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madminx

Member Since 02 Jul 2013
Offline Last Active Aug 14 2014 06:53 AM
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Posts I've Made

In Topic: How Do You Cope With This Frustrating Disease

14 August 2014 - 12:14 AM

The food diary helped me to see that I can't handle a lot of fat...probably the result of no gallbladder...it was removed 2 weeks after celiac diagnosis. I was still having issues with bloating and D and so have been cutting out other things trying to figure out some more. It may help you to figure out some other things that may bother your system.

Mentally...coming on here and venting helps...I feel less alone in it when I do. But it is no doubt a frustrating disease...I think especially because all I was told by my Dr was don't eat gluten. Seems like it takes more than that for a lot of us.

I think I have IBS on top of the celiac disease, or it's just my body still trying to heal from the damage the gluten has done. I can't handle a lot of fat either, and I have stomach issues when I get stressed out. It doesn't take much. I will definitely start a food diary. 

 

Yes it definitely helps to vent. I'm glad this forum is here to talk to people who actually get it. Thanks for your support. 


In Topic: How Do You Cope With This Frustrating Disease

14 August 2014 - 12:09 AM

I'm sad to read that your therapist did not believe you. Did they ask you if you were officially diagnosed? I honestly would find a new therapist, tell them you have the disease and then if they ask if you were diagnosed you tell them yes. None of their business whether you got a traditional diagnosis or not. Their job is to help you cope. Ugh that is so frustrating. ::hugs::

Yes he asked and i told him I was not officially diagnosed. Good idea! That's what I'll do when I get a new therapist. That way I can get some actual therapy and not just another person who doubts me. Thanks /hug. It really is frustrating. I'm glad this forum is here to get support from others who know how it is. 


In Topic: How Do You Cope With This Frustrating Disease

13 August 2014 - 12:25 PM

I am going to reply on a mental level - as this disease affects us all mentally - and offer that in addition to worrying about the obvious physical symptoms you consider therapy or perhaps meditation. I started therapy and have learned a lot of coping skills instead of  running with my anger, sadness and isolation which was making me a very poor person to be around.

Thanks for your reply. I was in therapy a few months ago, and my therapist didn't believe that I had celiac. Mainly because it was not diagnosed by a doctor. It was hard that not even my therapist believed me (along with a bunch of friends). I eventually did get tested by a doctor but it came out negative because I had been on the gluten free diet for about a year at that point. I did learn a few good skills but I think it would have been more effective if my therapist believed me. 


In Topic: How Do You Cope With This Frustrating Disease

13 August 2014 - 12:21 PM

I have had those crackers/flatbread and they are really, really good.  I am a very sensitive Celiac but have been gluten-free almost 10 years so can handle just about anything, food wise.

I have never had any problems with them but they have ingredients that may cause problems for some people....especially if you are new to the diet.  It should not take 3-4 weeks to recover from a glutening so it might just be that you are not healed yet and there are going to be many foods that don't agree with you in the beginning.  It happened to me at first too.

 

Hang in there and I hope you feel better soon! 

Thanks for the reply. Yeah, I don't think it was the crackers. I think it was the thyme. I found a website that says Simply Organic single ingredient spices are not certified gluten free and the company does not guarantee that cross contamination is not present. 

I know my original post is a bit misleading, but I have been gluten free for almost 2 years. 3 weeks was the first time I got glutened in months (and last night was the second time in months). 


In Topic: How Do You Cope With This Frustrating Disease

13 August 2014 - 12:09 PM

I'm sorry...that is frustrating.  I've been there too.  I do find this disease to be extremely frustrating!

 

How long have you been gluten free?  I think it takes longer to heal than we expect in the beginning.  Do you keep a food diary to figure out when you get symptoms what may have caused it?  I doubt that either of those things would cause a glutening, but that doesn't mean you don't have an intolerance to something else.  It seems like a lot of people on here do.  The food diary might be able to help figure that out.

 

Take care of yourself...I hope you feel better soon.

Hello, thanks for your reply. I've been gluten free for almost 2 years. 3 weeks ago was the first time I got glutened in months (and last night was the second time in months). That's another thing that makes this whole thing so infuriating, I thought I had it all under control and then one little mistake messes it up again. No I don't keep a food diary but I definitely should.