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LauraTX

Member Since 13 Sep 2013
Offline Last Active Today, 12:30 AM
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Posts I've Made

In Topic: The What's For Dinner Tonight Chat

21 October 2014 - 07:59 PM

Beef stew tonight!


In Topic: Celiac And Immune Deficiencies

21 October 2014 - 11:08 AM

Whoops, pressed reply too fast there.  Make sure the vaccine you get is one of the dead ones, and not a live one.  (Like the nasal mist).   More info can be found here: http://primaryimmune...lu-information/


In Topic: Celiac And Immune Deficiencies

21 October 2014 - 11:00 AM

Unless a doctor is telling you not to get it, I would absolutely get your flu shot as soon as you can.  For the immunodeficiency patients it pretty much is not an option to not get it.


In Topic: Anyone Here Sensitive To Fillers Such As Cellulose?

20 October 2014 - 10:45 PM

i Do, my name is Ryan,

 

I have been on a medicine called Keppra and Tegratal for years now

Each of these medicines contain cellulose

I am slowly taking off the Keppra hoping for the best

i have been dealing wiith this issue for years, I am just glad it is figured out.

I do not know where to go after taking down the Keppra?

I would appreciate any help about what to do next after taking off the Keppra.

My main symtom of the cellulose is not being able to walk or stand correctly and my ringing in the ears has been bothering me for years.

 

If you are taking Keppra and Tegretol for siezures, or anything else really, it can be very dangerous to wean yourself off of these.  Usually this drug combination is for seizures, which is why I say this.  There are multiple generic manufacturers of both medications at their various strengths, so you may be able to find a manufacturer that makes theirs without the suspect ingredient.  Otherwise, Karen's recommendation of going to a compounding pharmacy is a very good one, and you may be able to get help there.  If you insist on going off Keppra and aren't doing it with the help of a doctor, you may want to put a note in your wallet in case you end up in the ER and you are unconscious so the staff knows how to properly help you.


In Topic: Celiac And Immune Deficiencies

20 October 2014 - 08:51 PM

Thanks for posting those results.  The good news is your total IgG is good, it looks like a potential IgG Subclass Deficiency (http://www.immunedis...deficiency.html ) and that is usually not as severe.  A person I know with that has a similar story as you, his ears are constantly infected and he has hearing loss from the constant infections so they keep him on antibiotics all the time.    Sometimes other things they check can still mean you need IVIG therapy, but just a few low sub-classes doesn't necessarily mean you need it.  I would definitely follow up with the immunologist so they can at least take a good look at it, and at least have someone to go to any time you get those infections.

 

There isn't much else you can do to boost immunity other than to take care of yourself overall, anything that improves your overall health is a good plus to your immune system.  If you are of the severity that you need IVIG, many people get a huge improvement in their health after going on it, so it isn't necessarily something to be afraid of.  Myself, I was like you, the sickly child, always catching everything, and once I learned and was able to treat the true cause of it all, it helped me a lot.  So for now while you are waiting to get that appointment, just do the best you can to take care of yourself, and then you can get some good answers.