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Member Since 09 Jul 2013
Offline Last Active Jun 18 2014 08:18 PM

Posts I've Made

In Topic: Clobetasol Propionate Cream, Usp, 0.05%

14 April 2014 - 01:13 PM

I was prescribed that as well, and had the same reaction as you. "I'm not using this stuff!!" Every fiber of my being said "NO".

In Topic: New To Everything, Need Insight

04 April 2014 - 03:26 PM

You don't sound melodramatic at all! I was terrified, too. It's ok to be scared. You don't know what's going on with your body yet. I second the food journal rec. I kept one for 9 months and it was invaluable. Focus on simple WHOLE foods. These are the most nutrient dense and that's what your body needs to heal.


And the people who don't believe you...well, they aren't living in your body. You do not owe them an explanation at all and don't let their doubt drown out your gut instincts. Many people are scared by the idea of dramatic dietary changes in addition to being ignorant of this issue. Once you start getting better, some of them will come around. (Some will never, but that is not your problem!) All of my tests were negative, but I KNEW that I had DH. I had doctors tell me that there was no way I had DH (their reasons were not sound, but I will not go into that here) I finally found a doctor that supported me and believed me. Don't be afraid to keep looking for a doctor if the first one or two don't seem like a fit.


Stay strong! And sleep as much as you need. Your body needs it.

In Topic: New To Everything, Need Insight

04 April 2014 - 10:38 AM

Hello and welcome!

Good for you for playing your own detective when it comes to your health! That will serve you well. Stay curious and be willing to try new things that might make you feel better. Unfortunately doctors don't always know best, especially when it comes to the spectrum of gluten intolerance. (That does nto mean you should not see one, just try to find one that is supportive of your findings about your body.)


It's really hard to say how long your symptoms will take to subside. We are all so different! But if you eat nutrient-dense whole foods, rest as needed and stay hydrated, then you will be giving your body what it needs to heal. The improvement you have already seen is a good sign! For now I would say the best thing is to focus on improving your digestion/healing your gut, to make sure you are accessing the nutrition in the foods you eat. And, like Cooties says above, stay gluten-free for at least 2 months before you even think about re-introducing gluten. But know that if you should want an official dx you will need to do a gluten challenge.


Pale or clay colored stools can be a sign of biliary insufficiency (you are not producing/releasing enough bile and therefore not digesting fats properly, as nvsmom said above). Are you now or have you been following a low fat diet? That can cause the bile to become thick and viscous from lack of use, when it is supposed to be thin and watery. You could try taking bile salts, or try a raw beet slaw as a condiment daily, especially with meals that have some fat. Grate a raw beet, a raw carrot and a green apple, toss with lemon juice and olive oil. (Beet is a great bile thinner)


As far as the heartburn, this is often a sign of insufficient stomach acid (contrary to popular belief that it is from too much HCl). You might try taking a little apple cider vinegar in warm water before meals. This will help get your gastric juices flowing and that sets the stage for proper digestion and optimal nutrient absorption. Some people use digestive enzymes, too. Make sure you chew your food very well and eat when you are relaxed, not stressed.


I hope this helps!

In Topic: The What's For Dinner Tonight Chat

01 April 2014 - 05:31 PM

Hi errbody! LTNS...Life is really busy these days! I hope you are all well.


Dinner tonight:

Mashed garlicky cauliflower

Sukuma Wiki (Kenyan Braised Collard Greens and Ground Beef) recipe here if you're interested: http://thedomesticma...beef/#more-4993


I've been drinking ACV in a little water before each meal and I gotta say, it really helps digestion. Anybody try it?

In Topic: I Think I Have Celiacs Disease And Dh Rash. Please Help!

01 April 2014 - 05:24 PM

Now that I think about it, my WORST flare happened after I went strictly gluten free. The last day I ate gluten was May 31, 2013. On about June 8th the rash spread for the first time to my tummy, and all the other areas were redder and angrier than ever before. Pure hell! About a month after that was when I got a new little spot on my inner thigh. Was it cc from my newly-gluten-free kitchen? Or was it just the time it took for the antibodies to make their presence known? I'll never know. This rash is the most mysterious, fascinating and infuriating thing I have ever encountered. A year does seem like a long time if you have been very strictly gluten-free. But if there is ANY bit of contamination, that may be all it takes for the rash to appear. (But sadly, is likely not enough to get you a positive on a blood test)


So, two things: You know gluten is bad for you. If you need to a dx then you will have to do a gluten challenge. Only you can decide if you are up for that. And, you need a new doctor, one who will be supportive of you and what you know to be true about your own body, dx or no.

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