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PCB

Member Since 12 Jun 2013
Offline Last Active Nov 16 2014 06:42 AM
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Posts I've Made

In Topic: Celiac Night Vision

16 November 2014 - 03:56 AM

As people still seem to be reading this thread here is an update. After eight bouts of the scotomas through the summer (they were continuous through June - August) they disappeared at the end of September. We live in southern England and the National Pollen and Aerobiology Research Unit at the University of Worcester kindly sent me pollen counts for near this part of the country. The scotomas started with the onset of the birch pollen season but it was not obvious that the gaps coincided with changes in pollen count. I did a DST home FastCheck POC IgE blood test for inhalant antigens about a week after the last scotoma and there was a weak positive to birch pollen and stinging nettle pollen.

After doing the IgE test I was sent September nettle pollen data for Worcester (which included all members of the Urticaceae). Levels decreased to low about the 11th and almost disappeared by the end of the month. The scotomas could therefore be a reaction to pollen but I will perhaps try to do an IgE test for tomato allergy next year if the scotomas return.   


In Topic: Celiac Night Vision

01 November 2014 - 12:17 AM

As people still seem to be reading this thread here is an update. After eight bouts of the scotomas through the summer (they were continuous through June - August) they disappeared at the end of September. We live in southern England and the National Pollen and Aerobiology Research Unit at the University of Worcester kindly sent me pollen counts for near this part of the country. The scotomas started with the onset of the birch pollen season but it was not obvious that the gaps coincided with changes in pollen count. I did a DST home FastCheck POC IgE blood test for inhalant antigens about a week after the last scotoma and there was a weak positive to birch pollen and stinging nettle pollen.


In Topic: Celiac Night Vision

04 July 2014 - 12:12 PM

Colleen: see posting 5 July 2013. The ophthalmologist wrote ' to be honest I could not find any pathology to account for this scotoma . . . '

NatureChick: sun exposure and optometrist see posting 1 Aug 2013

The only reason I am posting all this is because this symptom so far appears to be unique. In case it has a celiac basis this seems to be one place to look for answers..  


In Topic: Celiac Night Vision

03 July 2014 - 11:52 PM

Hello anyone still interested in this subject!  The scotomas disappeared on the 24th September last year and did not reappear until the 26th March this year. Since then there have been 5 episodes with clear gaps. The latest has been going on since the 1st June. The scotomas peak each year in June and July and the present peak has varied considerably. The food diary kept for the last 3 months clearly shows that they cannot be due to tomatoes alone. They are either due to multiple foods or something else. I have just done 5 days excluding all nightshade foods and the scotomas first increased and then decreased slightly. I thought originally that they might be due to nightshade alkaloids which affect nerve conduction. These vary in concentration, are excreted slowly and are fairly heat stable. Lisa (GottaSki) mentioned lectins, another group of compounds found in grains used by celiacs, nightshades, legumes and dairy products which can bind to various tissues including gut wall, blood cells or various organs including the brain. Cooking is said to lower the toxicity. I recently read about profilins, proteins involved in cell structure in animals but also found in some fruits and vegetables including tomato. They are also present in pollens and can act as an allergen. The grass pollen season here extends from April to September and I am feeling slightly hay fevered at the moment. Perhaps I should be paying attention to the weather record rather than the food diary! More ideas for experiments please. My wife is marvellous at making simple gourmet meals excluding things!