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Member Since 16 Jul 2013
Offline Last Active Mar 28 2014 06:01 AM

Posts I've Made

In Topic: Blood Blisters In Mouth?

08 February 2014 - 07:39 PM

Wondering if you have ulcers, too?  I had ulcers and what looked like blood blisters in my mouth prior to diagnosis with celiac and it felt like I was eating crushed glass at mealtimes.  Soooo painful.  I started drinking a fizzy vitamin drink which was v. rich in B12 and C vitamins and they went.   Do you know what your B12 levels are like... might be related?  Mind you, I also had low blood iron and I gather that can cause them too.  Just a thought. 

I had canker sore type things before the blisters.  They would go away after 3 days or so.  I couldn't eat even 2 cherry tomatoes without getting them.  Never had b12 checked but yes to low iron.  My feretin levels were still below normal despite a prescription iron supplement I'd been on for three months. 

In Topic: Correlation Between Celiac Disease And Chronic Kidney Disease (Ckd)

08 February 2014 - 07:29 PM

Very interesting!! I was also curious if there was a connection.  My doctors have ruled out celiac so I'm guessing I have ncgs.  I'm pretty sure I've had this for at least the last 10 years or so.  Two years ago I found out at 26 weeks pregnant that my son had a multi cystic kidney.  There is no more blood flow to it and it is non functioning but his other one is great.  This last summer when I started getting really sick I was having sharp shooting back pains in the kidney area.  They were pretty random and didn't last very long.  But went away after going gluten free.  None of my blood work had ever indicated anything abnormal.

In Topic: I'm New, And It Seems Like Everyone Thinks I Am Crazy :(

06 August 2013 - 10:38 AM

I''m 28 and I feel like I'm crazy!  My blood work came back negative, (but I'm anemic now) and  my Doc recommended I do an upper G/I endoscopy.  So. that's scheduled for the 15th.  I have D everyday several times a day, it's not always urgent but it's never normal and lately always undigested! ( i know, sorry) but  WTH is that?  I was diagnosed with IBS 2 years ago.   I have been feeling worse since January.  Slowly but steadily worse and worse.  Depression, no period since aug. 2010 when i got pregnant, low testosterone low progesterone, night sweats so bad im soaking through the sheets,  tingling arms, hands and feet,  to the point it's waking me up cause it hurts so bad, weight gain, headaches,  joint pain in hips and knees, mouth ulcers, blister rash on my stomach, severe itchiness, mood swings,severly bloated to the point of looking 4 months pregnant, no stomach feeling(never hungry/never full) and im so tired.  lately after i eat gluten it feels like I've been drugged, that''s how tired I am. Like I have to take a 3 hour nap right now and then still sleep 8 hours that night.  I was currently diagnosed with c. diff (first time) and have 3 more days of metro.  What a horrible antibiotic!!!  Makes me so sick!  So now I , cry everyday and I'm excitedly counting down the days till my endoscopy/ last day of gluten. 

In Topic: No Stomach Feeling

06 August 2013 - 04:56 AM

Same thing here! I don't feel hungry! A friend of mine and I do a lil traveling and she always ask, are you hungry? I tell her I don't ever "feel hungry" I eat because I should not because I am hungry.

do you have celiacs??

In Topic: No Stomach Feeling

16 July 2013 - 08:38 AM

Not sure I'd call it a symptom...but I was like that for most of my life.  I think it was likely because when I ate -- I felt lethargic, nauseous and "overfull".




If you suspect Celiac Disease - get tested.  Do not remove gluten until the tests are complete as the Celiac Antibody Panel measures antibodies created in response to gluten ingested.


Let us know if you have more questions....and take a look at this thread - it contains great info:



yea I stupidly went off before and now the doctor says two weeks back on gluten till I get checked.  i was only gluten-free for 4 days and noticed a huge change.  i had an appetite for one, depression lifted, my joints didn't hurt.  im back on gluten but limiting it because im having worse/new symptoms now.  i had one beer a couple days ago and was almost drunk,  only got two hours of sleep for the night and horrible joint pain the next day. 

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