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moosemalibu

Member Since 24 Aug 2013
Offline Last Active Yesterday, 07:35 AM
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#918775 Pityrosporum Folliculitis/acne

Posted by moosemalibu on 02 June 2014 - 09:36 AM

Well I am happy to say that after 3 months of weekly ketoconazole my micropapules are all gone! I still get some of the deeper cystic acne but overall I'm very pleased with the treatment. I have started a monthly facial regime with a great esthetician in town so with her care and guidance I am hoping to have some clear skin!


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#914802 The What's For Dinner Tonight Chat

Posted by moosemalibu on 02 May 2014 - 07:24 AM

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I don't have any grand plans for dinner.. chicken, broccoli and potatoes. May swap out broccoli for asparagus. Who knows! TGIF!


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#914271 The What's For Dinner Tonight Chat

Posted by moosemalibu on 28 April 2014 - 07:24 AM

Saturday evening I had a small dinner party. I decided I was going to make Indian food. I have only ever made 1 curry in my life. So it was a bit ambitious. My menu was: gluten free naan, chicken tikka masala, tofu tikka masala (vegetarian guest), basmati rice, and Hari's suicide potatoes (recipe from celiac.com). The naan was FABULOUS! I used the new flour blend my friend gave me again (AKulinary Innovations AP flour) and I swear every recipe I have tried it in thus far (3 now) it's been great! I don't think I remembered to take pictures of my naan. But it was so good. I will be making it again. The tikka masala recipe I got from Bon Appetit and it's a keeper too.

 

I made these banana-walnut muffins last night: http://betterbatter....ana-nut-muffins

 

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#913985 The What's For Dinner Tonight Chat

Posted by moosemalibu on 25 April 2014 - 01:37 PM

Donut Party at Jamie's - See you there ;)

 

Edited to add -- new donut pan is winging it's way here -- I'll blame J when I get :wacko: from hubs while making this face :P

 

Complaints about crowding cabinet space will be silenced by DONUTS :wub:

hahaha!! I love it! I am going to be making donuts for a good while.. I am obsessed! Bake time of 10 minutes??!! The mix to mouth time is just so short! LOVE!


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#913940 The What's For Dinner Tonight Chat

Posted by moosemalibu on 25 April 2014 - 09:58 AM

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The donuts were made using the recipe from this website: http://freeeatsfood....salted-almonds/

The glaze was a honey/powdered sugar glaze and then I added a tbsp of cocoa powder to get the chocolate glaze.  The flour I used in the recipe was a new flour I have never used before.. it was given to me by my best friend after she went to Bend, OR. Apparently her friend's roommate started a gluten-free flour company called AKulinary Innovations. It worked really well. It had xanthan gum already in it so I was kinda worried. But it worked out!


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#913923 Celiac, Feeling Great -- Thinking Of Trying Gluten -- Any Positive Experience?

Posted by moosemalibu on 25 April 2014 - 08:36 AM

I am new on this forum, but not new to participating in medical forums, however. This was my first post and I want to react to the TONE in some responses I got.

I want thank those who showed concern and say how much I appriciate their good will.

But, in a few posts, whose authors are identified as MODERATORS, tone is quite agressive and their agression is entirely unawarented.

 

I don't want to talk about my feelings, however. My point is about the nature of the celiac condition. As other immune conditions, it comes in a wide variety.

 

What is true for some celiacs is not true for others. And identifying subgroup to which your version belongs is very important, I'd say paramount. For one, it does matter what other auto-immune conditions you may have.

 

It seem that few on this forum make such distinction. Medicine, U of Chicago for instance, too, lumps all celiacs together. That is no longer good science.

 

Hi pr40 - I'm sorry you feel like the moderators are giving you a bad tone. However, the consensus of the responses you have had in regards to your question is: if you have Celiac's disease the management is exclusively through a gluten-free diet. One should not cheat on the diet or they risk recurrence of symptoms as well as higher risk factors for other associated diseases (i.e. GI lymphoma, type 1 diabetes, others). My suggestion to you is to look up what cheating on your gluten-free diet does. I don't think there is or ever will be anytime soon,a special sub group of Celiac's disease that allows gluten to stay in their diet. Good luck to you.


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#913464 The What's For Dinner Tonight Chat

Posted by moosemalibu on 22 April 2014 - 07:50 AM

 

:lol:  :lol:  :lol:

 

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The "Peep" Cake ;)

 

 

This cake is magnificent!! Do you have a picture of it sliced?! I want to see the beautiful layers! Great job on decorating! So festive!


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#913064 Labcorp Stool Test Results And Questions

Posted by moosemalibu on 18 April 2014 - 07:32 AM

yesterday was my follow-up GI appointment, and it went really well!  He reviewed that my MRIs and small bowel series were all normal, and then came the capsule.  He said he didn't see any blunting, but he did find an ulcer in the ileum and he said there could have been more but it was all dependent on how the capsule moved.  

 

When it comes to the pancreatic insufficiency diagnosis, I know that the MRIs would have shown Crohn's, so that was ruled out and I never have an urgent need to use the restroom anyway, pancreatitis was ruled out through the MRIs, everything else was ruled out except celiac, so I finally got doctor diagnosed with celiac disease.  Out of all the causes for pancreatic insufficiency, celiac is the best one since it means my system just needs a jump start!  I'm picking up my prescription for Creon later today, and I'm hoping this will be the final step to say goodbye bloating and stool sticking to the toilet!!  I'm supposed to be following up in 3-6 months to be retested for fat malabsorption, fecal elastase and the celiac antibodies.  

