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madminx

Member Since 02 Jul 2013
Offline Last Active Aug 14 2014 06:53 AM
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Topics I've Started

How Do You Cope With This Frustrating Disease

13 August 2014 - 05:43 AM

Hello everyone,

I was wondering how you all cope with the
incredibly frustrating cycle of celiac disease. I am livid. I got glutened about 3 weeks ago and decided by process of elimination that it was most likely caused by the Absolutely Gluten Free brand flatbread I ate. I was finally starting to feel normal again when last night I began to have symptoms again. Then I found out that it was actually the Simply Organic brand thyme all along that is probably cross contaminated. Now I have to be sick all over again for another 3 to 4 weeks and I am really fed up with this bs. I don't know how to cope with the absurdity of finally feeling well again and then just like that getting sick again from one stupid little mistake.

Absolutely Gluten Free Brand Flatbread Cross Contamination?

01 August 2014 - 06:03 PM

Hello everyone, 

 

I recently tried Absolutely Gluten Free brand flatbread and I got sick when I ate a significant amount of it (symptoms including extreme fatigue, muscle tightness, stomach issues, sneezing, stuffy nose, dry burning eyes). Has anyone tried this product before and had a reaction and/or does anyone have verification if this product is or isn't cross contaminated? 

 

Thank you. 


Tested Negative For Blood Test...

25 November 2013 - 07:50 PM

Hello everyone, 

 

I just got results back from a gluten blood test. They were normal. 

 

Is is possible to get a false negative blood test because I've been on a gluten free diet since January? Also I haven't accidentally eaten gluten for over a month before the test was taken. 

I'm pretty sure I have celiac disease because when I accidentally eat gluten (even very small amounts)  I get a severe reaction and am sick for 1-2 weeks. 

 

Thanks. 

 

 


Too Limited Diet, And Still Sick. Not Sure What To Do...

08 October 2013 - 06:59 PM

Hey everyone, 

 

Since going gluten free in January, I have had to remove several foods other than gluten from my diet that I have intolerances to (or that I refuse to eat because it's processed).

 

Here is the list of foods I have removed from my diet since January:

 

1. gluten

2. most other grains, except for rice (this is mainly because when I ate millet, brown rice, quinoa, oats, etc... i got similar symptoms as gluten, and corn is GMO'd so I refuse to eat it unless it's organic, and it's hard to find organic corn so I usually don't eat it).

3. most processed foods

4. chocolate (i had to stop eating dark chocolate because it was causing bladder problems)

5. dairy (i have been dairy free for almost 10 years now, way longer than gluten-free).

 

So, my main problem right now with how I eat now is, I'm having peptic ulcer type symptoms, IBS type symptoms, and weight loss. I was perfectly fine a few months ago on this diet, but for some reason it all went downhill within the past few months, even though I'm almost 100% sure I'm not getting any cross-contamination or "hidden" gluten in my diet.

 

My question for everyone is, how the f do I get enough carbs without gluten, and without most other grains and processed foods? Right now I'm limited to these carbs: sweet potatoes, yams, other root vegtables, white rice, and fruits high in carbs such as bananas, apples, etc. Maybe my stomach problems are being caused by too little carbs? Is that possible?

 

This website  http://caloriecount....-balanced-q1385

says per day percentages should be:

 

Fat: 20 - 35% of total calories (average 30%) 
Protein: 10 – 35% (average 15%)
Carbohydrates: 45 – 65% (average 55%)

 

Now I'm pretty sure I'm eating way more fat and protein than that per day, and not nearly enough carbs. How in the hell do I get more carbs? Any ideas? I feel like I just need to suck it up and eat processed food? 

 

 


How To Deal With Unsupportive Friends?

22 September 2013 - 04:46 AM

Hello everyone, 

 

I've been gluten free since January. i don't have an official diagnosis, but I plan to see a doctor soon to try to get diagnosed. I don't have health insurance, so not sure how that will go. 

 

Anyway, I've told all of my close friends about my struggles with what I believe to be celiac disease since January. At first they were generally supportive. Recently, more and more I've been getting the impression that they don't believe that my symptoms are as severe as I claim them to be. When I complain to them about accidental glutenings and that I usually get sick for 1-2 weeks from just 1 meal with a small amount of gluten (including from cross-contamination), they react to me with doubt and are very dismissive. For example, I was accidentally glutened recently at a restaurant. I told my friends about it, and they all said it's impossible that gluten would cause me to feel like crap for a week or more, even after I told them I get this same set of symptoms for the same amount of time every single time I accidentally eat gluten. And they said there's a mild cold/flu thing going around, so OBVIOUSLY I had that and it wasn't gluten related. 

 

I don't really know what to do anymore because I'm not making it up and I'm not exaggerating, and their consistent doubt and dismissiveness is making me resent them a little. I mean, they know very little about celiac disease/gluten intolerance. I've done extensive research on it since January. And how can they presume to know how I'm feeling and what symptoms I'm having? They're not in my body. They think it's a placebo effect. Then how do they explain the several times I've been glutened and was in denial about it at first till the symptoms get so bad that it's undeniable? And all the chronic health issues I had that magically went away after I started the gluten free diet? 

 

I'm sure they'll believe me after I get officially diagnosed, but I don't even know if that's going to happen because I've heard that you have to eat gluten for several months in order to get diagnosed, and I'm not willing to be sick and miserable for months just to get diagnosed. 

 

How do you all deal with people who constantly doubt you and think you're making it all up?