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Member Since 24 Jul 2013
Offline Last Active Feb 21 2014 12:20 AM

Topics I've Started

Questions About Aches And Pains

09 February 2014 - 07:28 AM

Wanted to ask about the aches and pains associated with celiac.  My aches and pains are getting worse and I am worried I may have something else in addition to it and Hashimoto's.  Have always had general aches and pains (I call them zingers...the sharp pin prick type of pain) that I have associated with my celiac, but it has really gotten much worse lately, instead of better:


It started with much greater stiffness and aches in my hips and feet in the mornings for a longer period of time.  Then, my right elbow started aching and it is visibly inflamed.  Both thumbs ache and are stiff at times (I know it sounds crazy).  Now, the right forearm aches and feels tight...sometimes down into my wrist and the top of my hand can feel that way as well.  I've even had sharp joint/tendon pain where my leg attaches in the front, as well as almost daily headaches and neck stiffness.  I have had some facial tightness on my right side as well, although I am used to having this off and on with a migraine headache...you know, where you feel one side of you head is in a vise grip with tingling and numbness.  I'm used to pain in the right TM joint at times too, but it has been almost constant of late to some degree.  I seem to be retaining water as well, particularly in my hands.  I also have some dizziness and gait problems at times.


Does this sound normal for celiac, or should I start checking on other possibilities? 

Levofloxacin For Acute Sinus/ear Infection

01 February 2014 - 09:21 AM

After being in a gluten free diet for 6months and not getting a sinus infection for any of that time, I was put on levofloxacin for a sinus infection that I had been fighting for about a month.  Caused immediate major muscle and joint pain, headache, exhaustion.  Has anyone else had a problem with it?  I only took two pills. 


My doc changed me to cefuroxime.  Symptoms not a bad, but still struggling daily with different headaches than for the sinus, jaw pain (I have a weak joint there from tumor removal in my parotid gland a few years back and jaw can be easily pulled out of alignment with any tension, causing a vise-like gripping and migraines in that joint...yuk!) My joints, particularly in the right elbow and base of both thumbs are so tight and achy.  My right forearm from the elbow toward the wrist feels tight and inflamed, even the top of my right hand at times.  The left side aches , but not to the extent of the right.  My feet are very stiff in morning...sometimes need to walk flat footed for a while.  Muscles in front part of calves feeling it too today...as is the joint where my right leg joins to my pubic area. 


The achiness was there to some degree before taking these meds, but has been awful since. I have really been trying hard and have not knowingly glutened myself.  Am wondering about rheumatoid arthritis.  Besides celiac disease, I also have hashimotos.  Other than that, have low vitamin D and glucose rising, but not at concerned level yet.  B12 is about mid range according to latest blood tests.  I am totally exhausted most of the time, even after sleeping...more than I was 3 months ago.


Any suggestions?

Meringue Listed On The Unsafe List...why?

01 February 2014 - 08:29 AM

One of my favorites from Trader Joes is the meringues, but I noticed meringues are listed on the unsafe gluten free list.  Does anyone know why?

When Does The Exhaustion Stop?

24 January 2014 - 06:19 PM

Diagnosed 6 months ago.  Glutened a few times since then.  When does the exhaustion stop?  I thought it was getting better, but seems I can't handle any kind of extra stress.  So frustrating!  I think my  boss thinks I'm a wimp.  Blood work shows I'm still low in vitamin D.  Sorry to complain.

6 Months...finally Feeling A Little Better

13 December 2013 - 06:55 AM

6 months from diagnosis and starting my gluten free diet. Since then, have also realized I need to stay away from oats and dairy as well. Have changed my makeup and hair products too. I am finally seeing a little difference. I have some energy a few days out of the week. Usually by the end of the work week I am exhausted, but have some energy through about Thursday morning. Have not had a flu bug yet this school year! Have been gluttened twice recently. Even after cooking gluten free ham, green bean casserole, corn bread stuffing muffins, cranberry jello, pecan pie, and pumpkin pie, I was gluttened by a salad dressing my friend made that she assured me was gluten free. I did not eat the salad, but had it on my plate before not feeling comfortable with it and took it off. The other time, it was a salad dressing too.

I seem to have a cycle to my reactions when I get gluttened. First, he initial stomach stuff: diahrrea, incredible gas, bloating (I can gain 7 to 8 pounds over night), for first day and a half or two. Then, baaad headache, muscle an joint pain and fogginess, irritability for another couple of days. Finally, extreme exhaustion...to the point that when it hits, I better be close to home or I feel like I might fold and sleep right where I am. Along with this, I have a depression that causes me to want to cry at the drop of a hat. I just want to curl up and wait for it to pass. I also noticed that this last time, I seemed to have sinus problems more.

Does anybody else have a sort of cycle like this that their reactions tend to follow? Is this about the number or days reactions last? (6 to 8 days...sometimes more for the achiness and fog?)

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