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whatzie

Member Since 27 Aug 2013
Offline Last Active Sep 13 2013 01:44 PM
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Posts I've Made

In Topic: Do I Really Have Celiac?

30 August 2013 - 05:36 AM

I would say you've got it as well whatzie.  it's great that your doctor is diagnosing you on biopsy and gene tests alone!  If you haven't been eating a lot of gluten then the DGP tests might be worthless.  The DGP IgG is the most specific test for celiac with a 99-100% specificity rating, and the DGP IgA is also really good.  As much as doctors like to give the ttg tests, they don't catch everyone.  If you want to get it done great as there is a chance you might get a positive, but if not, you've already got your diagnosis.

 

Here are some links:

http://www.curecelia...eturn-to-normal

http://www.curecelia...dgp-be-positive

http://www.curecelia...-celiac-disease

 

What makes the doctors think you have lupus or systematic inflammatory disease?  Did they suggest that you try the gluten-free diet first to see if symptoms begin to resolve, and then revisit another diagnosis if they don't?

I have been going through hell since April. Had a million blood tests done, ANA negative, RA negative, elevated complement c4, elevated sed rate, elevated crp. extremely low b12. other tests are off also, i just can't remember them all. the last time i went to the rheumotologist he stated he believes it is one of the 2 and stated that sometimes it takes awhile to have any concrete to go on. the gi doc tends to agree with him and thats when he also had me do the blood work for celiac after going over the biopsies with me. i go back to the gi on weds to go over the celiac stuff.


In Topic: Do I Really Have Celiac?

30 August 2013 - 05:24 AM

Your ttG IgG looks borderline, right? And with a positive biopsi and genetic test, it seems pretty clare that you have celiac. I asume you had some reasons for suspecting celiac in the first place, as you had the biopsi done?

Yes the TTG IgG is borderline. When the doctor ordered the colonoscopy and endoscopy we had not discussed Celiac's at all, I had never even heard of it. After the procedure he told me he had done several biopsies and then when i went for my follow-up that is when he told me the biopsies came back showing Celiac's.


In Topic: Do I Really Have Celiac?

29 August 2013 - 07:19 PM

Im sorry I meant dgp tests

In Topic: Do I Really Have Celiac?

29 August 2013 - 05:00 PM

Maybe I read them wrong. I think ema was negative and the iga number was 224. No results showing for the gbd tests so maybe those were not run. I will ask the doctor when I go. Their office is stating they believe my testd were negative because I wasnt eating enough gluten.

Are you all stating that the symptoms dna gene test and biopsy results are not enough for a celiacs disease? Because the doctor is giving the diagnosis of celiacs disease. My gi doctor and rheumotologist believe I also have another autoimmune disorder. Maybe lupus or systematic inflammatory disease.

I also have been getting dizzy and it feels like I am in a whirlwind. It makes me so sick I throw up. This happen to anyone?

In Topic: Do I Really Have Celiac?

28 August 2013 - 06:34 PM

Do I just ask my doctor to run those tests?