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Member Since 06 Aug 2013
Offline Last Active Dec 21 2014 07:31 PM

Posts I've Made

In Topic: Osteopenia A Year And A Half After gluten-free

21 December 2014 - 07:31 PM

Wow, thanks for the info! I am waiting for an endo appointment soon. I do eat pretty balanced, but could find snacks that are better through the day. Just this week, I ate a ham/cheese sandwich for breakfast, 2 hours later my sugar was at 30! The next day, just one piece of toast woith PB and flax seeds, no episode. I can wake up with low sugar, other days go hours without eating and be ok. Crazy!

I don't have a cycle due to Lo loestrin (birth control) I take for my endometrosis. I can't bear the pain without this pill. Could this be causing some bone issues? It is the lowest amount of estrogen in a bc pill.

Hoping for answers soon!

I'm glad to hear that you will be seeing an endocrinologist.

I'm unfamiliar with Lo loestrin or running pill packets together, as I'm assuming you're doing. However, given that birth control pills containing estrogen are sometimes used in the treatment of osteopenia/osteoporosis, I think it is unlikely to be impairing on your bone health. Estrogen helps maintain bone density, it's why the greatest amount of bone loss in women occurs just after menopause. Do give the endo your medication history though, some meds such as corticosteroids can reduce bone density.

What I would be concerned about is whether the pill is masking amenorrhea. A lot of doctors prescribe estrogen-containing BC pills for amenorrhea when it is accompanied by low estrogen. They do this for bone and reproductive health. However, if you're only getting your period because you are on the pill, and the reason why you aren't getting it is because of malnourishment, there is scant evidence that it will protect your bones. A lot of doctors do not know this. Food is the best medicine. Have you had your antibodies checked since diagnosis? An endoscopy to see if your villi have healed? If you aren't absorbing nutrients properly your bone health will continue to suffer.

It might be worthwhile tracking what you're eating and your symptoms/blood glucose levels. Waking up hypo might be connected with what you ate - or didn't eat - for dinner the night before. I do find that my blood glucose level is more erratic if I eat the wrong thing rather than just not eat at all. If I don't eat my sugar will gradually fall provided I don't engage in intense exercise. Eat the wrong thing however and it will plummet.

Good luck!

In Topic: Osteopenia A Year And A Half After gluten-free

15 December 2014 - 06:56 AM

I has mt vitamin levels checked this summer. My vit D was .08 above the normal line and calcium was on the normal line. So my then gyn said I didn't need any supplements. I have no plans of a follow up as of now. I guess I'll have to request it later.

I haven't found what's causing the hypo. I can have 2 episodes in one day, then not again for a few weeks. It's crazy.

Thank you for the info and advice! I'll be researching a good endo to follow up with.


I have reactive hypoglycmeia and osteopenia. 'Reactive' meaning that the hypos are caused by hyperglycemic episodes. In order not to have a hypo, I need to ensure I eat sufficient quantities of protein and/or fat with each meal and snack, not go to long without eating, not eat too much carbohydrate and especially simple carbohydrates at one time, and be very careful with fueling/refueling physical activity.

There's a specific test they do for this which involves giving you a high glycemic 'meal' then testing your blood glucose level numerous times over the course of a number of hours. If you have RH it will spike then plummet. It's not the same as the standard oral glucose tolerance test they do for type 2 diabetes.

There are other causes of hypoglycemia too (auto-immune stuff e.g. Addison's, endocrine tumours). Please get it checked out either way. Mine was diagnosed after I fainted and had three massive convulsions. I was at my physiotherapist (getting treatment for three stress fractures!) and she knew what to do, but it is terrifying to think that it could have happened while I was driving, etc.

Regarding the osteopenia, blood calcium tests can be very misleading. Calcium is used for more than just bones, for example it is also necessary for heart functioning. When you don't have enough circulating calcium in your blood, your body DRAWS calcium from your bones in order to keep your blood calcium at the right level. Blood calcium levels are also greatly influenced by what you have eaten just recently, rather than your a longer-term intake. In sum, your blood test doesn't really tell you if you are getting enough calcium in your diet.

