.

Since I have a long list of symptoms, I don't have a clue what's going on. This is the first test that's shown anything to date. I also get chest pain, but that is suspected to be muscle. I bruise really easy, and have bad scarring acne that came from nowhere. Whatever this is, it's in my family, undiagnosed.

The only gut issues I've had are chronic constipation but I never thought anything of it since its been that way since I can remember (my daughter was born like this too). No matter what I eat it doesn't really help. There was a few times where I remember lying awake at night with this strange gut pain where it hurt so bad I didn't want to move, but that was only a few times so I thought nothing of it. I also get this gassy feeling in occasion but no gas comes. Other then that my gut seems pretty inactive (literally).

Honestly through out this search, celiac never crosse s my mind . I didn't think it could affect my head! Thanks for the reply... Hoping for answers on Friday.

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