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Member Since 22 Aug 2013
Offline Last Active Oct 15 2013 01:34 PM

Topics I've Started


25 August 2013 - 03:21 AM

Hello everyone, 


Sorry - I feel like I may ask a lot of questions over the next few weeks as I settle into this. I have not been officially diagnosed with celiac (waiting on blood results) but have been recommended to begin a gluten free diet by my doctor to see how I feel when not on gluten as he suspects that even if the blood comes back negative my problems might be caused by gluten. 


Anyway, I am aware that it is possible I am deficient in vitamins (it certainly feels as though I don't digest food properly and have no energy from it as I am always either suffering from C or the big D!), though my vitamin D levels came back okay. However, I also have an intolerance to foods that contain copper (soy, nuts, pork, milk and dark chocolate, avacado etc.) and was recommended by a nutritionist that I supplement vitamin C, B vitamins and manganese a few years back (sadly I couldn't afford any more appointments after that first one and she was not open to answering questions over the phone!). I tried these vitamins at the time and discovered I ended up with D almost straight away each time and that they also made me feel nauseas. I tried them again recently and found the same effects. 


I just wanted to check if others had experienced this? Is it likely that because my body can't absorb nutrients just now then vitamins will just come right through me (so to speak!)? 


Any advice would be helpful. I understand any advice given here is not medical - I am just trying my hardest to get better but I don't want to take anything that will make me worse either so it would be nice to hear others experience. My doctor is not the most knowledgable about vitamins etc. and I can't afford to see a nutritionist right now! 



Edit: i'd also be interested to know how many people had to go onto a whole food diet to feel better... I have a partner that loves to bake (and has bought gluten free flours for that purpose!) and I have a tendency to eat some chocolate (as in maybe half a bag of white chocolate buttons) and a diet soda almost every day... - I was just curious if those things are likely to slow down any recovery I see or if all I should change to begin with first of all is gluten and then take it from there? 


Thanks again! 

Literally Too Tired To Wait Any Longer - Help?

22 August 2013 - 09:32 AM

Hello everyone, 


I'm new here and have been reading through the forums for hours now, it is a pleasure to see so many knowledgable people in one place and to feel as though this might not all just be "in my head" as so many people have told me. 


I don't have a celiac diagnosis yet but I strongly suspect that I have an issue with gluten as this is the only thing I have found that fits all of the many symptoms that I have: 


- Constant stomach ache, often particularly bad after eating 

- Nausea (to the extent that by dinner time I sometimes can't face putting food in my body) 

- An almost constant dull headache (that sometimes progresses to a migraine) 

- Brain fog, brain fog, brain fog. This one is the worst for me - I feel like I can't think at all, I can't order my thoughts or follow instructions/remember information like I used to

- Constant exhaustion (I have started having to sleep for up to 2 hours during the day just to get through until I can go back to bed, even when I have slept for a solid 8 hours the night before) 

- Absolutely NO energy (I can't make it through a gym class anymore) 

- Constipation for three weeks at a time, followed by diahorrea, and then back to no bowel movements 

- Sinus infections

- Puffy face

- Red blotchy cheeks and dry, spotty skin

- Often swollen fingers with a rash (though this one comes and goes?)

- Inability to regulate body temperature (when it's a bit warm I am sweating and when it is a bit cold I am shivering and absolutely freezing)

- Easily out of breath (even after walking up the stairs which is unusual for me as I used to cycle daily and am a relatively fit person up until now) 

- Achey achey body - especially my lower back and my legs 

- Dizziness and fainting on two recent occasions


Does that sound familiar to people here? 


These symptoms have been mild for a long time now but about six weeks ago I had an inner ear infection and fainted. Since then they have got worse with each passing day. 


I got blood tests done three days ago which could take up to four weeks (!) to come back (i'm in the UK)... however, I'm nervous as I know blood work can be inconclusive/give false negatives and I feel like I can't go on like this much longer. I just can't take feeling this bad anymore. So my question is - is it worth waiting on the blood results before I change my diet or should I just take the gluten free plunge now and see if it makes a difference? I'm wary of starting because I believe they need to do a biopsy of the small intestine to give a diagnosis if the blood work is positive and I know it's necessary to have been eating gluten before that... however, that could be 8 weeks or more away from now and that is only if I get a diagnosis from the blood work!


Feeling quite confused about what best to do. Any advice would be so greatly appreciated as I feel quite alone in this just now. (I have a family who are quick to write everything i describe off to "stress" even though I know I'm not feeling stressed or unhappy at the moment at all - everything is good right now about from my health!). 


Thanks, Sarah x

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