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Member Since 15 Aug 2013
Offline Last Active Private

Posts I've Made

In Topic: Crazy Allergies

15 August 2013 - 12:36 PM

I have 100 items to avoid based on the ALCAT test and it varies every time I take it (which is why my dr. diagnosed me with Leaky Gut and then lead to my Celiac Dx).  I try to avoid everything 100% so that my gut can heal.  However, trying to avoid that many fruits, veggies, meats, herbs, etc is a nightmare (I carry my list on my iPhone). 


The rotation diet is supposed to work with food sensitivities but with all my other gut issues, I haven't tried it yet. 


From what I was told, it's best to not aggravate your intestine while it's healing.  I eat 100% (that I have control over) clean and still have tummy symptoms so I know I'm not healed yet.  I feel your pain, for sure!

In Topic: Blood Test

15 August 2013 - 12:16 PM

Have you been tested for other food allergies/sensitivities?

In Topic: 90% Sure I Have Celiac Disease, Have Not Gotten Tested, Advice Please

15 August 2013 - 12:07 PM

Karen, that is why I am debating on not doing the procedure at this time.  I have been avoiding everything for over 4 months now and hope that I am on my way to healing my gut.  Insurance covers it but it's a day off of work and a hassle for maybe nothing.  The GI dr. already told me it's safe to assume that I have Celiac based on my blood work and symptoms. 

In Topic: Could My Terrible Beer Hangovers Indicate A Wheat/gluten Allergy?

15 August 2013 - 10:46 AM

You could have written my story!  My 3-day hangovers from drinking 4 beers and almost trips to the ER from it finally got me into the dr and I got tested for food allergies.  Fast forward 2 years later and here I am in a Celiac forum.  You may not have Celiac but you could have a gluten intolerance or sensitivity or maybe it's the hops in the beer.  But, something is definitely wonky!  What I have learned is just because you are asymptomatic, doesn't mean you aren't damaging your intestines.  If you are covered, get it checked out.  Glad to hear you can drink something, I gave it all up over a year ago (I don't trust gluten-free products or alcohol).  I'm the permanent DD...

In Topic: 90% Sure I Have Celiac Disease, Have Not Gotten Tested, Advice Please

15 August 2013 - 10:39 AM

1desperateladysaved could have written my story...  Almost exactly what I went/am going through!  I have had stomach issues, eczema, etc my entire life and all the doctors claimed I had IBS.  I was a slave to Immodium  and knowing where the nearest bathroom was.  I got tested for food allergies 2 years ago and have a TON of intolerances/sensitivities (sugar, dairy, wheat, hops, fruits, veggies, spices, etc) and I was floored.  I cut them all out cold turkey and immediately felt better, lost 8 lbs in 10 days and the stomach issues almost disappeared.  I fell off the wagon and started eating some of those things again, in moderation, and started to feel sick again.  I got retested a month ago and again, I was floored with the results.  I was intolerant/sensitive to all the new things I was eating (I had decided to go sugar/dairy/egg/gluten/alcohol/pop/processed food-free two months prior) and that's when the dr. said he believed I had leaky gut syndrome.  I am still eating very clean and still feel like crap, but not nearly as bad as before.  I went to a GI dr. 2 weeks ago and took the genetic blood test for Celiac and tested positive for both genes and am going to schedule an Endoscopy in 2 weeks.  The GI dr. said that I have Celiac based on my test results and my other symptoms but wants to take a biopsy to see how badly damaged my intestine is.  I have had severe anemia, eczema, tummy issues, vitamin deficiencies, etc my entire life and no one could ever figure it out.  I gave up... Until recently.  Because I am gluten-free, I cannot be tested for the Celiac panel but I refuse to eat gluten for 8 weeks to confirm what I and two other doctors already know.

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