 

I'm so glad I found this site because if I would have listened to my GI last year when he seemed to think that positive DGP IgG test wasn't a big deal, I would still be eating gluten and probably feeling much worse!  Now he knows differently, and I did say at the end of my appointment yesterday how appreciative and thankful I am that he listens to what I have to say and takes it into consideration.  I realize that is a rarity for doctors, and I'm extremely grateful!

 

Happy Easter all, and thank you  :)

WOOO!! Great news!! Happy Easter. :D


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#910619 Possible Celiac?

Posted by moosemalibu on 27 March 2014 - 03:48 PM

I have some anxiety over this. I think it is most likely that I have Celiac but my mother had a liver failure due to Hep C and alcohol, but part of me can't help but think maybe she had PBC or something like that and it just wasn't diagnosed. It's probably just me being anxious I suppose.

 

There is no use worrying over PBC yet. Hep C and alcohol are big hits for liver damage... those alone can cause liver failure. I just encourage you to wait on the extensive tests that were ordered and try not to stress over it. The liver also has the capability to heal.. so keep that in mind.


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#910542 3 Years And Counting!

Posted by moosemalibu on 27 March 2014 - 08:19 AM

Today marks my 3 years since diagnosis! It's been quite the adventure, but I can now say that I am healed and my health has been awesome! I couldn't ask for better a doc who has guided me through it all. Hope you all have a great day!! :)

 

 

This is wonderful to hear!

 

Congratulations :)

 

Edited to add -- lol -- just noticed - knew it was coming, but completely forgot -- today makes 5 years gluten-free for me -- wow time flies!

 

Congrats to you both!! So wonderful to read about success stories! I am 6 months with normal titers and added dairy in successfully!


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#909849 Please Help!

Posted by moosemalibu on 22 March 2014 - 11:12 AM

Hi and welcome!  I am unsure if your mom has had the celiac panel or not? Are you just waiting on the results? She definitely could have her symptoms explained by Celiac's Disease. There are over 300 symptoms. I hope you get your answer soon and that the blood tests that were ordered were very specific for Celiac's Disease. Do you happen to know what tests were ordered specifically?


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#908290 Post Diagnosis Healing

Posted by moosemalibu on 07 March 2014 - 07:17 PM

I was diagnosed in Oct 2013 with biopsy but Aug 2013 was the blood test. I was gluten free after the August test then had to do a gluten challenge. 

 

I had the same issues that you had in regards to not being able to eat dairy, consume caffeine, or eat raw veggies. I think I really saw a turning point this month which is month 6 for me. Hoping you start to see some improvement, too. 


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#908288 The What's For Dinner Tonight Chat

Posted by moosemalibu on 07 March 2014 - 07:03 PM

He loved it!! I had never used the KA mix before.. it's pretty dense! But it came out beautifully! I'll try to post a picture of it.REvVbIczdhQPwrFUNgNVYSaXMIEWWarfIIBu-610


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#906681 More Of A Rant About Uninformed People

Posted by moosemalibu on 20 February 2014 - 01:23 PM

I try not to get super scientific and try to be respectful of the alternative medicine types but some information is just plain wrong. What really gets me is that in the same breathe so to speak, she says soy is poisonous yet grows hundreds of acres of crops to sell it. Say what? If you grew 'poison' to sell... what kind of morals do you have? I don't agree that soy is poison.. but I found that rather ironic that she uses that as her testimonial to her claims.


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#905725 Weak Positive, Negative Biopsy

Posted by moosemalibu on 11 February 2014 - 10:29 AM

Sorry - it doesn't appear that my whole post posted. Maybe cause I'm new.

Dgp iga 14 (>15)
Dgp igg 55* (>15)
Ttg iga 22* (>15)
Ttg igg 11 (>15)
Endomysial not detected

My GP was of the opinion that it was very likely, with my family history and predisposition that I had coeliacs. She said you'll goo get your biopsy, go gluten free and hopefully feel better.

I went to the GI and he said I only had a weak positive, he didn't think my constipation and bloating was coeliac and because I was not privately insured, if I wanted the biopsy I would need to pay upfront. It was at this point that I asked whether the biopsy was warranted at this time - should we wait and see what my numbers do. He said no, with my factors I should have the test. It would tell me once and for all, it's definitive and gold standard etc.

Long story short, it was negative - I received a phone call to advise. Gluten is not he cause for my symptoms. And whilst he isn't abandoning my case - case closed. I don't have coeliac.

I'm frustrated, I'm unwell, I'm bloated, and out of pocket $1200. I guess what I want to know is what you think I should do - what do you think my numbers mean. We are planning on starting a family in the next 12 months - which my GI said I would need yo put off if I had coeliac. Sorry - I did post all this in the first post but it didn't come up. Hope this makes a bit more sense.

 

 

How many biopsies did he take? Sometimes the damage to the villi can be patchy and if only one or two biopsies are taken then it can miss the damage. Were you eating gluten prior to your biopsy? If you were gluten free that can also affect your results.

 

If you have a family history,have multiple deficiencies and symptoms -- I think now would be the time to cut gluten from your diet and see how you do. Sometimes a formal missed diagnosis is not your fault - sometimes the doctors fail you. But if you are strapped for cash and running out of options I would just try the gluten free diet and see if your symptoms and blood values improve.


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