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PCB

Member Since 12 Jun 2013
Offline Last Active Today, 07:10 AM
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Posts I've Made

In Topic: What Are The Genes Behind Celiac Disease Inheritance? | Genetic Literacy Proj...

20 July 2015 - 11:25 PM

I have confirmed celiac disease (family history of celiac and autoimmune disease, biopsy, enzymes) and recently had my genome done by 23andme. On websites such as eupedia.com there are lists of genes contributing to disease liability. The HLA-DQA1 Rs 2187668 risk allele T appears to be the strongest indicator (I am TT) with an odds ratio of 6, but other genes are listed with an odds ratio of around 2. It would be interesting to hear from celiacs who know more about this expanding field what useful information we can get from all this about family liability.

In Topic: Celiac Night Vision

04 July 2015 - 07:46 AM

Here is a description of the scotomas to help others with celiac night vision problems compare their symptoms. The scotomas are usually at a maximum about this season. In the night against a dim ceiling they are round dark areas affecting central vision about 20 degrees across. At first light they seem to get slightly smaller and more triangular in shape, with a rounded point at the top and the main mass below. Next, central vision comes back as a bright hole in the upper part of the dark area. As the room gets brighter the scotomas seem darker, and if the eyes are shut suddenly they are still visible briefly but now bright against a dark background. As daylight arrives they break up and disappear completely. When the scotomas decrease over a few days before vanishing the hole extends to the edge of the shadow area forming a C (or reverse C on the right), and then the top of the scotoma disappears leaving a curved bar shape below the fixation point which diminishes to a spot and then vanishes completely.The scotoma has always been denser in the L eye. Still thinking about lectins, we tend to eat greenhouse tomatoes less ripe than bought ones, and I am blood group A, which d'Adamo thinks increases sensitivity to tomato lectin. I am still anaemic despite strict gluten-free diet. I hope the experts out there still reading this will have some ideas. Would a positive Coombs test suggest that lectins are involved?.  


In Topic: Honesty Vs Glutening

22 June 2015 - 11:50 PM

In the UK we celiacs are grateful to non-celiac gluten avoiders. Since last year restaurants have to list allergens and many have gluten-free menus, which suggests that more than 1 percent of the population is avoiding gluten. The U.S. Is usually ahead in these things and I guess your labelling of food products is as good as ours with gluten-free prominent on packs and jars. I simply say I have to be gluten free and that is accepted,. As others have commented, you must be consistent or you will undo all the good work and goodwill that has got us here!

In Topic: Celiac Night Vision

01 June 2015 - 01:20 AM

Next update! Scotomas disappeared as noted in September and returned on the 2nd March 2015. They disappeared again twice but have been present continuously since April. This is now the 6th year. They are more persistent with fewer gaps each year but have always vanished for five months in the winter. I usually eat baked tomatoes but ate them raw a few times this winter without scotomas. Winter tomatoes are not as good so we eat them less often. Is it tomatoes, pollen or both? I am still anaemic, Hb 12.4 g/dl, but B12, folate, iron, vitamin A and vitamin D were normal .We take 1 multivitamin + mineral tablet (about 100% RDA) and 1 cod liver oil capsule daily.  More suggestions please!


In Topic: Celiac Night Vision

16 November 2014 - 03:56 AM

As people still seem to be reading this thread here is an update. After eight bouts of the scotomas through the summer (they were continuous through June - August) they disappeared at the end of September. We live in southern England and the National Pollen and Aerobiology Research Unit at the University of Worcester kindly sent me pollen counts for near this part of the country. The scotomas started with the onset of the birch pollen season but it was not obvious that the gaps coincided with changes in pollen count. I did a DST home FastCheck POC IgE blood test for inhalant antigens about a week after the last scotoma and there was a weak positive to birch pollen and stinging nettle pollen.

After doing the IgE test I was sent September nettle pollen data for Worcester (which included all members of the Urticaceae). Levels decreased to low about the 11th and almost disappeared by the end of the month. The scotomas could therefore be a reaction to pollen but I will perhaps try to do an IgE test for tomato allergy next year if the scotomas return.   


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