@Gemini - thanks. This makes a lot of sense!
There is only me and my boyfriend in the house and he's a chef who is VERY aware of CC and conscious of it both at home or if I (rarely) eat at the restaurant. It's baffling both of us and with my skin being so bad as well, I'm just generally worried. The doc didn't mention that, but then again I guess it's hard because they can only go on what you tell them. I got told I had an eating disorder for years because I lost so much weight - it wasn't until I have become in my late 20s that they don't put it down to that and tested me both biopsy and bloody test for celiac. I was told to go dairy free because the villi are apparently basically flat. However, I do still worry that this amount and frequency/urgency to go to the bathroom isn't normal. I'm not anxious about this condition, and doing the job I do I make sure to take a step back and evaluate, so it's not a nervous response, it is certainly very physical particularly as my food is for the most part undigested but there is an awful lot of water/mucus which shouldn't be there. I eat primarily protein and vegetables and fruit and stay away from all the processed gluten-free products. I've not yet entertained any grains because I think at this point they'll only add to the problem rather than lessen it. I also stopped drinking coffee and more acidic things etc and upping my water intake.
I take Vit B12 as a supplement as I've been told I'm very low on that, and also calcium as I'm not having any dairy at the moment (and was never really eating as much as necessary to prevent osteoporosis).