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Member Since 13 Sep 2013
Offline Last Active Today, 12:55 AM

#937135 Lindt Lindor Chocolate And Barley Malt Ugh!

Posted by LauraTX on 19 December 2014 - 06:57 PM

Ghirardelli is a good choice (they have shared equipment but great practices to clean lines in between), and my favorite is See's Candy, of which everything is now gluten-free.  They are a bit pricey, though.

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#933591 Celiac And Continual Gluten Consumption?

Posted by LauraTX on 27 October 2014 - 10:36 PM

I met a lady who had a lot of health problems, multiple autoimmune issues and had just had a bout with cancer.  A while after meeting her she nonchalantly tells me she was diagnosed with Celiac disease 10 years ago, but just never went gluten-free, and maybe she will do it now.  I thought inside my head for a few seconds and decided I would just respond to her with complete kindness and not criticize her, let her know that there are a ton of risks and it is probably affecting her more than she knows, and offered to go to her house and do grocery shopping and such with her.  I hope she does, but with someone like that, you just can't force someone, just educate and hope for the best.  Sadly, with the age of easily accessible information on the internet, much of that is wrong, and many people will believe what they want to because they want it to be, as with the Italian wheat thing.  Italy has it's fare share of Celiacs, but people won't believe what they don't want to sometimes.  Same thing happens with morbidly obese people after  they have heart issues, diabetics who still eat an uncontrolled diet against what is needed... some people just will not take care of themselves.  A very sad thing to watch, indeed.  

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#933469 Yakitori Sauce....not Good!

Posted by LauraTX on 25 October 2014 - 04:43 PM

I would buy another brand next time, people who try to say they are safe on a technicality like that are not going to get my money.  

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#930169 New Here And Need Help With School Policy

Posted by LauraTX on 09 September 2014 - 05:20 PM

Okay guys, let's please reign this in here.  Back to the original question.


Happyplace, Unless it has been totally shot down, I would open conversation with the school administration back up.  You may be able to ask for your child to be sat away from the peanut allergic child(ren) and while you won't blatantly send nut items there, not worry about shared facilities, etc.  Bottom line is you can't let your kiddo starve and have a non-balanced diet and there has to be a better solution that can be reached with more understanding of everyone's needs.

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#929813 Test Results Help

Posted by LauraTX on 06 September 2014 - 10:51 PM

Welcome to the forum, Boncarlos2!


If you have the actual copy of the lab report, can you post exactly what it says?  I don't want to throw out a guess right now because some of the decimal points are not making sense.  I want to get you accurate info.

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#926533 Are You Happy?

Posted by LauraTX on 05 August 2014 - 08:08 PM

You know what makes me happy?  They finally aren't playing that "Happy" song to death on the radio anymore.  Yay!

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#926236 Stop Eating Bread

Posted by LauraTX on 03 August 2014 - 11:47 AM

There are gluten-free rice krispies! :)  They are made with brown rice so they have a slightly different flavor, but pretty much the same.  I want to say they are in a tan colored box, I see them at most stores I go to.

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#924403 Most Ridiculous Gluten Comment I've Heard

Posted by LauraTX on 18 July 2014 - 06:47 PM

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.

Thats correct! 


At a restaurant one time I asked if there was a shared fryer, the nice girl there said yes, and even though a lady told her one time that she is a nurse and the hot oil burns off the gluten, she doesn't think it is safe.  I commended her for having some sense, and then told her that.  At the end I added, "Since the smoke point of the frying oil is well under 600 degrees, the gluten would only go away if the restaurant burned down."  Got a laugh out of that.  She still works there and I try to go on the days I know she usually works.   :)



Edit: Bad grammar

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#923799 Celiac Disease & Shiga Toxin E Coli

Posted by LauraTX on 14 July 2014 - 12:38 PM

If you have a verifiable bacteria that needs to be killed, please for your and public health interests, take the antibiotic.  It takes strong stuff to kill nasty germs like that, but you don't want that hanging around any longer than it has to.

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#923386 Boston- Four Thumbs Up!

Posted by LauraTX on 09 July 2014 - 09:13 PM

The picture of you son in a state of absolute joy just made my day.  I am so happy you guys had a good experience!!!  I want to go meet gluten rock stars now!!! LOL

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#922740 H- Pylori

Posted by LauraTX on 05 July 2014 - 10:32 PM

Hi Canuck,

I just wanted to add that it is pertinent to take all the medicine for the H Pylori eradication as prescribed, don't stop the antibiotics early.  If you choose to do some kind of alternative treatment, let your doctor know.  I highly recommend doing the recommended course of meds the doctor prescribed.

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#922308 Lower Left Abdominal Pain Unresolved

Posted by LauraTX on 01 July 2014 - 10:16 PM

Hi Salaw, and welcome to the forum!  Do you have Celiac disease?  As for your lower left abdominal pain, since you have ruled out female issues, the likely cause is gas or constipation.  There are two bends in the colon in that area (see this pic:http://img.webmd.com...pages/colon.jpg) and if you are prone to constipation, things can get hung up around there.  You can rule out gas by taking some gas-x and seeing if it helps.  If it doesn't, it may help you to do things to improve the flow of things, there is a ton of information on the internet about help with constipation, but make improvements in your diet before you try medicine or any natural remedies.

