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Jdorrferball

Member Since 23 Jun 2013
Offline Last Active Yesterday, 08:47 AM
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Posts I've Made

In Topic: Question About Ttg Iga

01 March 2014 - 11:01 AM

Hmm...I understand what you are saying in the post you linked to. But something about that just doesn't sit right. Still trying to wrap my brain around it ;)

In Topic: Thoughts On These?

04 February 2014 - 10:26 AM

I will DEFINITELY let you know. Thanks so much for all of your help and kind words!!

In Topic: Thoughts On These?

04 February 2014 - 07:13 AM

I'm doing pretty well. Thank you for asking! I have had some back and forth periods of eating gluten. Had a heart attack in September that took us completely off guard. Turns out it was caused by a tear in one of my arteries. Nothing at all to so with cholesterol and such. In fact my cholesterol is only 80!!

Being gluten free does bring me a lot of improvement...no headaches, no bloating, more energy etc. However the diarrhea is not resolved, at least not entirely.

In Topic: Thoughts On These?

03 February 2014 - 04:51 PM

Okay let's see... She is 9 1/2 with no real digestive complaints. She has been eating gluten for several months (August I think) and was only gluten free for about two weeks before my husband gave her and the other children gluten "without thinking about it". She only threw up once and had a headache for a couple of days. She has always had some problems with what we thought was eczema off and on since she was around 3. For as long as I can remember she has had rough feeling skin on her stomach.

A few months back the "eczema" started looking different and was on her stomach which was new. Made her an appointment right after Christmas and she was given the oral steroids because it was too widespread for topical. The steroids helped a little but by no means got rid of the rash. A matter of days after she finished them the rash popped up in new places and was worse looking than in the pics I posted. Those new areas on her forearms and elbows are actually cleaning up right now.

We don't have any diagnosed celiacs in my family. The short version of my history is: diarrhea for four years starting right after giving birth on 2009, lifetime of migraines, tired with a general vague unwell feeling as far back as I can remember, perforated colon while pregnant in 2013, told I have Crohn's disease following surgery for the perforation, weird rash started a few months after surgery that comes on when I eat gluten and goes away when I don't.

I think I know how the biopsy has to be done: next to the effected area, must be eating gluten, and at least a couple months after finishing the steroids. Is that right? Thank you so much!

In Topic: Thoughts On These?

03 February 2014 - 02:09 PM

Sorry...it should say she was one of my children who threw up, not threw about. Her primary care doc put her on oral steroids to see if they would help. At the time she only had the rash on her stomach. The steroids helped a tiny bit. When the ten days on the steroids were up, the rash came back worse and in places she didn't have it before...life her forearms and elbows. She is not gluten free at this time.  You are right I do call the shots and it is my child. I'm also the mother of a special needs child who was made to feel like an idiot over and over again for a long time. No one would believe me when I knew in my gut there was something terribly wrong from birth. Turns out I was right. Guess I'm still a little sore after being treated like a fool for so long. Thanks for your help :)