Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Jrg

Member Since 15 Aug 2013
Offline Last Active Aug 27 2013 08:50 AM
-----

Topics I've Started

What Would You Do?

19 August 2013 - 04:25 PM

I have an endoscopy scheduled for this Wednesday but was just told that my insurance won't cover it. It's going to set us back probably more than $700 in the end. I'm so completely nervous that I'll spend the money only to get negative biopsy results, which would just frustrate me even more. I already tested positive on the deamiated (sp) gliadin iGa blood test, negative on the others. So I know there's a chance the biopsy could go either way. My question is, what would you do? Just assume you have celiacs, go gluten free & cancel the test, or fork over the money just to know for sure?

Second Guessing Diagnosis

15 August 2013 - 06:15 AM

A week ago my Dr called me in for my blood work results. I was severely low on vitamin D, iron & b12. Plus I had a celiacs blood panel done and I came back positive for only 1 of the 4 tests (the deamiated gliadin iga). So off I went to the specialist to schedule my endoscopy. (Also I should note that I have hypothyroidism and have been dealing with that for almost 20 yrs, I'm 26).


Anyways, my normal Dr had me feeling quite confident that I had celiacs, I had all the deficiencies, the other autoimmune disease, most of the physical symptoms, but my specialist Dr left me second guessing if I really do have it just because only 1 of my blood tests came back positive. He seemed to think that unless the ttg tests came back positive, then it probably was a lab error, getting my one positive.


I'm doing the endoscopy in a week & I know that will make it official either way, but I'm feeling pretty defeated. I honestly was hoping for an end all "cure" (aka just go gluten free, etc) to my situation, but now I'm convinced my biopsy will come back negative. Anybody else go through this?