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pebbles12

Member Since 22 Jun 2013
Offline Last Active Jun 26 2013 06:54 AM
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Topics I've Started

Symptoms And Testing

22 June 2013 - 11:51 PM

Apologies in advance for the long-windedness of this post!...

 

Last year I suddenly started experiencing awful gastric problems - severe bloating, horrific gas with eye watering smells (sorry to be so graphic) and bowel movements that were not normal. I thought I might have IBS so self-treated with various over the counter remedies and alterations to my diet, but nothing made a difference, so eventually went to my doctor for help.

 

An initial diagnosis of IBS failed to respond to drugs so a series of blood tests were done, including the one for coeliac, which came back negative. At the time I was severely limiting my intake of bread, cereal etc. as I wondered if that might be that I had picked up an intolerance (as I exercise a lot and fill up on toast and cereal in between meals). I am not sure if stopping all of this could have affected the test?

 

After a series of negative test results, I was back to a diagnosis of IBS. Four different drugs later and no response to any of them and I asked for a referral to a gastroenterologist. A variety of tests including an endoscopy and biopsies. The biopsies were lost and my consultant said not to worry as I 'probably didn't have celiac disease anyway'.

 

Bounced back to my doctor who yet again stuck the IBS label on me and prescribed variations on a theme of drugs I'd had before, which yet again I have not responded to.

 

My symptoms are so similar to many of those described with coeliac that I decided to try an elimination diet to see if that made a difference. Didn't notice too much of a change after two weeks, so returned to normal eating and went to town on toast, pizza, cereal, all the things I'd missed! But oh holy goodness did I pay the price. Was in so much pain with the bloat and gas.

 

So my question is should I request another endoscopy to rule in/out celiac (even though it's a singularly unpleasant procedure!) or does the fact that I wasn't massively better after two weeks an indication that it is not coeliac?

 

Thanks in advance to anyone who can help!