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#922083 Contamination Anxiety- Help!

Posted by LauraTX on 30 June 2014 - 12:24 PM



I know some will disagree with me, but I am not quite as "anal" about possibly ingesting small amounts of gluten.  I do agree that you should be anal about avoiding foods that are likely to contain more than 20 ppm gluten content.  I was diagnosed with Celiac's 2 years ago. I do react to significant amounts of gluten, but I am not as severely sensitive as some.  For those that are severely sensitive, they do need to be very anal to avoid symptoms.


I have read that one research test program showed that 10 mg of gluten did not damage intestines of adults with celiacs in the program and that 50 mg of gluten did damage intestines.  So "a few molecules of gluten" may not be harmful, but you do need to minimize your gluten intake.


I am not as concerned about cross-contamination as some.  I try to take reasonable precautions, but I don't get paranoid about eating in restaurants or buying prepared foods that don't "guarantee" a gluten-free facility.  I do check all labels for ingredients and will not typically buy items that list products known to contain gluten. But I do consume Kikkoman soy sauce and Corona beer occasionally - both were shown in previous tests to contain less than 20 ppm million gluten, even though wheat or barley is used to produce them.  (I have read that the processing they use destroys much of the gluten.) 


For every meal I order at a restaurant, I do ask if the meal contains any gluten or wheat flour.  I previously had made the mistake of not asking when I thought a meal I often eat would be gluten free - but I then found that some restaurants do use gluten in the meal.  (In the past year I had two severe glutenings when I forgot to ask.)  So now I always ask.


So, yes you do need to always be "vigilant".  But you may not need to be "anal".





While the over the top approach may not be necessary for everyone, I think your approach consuming corona and regular kikkoman is unwise.  Although you may not feel it, purposefully ingesting gluten containing products does harm you in the long run.  I urge you to re-think what you are doing.  You don't have to get outright glutening symptoms from something for it to cause damage in the small intestine.  A few molecules of gluten is not going to be what is transmitted through cross contamination, it is generally going to be much more, since even a tiny speck of wheat flour is much larger than a few molecules.


On the forum here we only support the spread of information from legitimate sources, and there is no science to support a person with Celiac disease purposefully eating gluten. 

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#922012 Anxiety And Bloating Still Happening After Going gluten-free? Help!

Posted by LauraTX on 29 June 2014 - 08:11 PM

Welcome, nooblet! :D


A lot of people are misdiagnosed before actually getting a Celiac diagnosis, sadly.  Did your doctor tell you how bad your damage was on the endoscopy?  (May have said something like Marsh 1, Marsh 2, Marsh 3, Marsh 4, blunted villi, etc.)  Overall, the damage in your gut takes a long time to heal.  It can be months before you see changes, and longer if the initial damage was very bad, but it is totally worth it to stick it out. 


1) If you are still having stomach issues, try out avoiding dairy for a while, since a lot of Celiacs cannot handle dairy with all that damage going on in there.( http://www.curecelia...ose-intolerance)  Same thing with oats since they have a lot of fiber and stuff, many GI doctors will tell you to avoid them for three months.  ( http://www.celiaccen...uten-free-oats/  )


2) Pain in the upper right abdomen like you describe are classic signs of gallbladder issues.  If after a few months of being gluten-free that doesn't seem to be better, have your GI doctor look into that. 


3) As you seem to know, emotional issues definitely are associated with Celiac.  That, along with the gut healing, will take a bit of time.  I am sure the stress of the diagnosis process and learning how to eat again don't help with the stress.  Just try to reduce your stress level as much as you can and stick it out a while longer.  


Overall, you are just barely into your healing.  Especially with you likely having had active Celiac for 10+ years, it is going to take a while for your body to recover from the damage.  Not ten years though, thankfully :)  Just be very strict with the gluten-free diet for now, avoid eating out, and try to eat healthy stuff so your body gets all the good stuff it needs to thrive.  Eventually you will hit a point where you do feel better, and feeling better will also help with your anxiety.  If you haven't already, check out this thread for newbies:  http://www.celiac.co...ewbie-info-101/ and feel free to ask any other questions you may have! :)

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#921746 How Do You Work With This?

Posted by LauraTX on 26 June 2014 - 11:26 PM

What flavor of Talenti Gelato did you eat?  They only have a few that are basically fruit sorbettos that don't contain dairy.  Also, many glutino products have dairy in them.  Before you look into anything like the carb issue, you may want to eliminate oats for a time as Adalaide said, since some Celiacs cannot handle them, even after healing.  Also, be very careful and picky about trace amounts of dairy in products you eat.  A good company for dairy free frozen desserts is the SO Delicious brand which makes coconut milk ice cream.  


But do remember that even though us Celiacs have bona fide issues with gluten, not all our issues are caused by it.  It really sounds like you have some other intolerance that has yet to be treated through diet.

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