I suggest tracking your intake for a while, to get a better idea whether you are meeting your RDI, then make up the balance with a quality calcium supplement. Mine provides 600mg elemental calcium, 1000iu vitamin d and a bunch of vitamins and minerals that assist with bone formation etc. I also aim for an extra serve of calcium above the RDI since with the osteopenia and four stress fractures in the past year I figure the extra will help with bone healing.

Finally, I assume by your name that you're a female? Estrogen is vital for bone health. If you have amenhorrea you will want treat the cause of it -- whether it is 'just' due to celiac or die to other health issues too.

Seeing an endocrinologist is an excellent idea. They can diagnose the cause of your hypoglycemic episodes and further investigate whether something other than celiac may be contributing to your osteopenia -- endos are often the people who diagnose osteopenia / osteoporosis in the first place. It is possible that your hypoglycemia and osteopenia are connected.

In Topic: Overwhelmed By My Intolerances

01 December 2014 - 02:39 PM

Holy batman that was an essay!

In Topic: Overwhelmed By My Intolerances

01 December 2014 - 02:39 PM

You can make porridge or Bircher muesli with quinoa (whole or flaked), millet, buckwheat, amaranth, polenta or a combination of these. You can have certified gluten free oats too if they are permitted on a gluten free diet where you live and you don't have problems with them. Top with sautéed mushrooms for a savory breakfast or dried or fresh or stewed fruits for sweet. Add some chopped nuts other than almonds of course, or stir through a nut or seed butter - maybe peanut or cashew or sunflower seed. Top with a sprinkling of psyllium husk for added fibre.

You can make your porridge or Bircher muesli with water or with an alternate milk such as hazelnut, quinoa or rice milk - make sure these are also gluten free and not fortified with chickpeas (rice milk sometimes contains chickpeas to boost the protein content). Look for vegan Bircher / overnight oats recipes since they will also be dairy free.

Buy or make your own gluten free granola/cereal with approved grains and seeds, dried fruits and approved nuts. Consider puffed corn, buckwheat, millet, rice, amaranth or quinoa, or rice flakes or rice bran.

Keep your eyes open for muesli/granola bars targeted to kids with multiple food allergies since a lot of adult ones also contain soy. You can also make your own muesli bars with approved grains/seeds/nuts and dried fruits. Bind them with a nut butter and sugar or sugar alternative such as golden, rice malt or carob syrup or honey, smashed banana or soaked and pulverised dates. Or make your own protein bars with brown rice protein or pea protein. Making your own bars is quicker and easier than you might think.

You can make sago or chia pudding made with water or an approved milk. Sago usually contains coconut milk but I see no reason why you can't just substitute an alternate milk!

Make a protein shake with fresh or frozen fruit (bananas make excellent thickeners), rice or pea protein, and water or an approved milk substitute. This will have more substance than the juices you've been having and see you energised until your next meal.

You can have yeast- and gluten-free toast or muffins or bagels, etc. topped with avocado or hot beans or cold smashed beans - there are many types of beans other than the ones to which you are intolerant. Or keep it even simpler with an approved nut butter or sunflower seed butter or jam or marmalade.

You can have dinner leftovers for breakfast - I particularly love mixed mushroom risotto for breakfast! Gluten free corn couscous also works well, you can make a breakfast variant too - it's a traditional meal!

Consider looking for gluten free vegan recipes recipe on the Internet. While you will have to filter out those which contain some of the other foods you are intolerant to, they are a good source of inspiration. The Oh She Glows blog has some great recipes and the author is very friendly and helps out with substitutions for those who need them.

There is a world of options open to you! Yes, you may need to do some cooking, but most of it is batch cooking and will set you up for a week or longer. Muesli/protein bars and cooked grains freeze well, cereal will last a long time too when stored well, Bircher muesli (or search for 'overnight oats' for US recipes) can be made in batches that will last a week.

In Topic: Australians And New Zealanders Hellooooooo :)

24 November 2014 - 07:39 PM

Does anyone know if there are any brands/varieties of ice cream other than Bulla available from supermarkets that are gluten free?

Stacks of them declare the presence of wheat where the only form of wheat in the ingredients list is wheat glucose syrup... I'm guessing there's no way of knowing whether it may be cross-contaminated without contacting the manufacturer?