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Member Since 20 Aug 2013
Offline Last Active Aug 31 2013 03:48 PM

Posts I've Made

In Topic: Seeing The Gi Tomorrow

30 August 2013 - 04:27 AM

Thanks Nicole.  That is the one thing I failed to ask yesterday, the number of samples he would take.  I will find out before having the scope. 

In Topic: Seeing The Gi Tomorrow

29 August 2013 - 11:10 AM

I've already made up my mind to eliminate gluten regardless of a diagnosis and I agree with the new doctor.  I was very disappointed with him.  I completely understand that celiac may not be my issue but for him to disregard it so quickly was very aggravating.  I think I will stick with having the upper and lower GI Tuesday, couldn't hurt since I've never had either of them. 

In Topic: Seeing The Gi Tomorrow

29 August 2013 - 10:14 AM

Sorry for that rant and Sorry this is long.


A little disappointed in my GI doctor and who knows maybe he's right with everything he said but it just didn’t sound right and then again I’m no expert. 


We discussed all my symptoms and he reviewed my blood tests results.  He explained that just because I have the genes does not mean I have celiac disease, which I already knew.  Then, he said you must have 3 things to get diagnosed with celiac disease: 1) symptoms, 2) positive blood tests, and 3) positive biopsy.  He said since I didn't have a positive blood test, then he doesn't think celiac is my issue and started discussing fibromyalgia and crohn’s disease.  Kept pushing those even when I explained that when I ate low carb, I had NO ISSUES… NONE.  Now correct me if I’m wrong because I know nothing about crohns disease or fibromyalgia but would eliminating carbs correct crohn’s or fibromyalgia? 


Fibromyalgia - really??  I don’t think so.  My back hurts because I have bulging discs and degenerative disc disease and my knees hurts because I have too much weight on them and my patella’s sit too high (both my children have the same issue and must wear braces for sports).  He wouldn’t listen to those reasons.


Crohn’s Disease – not sure.  After looking it up in the internet, I have some of the symptoms but not many.  Mainly abdominal pain and cramping.


He has set me up with an upper and lower GI and told me if both of those didn't find anything then it's probably just IBS.  Told me I was probably lactose intolerant and how to do a self test on that.  We discussed the possibility of a vitamin D deficiency and told he to have it checked the next time I had blood tests done.  I asked what other vitamins I should check and he said none.  Vitamin D was the one he thought I was low on.


Am I crazy?  Should I be concerned or not?  I feel like because my blood tests were negative, he has already made up his mind that I don’t have celiac even if the biopsy come back positive.

In Topic: Reintroduced Gluten For Testing... Horrible

29 August 2013 - 04:02 AM

I am currently doing a gluten challenge and going through all the tests.  I didn't make it long, 2 weeks, before giving up and having the blood tests.  They were negative but the genetic test came back positive.  I go this morning to see a GI doctor.  Really wish now I would have waited longer but after several late night episodes, I became very frustrated and aggravated with all the issues.  I have not stopped eating gluten and like the previous poster, my symptoms vary from day to day.  The 2 symptoms consistent daily are the tiredness and brain fog.  A diagnosis isn't important to everyone but is to me.  I'm afraid if I don't have the diagnosis, I will not stick with it longer term or make it a permanent lifestyle change.


Good luck Anya and hope you feel better soon!!

In Topic: Seeing The Gi Tomorrow

28 August 2013 - 01:57 PM

Good Luck Jamie!


Thanks Nicole!


I had my son's blood tests done today.  Should knows those results in 2 weeks.

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