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Member Since 13 Sep 2013
Offline Last Active Yesterday, 11:56 AM

Posts I've Made

In Topic: Digestive Enzymes

01 May 2015 - 08:50 PM

I use these, they are the CVS brand and gluten-free http://www.cvs.com/s...id?skuId=939020

They go on sale buy one get one half off, plus coupons, etc.

In Topic: Other Food Intolerances Returning With Gluten Challenge?

28 April 2015 - 03:36 PM

Damage to the villi can absolutely cause a domino effect.  The most notable and prevalent is lactose intolerance, because you need healthy villi to properly digest lactose.  Other things can fall into that category too, especially if you were already prone to issues with certain foods in your previous state.  Even more reason to be 100% strictly gluten-free to heal up once you are done with the gluten challenge.  Hopefully the damage won't be as bad this time and it won't take as long for the onion issue to go away, but you just won't know until it happens.

In Topic: Folic Acid Level Low

27 April 2015 - 10:34 PM

Folic acid levels are something that change with time, and are not detected by a genetic test.  (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level.  A psychologist is not a medical doctor and definitely not a Celiac specialist so I am glad they gave you the "I don't know" answer instead of making something up when you asked if it was related to your Celiac disease.  A low folic acid level, as well as low levels of other vitamins, can be related to malabsorption from Celiac disease.  I recommend you make an appointment with a GI doctor to regularly get follow up testing to ensure you don't have any long-undetected deficiencies, and have that medical doctor who can advise you on safe supplementation.  Most gluten-free foods are not fortified, so the University of Chicago Celiac Center recommends taking a multivitamin.  

In Topic: Who Is Currently Taking Synthroid?

27 April 2015 - 06:11 PM

I also take Mylan levothyroxine, which is a generic.  A lot of doctors will have patients take brand name to prevent them from moving from one generic to another.  With levothyroxine, the doses are so tiny, that a slight difference between brands can cause blood levels to fluctuate.  So when you take one generic brand, stick with it.  If you change brands, go get your thyroid levels checked 6 weeks later.


As for the doctor insisting you take brand name synthroid despite it not being verifiably gluten-free.. just firmly tell him that you cannot take that medicine as it may contain gluten, and have him write you a script that allows generic substitution.  Then find one manufacturer and stick with it.

In Topic: Are There Less Expensive Ways Of Getting Tested?

27 April 2015 - 06:04 PM

There are no scientifically valid tests (aside from the genetic test) that are accurate when one is not consuming gluten.  Getting something like that is a top priority for Celiac researchers but they are not there yet.  While I understand it is easy to assume something is not affordable, why don't you contact your lab of choice and ask about pricing before you assume as such?  Any money you spend on a diagnosis is an investment in your health for the rest of your life and well worth it in my opinion.  Also, unless your insurance plan has a stacked deductible, you are not going to be paying 100% out of pocket for lab costs.  You can get information on what your portion would be from your insurance company so you can estimate costs and save up to get them done if that is needed.