Hello here, I figured I should post an update on my situation for those still interested, I know I must have annoyed more then one here so, feel free to skip this thread if you were one of those I might have annoyed.
Well it turns out I am not celiac but I still need to avoid gluten, I been asking myself questions on and on for months now and tried so, so many diets and analyzing everything that goes inside my mouth since no one yet and no doctor were able to tell me what was causing my symptoms, to this day it is still all hypothesis yet those hypothesis have worked to a degree at least.
Back in early August was the bottom line of the worst, I had so many spasms of all kinds and literally thought my intestine would explode from just a slip of water, at the time I knew celiac was officially not my symptom, I got tested. so I was eating chicken, rice, oats,barley, wheat(for celiac diagnosis) for the most part. This clearly was doing no good as I was in a state of crisis, I had to do something NOW or I would not live up for my next exam. Btw the reaction I was getting from eating wheat was no more harmful then any other grain, it gave me spasms and inflammation, no puking or anything a celiac gets.
This is when I changed my diet drastically. eating the same soup full of veggies made of barley and fondu sauce that contain soy, I started to feel SO much better, my constipation was gone and I had regular bowel movements, I been having bowel movements ever since and most of my spasms were gone, I was still in much pain but it was SUCH a relief.
So I started to build myself a diet plan that I would follow, I came to think back and realize that ANY meat gave me symptoms ALL different symptoms, chicken made my stomach feel inflamed for 4hours, beef made my intestine cry in pain, egg just made me feel bad overall sort of bloated. But then I discover fish, sole fish and I had no problems with it. I also discovered sunflower nuts and pumpkin seed with dried raisins and I was eating buckwheat too as it is not a grain but a fruit supposedly, anyway it was working great.
So for a a whole 2 weeks I was eating nuts for breakfast, fish and soup with buckwheat and I was getting better and better and btw at that time I wasn't smoking hash (weed) either. Then I decided to buy some hash again and boom, brain fogs, MASSIVE cramps and I felt so sick instantly so I thought maybe it was the hash all along. I would get FIVE second brain fogs after smoking hash and cramps lasting 5 to 6 hours way after the effects of the drug were out I could still feel the pain. That was back at the end of August so I thought it might have been the hash that damaged by whole body, I took a picture, I looked SO dang sick, my veins , my belly I looked PREGNANT and still do, pregnant from my intestine being SO INFLAMED, not from fat, remember. I lost weight.
So I quit the hash I threw it away swearing to never smoke that ever again but then I tried weed the next day and i felt good so I thought hash was the cause of all of this so I started to eat normal(grains,chocolate,etc) again and I felt good, no brain fogs and I had energy, I felt sorta normal. Only a day later my intestines would hurt again, not from the weed but from the food, So I went back to my strict diet of nuts,soup and fish and was getting back there while still smoking weed, but it gave me cramps back and I felt sick the same sickness that I had on hash only 5 times lesser yet bad enough to annoy me. Tells you how bad the hash would make me feel.
So fast forward 2 weeks of no weed and strict diet, I get better but then ANY time I try to eat anything else that is either a grain a meat substitute I feel bad, meat is instant and grain takes a few hours. Throughout that time I also found I couldn't have fish anymore, it was fine at first but it made me feel worse and worse, now I have again a bunch of frozen food I can't eat.
I also tried to eat soy in it's pure form (tofu) to see if I react and felt bad just like when I eat eggs just way worse so now I am cutting soy too.
I was doing very good 3 days ago until I try new grains amaranth, teff, quinoa and god fo I feel bad again. I also wonder if buckwheat wouldnt be bad too as it's the only (grain) that has yet to give me symptoms, I wasn't able to reintroduce any food, I can't have meat, or grain so I am stuck with veggies and nuts and wondering if I should cut buckwheat too.
So here I am not knowing what to eat anymore. I was doing very good yet I am intolerant to just about everything out there. I have to be on a meat-free/gluten-free/grain free diet/soy-free/dairy-free/ diet, so what's left? Celery and nuts?
I posting this to give you guys an update and ask if this is even possible? I tried to google all those intolerance and really is it possible to be intolerant to ALL meat and their substitute as well as ALL grains and soy, will I just be left eating veggies for the rest of my life?
What is your thought on buckwheat , do you think it should be okay, could it be the only grain like that I can have?
I have 3 weeks left before I can see a gastroenterologist for free but since the last 3 doctors I saw were all clueless I am expecting the same response from the specialist. Seems like those are the things you always gotta figure out on your own.
I could add a lot more info but it would be way too long thanks for your inputs.
Edit: To make this easier "Weed Free/Grain Free(Consume Buckwheat) Meat Free / Dairy Free"