Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 26 Jan 2004
Offline Last Active Jan 26 2004 06:04 PM

Topics I've Started

Need Help Or Answers?

26 January 2004 - 12:31 PM

Hello, I have been reading through the boards with a lump in my throat on the verge of tears. it makes me happy to find so many people have found out what is wrong, and are improving, however I have had no such luck. In the past month three people have called me to diagnose me, and I have told them the same thing: I was tested years ago, and I don't have it!
But everything I read suggests i do. It has been seven years, after a road trip around the country, that I have been "ill". What started with "my stomach hurts" has turned into years of increasing agony, testing, and no relief. Years of prescribed meds have done nothing but turned me off to medication. My gallbladder has been removed, and i have been poked and prodded more times than i care to count. I have been told "IBS" and i REFUSE to accept that.
I started with small amounts of stomach discomfort, bloating, pains. Those pains became more frequent and turned into all-out episodes of excruciating pain almost daily. Then the diarrhea started. Every day for years now, I have been in the bathroom more than 5 times a day. Then started the food restrictions, some at the doctors orders (following diagnosis after diagnosis) and the medications. I took more and more pills, ate less and less, and went to the bathroom more and more. Then the first panic attack hit. It has been downhill ever since. For two years I have been “sick” I hate the thought of eating anything, I am anxious all the time, and everything hurts. I feel like I am super-sensitive to everything. I never had allergies, now I sniffle all the time. I never had pms, now every month gets worse and worse. I have trouble sleeping, I don’t exercise because of lack of energy, and I am all-around anxious, irritable, tired and foggy. I have been on every anxiety and depression medication to no avail. Four years ago my gallbladder was removed (which stopped the excruciating pain but not much else!) I had no gallstones, just a non-working gallbladder. I feel like my brain is always keyed-up but my body is slow. I have dark circles under my eyes, and I look like death. I am 27 years old. I feel like many doctors have thrown pills my way and misdiagnosed me due to being young and female, but perhaps I am in denial and feel the need to blame someone for not “fixing” me. Anyway I currently have no health insurance (I stopped working over a year ago because of all my symptoms) but all the tests in the past came back negative. (I am still unclear what these tests were) What I wonder is, If a doctor two years ago says he tested me for celiacs disease, is it possible it came back negative and it was wrong? Do my symptoms sound like anyone else? Could all this really be mental? I have my thyroid tested every year, and they tell me I have antibodies present but it is functioning normally, I have had allergy tests done and told I just have bad plumbing. I seem to be resistant to any medications, and so far on paper I am the picture of health. But in person I feel poisoned, I am wasting away (have lost 55 pounds in 4 years, and struggle not to lose anymore). I wonder if anyone has been tested negative before a positive result? I wonder why all of a sudden people are calling me after reading a magazine article and insist this is what is wrong. Also, with no health insurance, are there places to go that offer any kind of testing? My eating is so disturbed right now that I am in no position to “try” a gluten free diet without help. If anyone has a similar story, please let me know. Thank you.

Celiac.com Sponsors: