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Member Since 13 Sep 2013
Offline Last Active Yesterday, 08:04 PM

#942758 Iv Nutritional Therapy

Posted by on 23 March 2015 - 05:18 PM

Not many people on the board have been on TPN or IV vitamins other than iron, but if you are to the point that you need it, you are probably going to feel tons better with it.  Sorry I can't give you too much more info, but I do hope it makes you a lot better.

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#942685 Iv Nutritional Therapy

Posted by on 22 March 2015 - 11:47 PM

What exact IV nutritional therapy do they have you on?  

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#942618 Heb Blendables

Posted by on 21 March 2015 - 07:11 PM

HEB is a supermarket chain in Texas.  They have Central Market which is their more upscale gourmet place, in the big cities.  They have lots of good store brand stuff and are the best around here as far as labeling store brand things as gluten-free which helps save money on that gluten-free grocery budget. 

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#942617 Any Scientific Evidence Than Less Than 20Ppm Can Cause Ttg Rise?

Posted by on 21 March 2015 - 06:06 PM

You may find this article an interesting read... some people who still have symptoms on a gluten-free diet have gone on the Fasano Gluten Contamination Elimination diet which cuts out basically anything processed.  Some see improvement. http://www.ncbi.nlm....-230X-13-40.pdf

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#942615 Heb Blendables

Posted by on 21 March 2015 - 06:02 PM

Welcome to the forum Rachel!


I shop primarily at HEB and have bought the blendables things.  HEB has a lot of products that they will put the gluten-free seal on, and that is not one of those.  However, when I have contacted them before, they let me know they are constantly getting new HEB brand products from many manufacturers and are working on putting the brown gluten-free seal on more things, so it not having that doesn't mean it is not gluten-free.  I buy them myself, and just like any other frozen fruit or veggie as long as there is no shared equipment warning, etc, I consider it good to go.  They periodically have sales on those and I will stock my freezer.  Also, if you want something more rich you can make them with milk, or milk and yogurt.

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#942526 Gluten Challenge - Where Are The Symptoms?

Posted by on 19 March 2015 - 05:51 PM

Welcome to the forum, Hasan.


Not all Celiacs get outward symptoms when they eat gluten.  It varys per person.  When your doctor told you to go gluten free because the endoscopy biopsy could have missed it, he was correct.  Celiac damage can be patchy, and they need to take a number of samples to ensure they don't miss anything.

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#942525 Gluten Challenge - Where Are The Symptoms?

Posted by on 19 March 2015 - 05:47 PM

The endoscopy is the only  definive diagnosis accepted by the insurance companies


This may vary from company to company, best to each check with their own plan about what is covered and when.

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#942237 Eye Infections

Posted by on 15 March 2015 - 05:11 PM

It is plausible that something like Sjogrens could give you dry eye and make it more susceptible to infection.  Definitely follow up on that, and are you seeing an ophthalmologist?  If not, definitely make an appointment to get the eye looked at in depth, and discuss the possibility of that issue there.

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#941130 Ucsb Student In Fall

Posted by on 28 February 2015 - 12:19 AM

Once you get there, maybe you can get a group together of gluten-free people... put up flyers in the dining hall, etc.  It may be a great way to make friends, especially if you live on campus.

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#941119 When I Exhale Through Nose I Smell My Feces?

Posted by on 27 February 2015 - 07:13 PM

Unless you have a medical reason to avoid anesthesia, I highly recommend getting the sedation, makes it quick and easy.  If you are afraid of the anesthesia, then it is better to do it without than not at all, I suppose.

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#940613 Could This Neuropathy Caused By Celiacs Disease, Or Gluten Sensitivity?

Posted by on 19 February 2015 - 12:13 AM

While this does not sound like the typical onset of Celiac disease-associated neuropathy, given your history of vitamin deficiencies and IBS, it would not hurt to get tested for Celiac disease.  However, in reference to the numbness and changing sides- that sounds like it is something different.  Have you had your neck examined and have the nerves checked or an MRI of that area?  Problems with the neck, nerves, or musculoskeletal system can cause those kinds of symptoms, and can be very dangerous if left untreated, so I would ask to have someone look at your neck and associated areas as well.


We are not doctors or experts in this area, so please get back to a doctor ASAP to have them look further into this.  If you do get tested for Celiac disease, do know that you have to be consuming gluten for the tests to be accurate, so don't start a gluten-free diet without talking to your doctor first.

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#939768 Gaining Weight/muscle Mass With Celiacs.

Posted by on 05 February 2015 - 01:56 AM

Welcome to the forum, Woolsey!


We like to keep all information on here based on legitimate sources, and unfortunately, the claims made by the people selling the expensive cross reactivity tests are based on poor science.  Per the University of Chicago Celiac disease center, these claims are all untrue.




Now, people can have separate issues with things like corn, soy, dairy, and others, but this is a separate issue.


Here is a well written article that goes in depth into the myth of cross-reactivity:



Here is an old forum thread from here that has some great discussion:



And for our newly diagnosed friends, here are some great articles that were written by bloggers covering the Celiac Myths talk at ICDS 2013:



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#939678 Chance Of Gluten In Meds Very Low

Posted by on 03 February 2015 - 06:59 PM

Medications are held to a much higher regulatory standard than supplements are.  Medication manufacturers have things called Good Manufacturing Practices they have to adhere to... one big thing is preventing contamination from other medications. That is hinted at in the article when they talk about the air quality control that is required.  Basically, if they are keeping dust that contains other medications out of your medicine, everything else is being kept out, too, at the manufacturer's level.  I like how they talk about Olmesartan in this article and how it causes Celiac-like symptoms.  It is important to remember that not just that medication, many really, can cause gastrointestinal side effects, and remind ourselves that not everything is because of gluten.  


It makes me think of people who say they are allergic to medications because "it made me feel a little jumpy" or "it made me constipated", etc.  Not a true allergy.  Lots of medications cause stomach pain, "D", etc. and that is important to keep in mind.


Okay, I will end that rant... pharmacy technician/ pharmaceutical manufacturer in me talking here.  

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#939567 New To All Of This

Posted by on 02 February 2015 - 12:57 AM

If you aren't able to get them done with current resources, then going ahead and trying out a wheat free diet is the next step for sure.  If you are able to keep a diary of what you eat and any symptoms you have, you may be able to pinpoint whether it is a gluten issue or a wheat issue.  I would lean towards avoiding all gluten for now, as that is more common than just a wheat issue.  But that is your decision to make.  Just know that if you ever want to be formally tested for Celiac in the future, you would have to have a period where you consume gluten again before the tests are done.  There are many people here on the forum that don't have a formal diagnosis for various reasons, and they are okay with that.  


So, check out that newbie 101 thread I linked, there are lots of things to start from there.  Give away all wheat/gluten containing items from your pantry, and to keep costs down, focus on whole foods like fruits, meat, and veggies, instead of buying the pricey gluten free substitute items.  If you do actually have Celiac disease that is so far undetected, there can be many months of healing time until symptoms get better.  So give it a good while before you decide whether or not a gluten-free diet or wheat free diet is working for you.  For ideas of what to eat, check out this thread where we share what we make for dinner:   http://www.celiac.co...r-tonight-chat/


More people will be in when morning comes with some other great input for you.  Feel free to ask any specific questions you may have.

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#938968 Girl Scouts Rolls Out 3 New Gluten Free Cookies

Posted by on 24 January 2015 - 07:17 PM

I got my gluten-free cookies!  I picked up four bags of the trios cookies... they are really good.  Those are the oatmeal peanut butter chocolate chip ones.  Soft and very good.  They only have oats in them, no other gluten-free flours. I want to try and get a hold of the toffee tastic ones, I had someone tell me they are like pecan sandies, which are a cookie I miss dearly. 

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