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LauraTX

Member Since 13 Sep 2013
Offline Last Active Today, 02:55 AM
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#941130 Ucsb Student In Fall

Posted by on 28 February 2015 - 12:19 AM

Once you get there, maybe you can get a group together of gluten-free people... put up flyers in the dining hall, etc.  It may be a great way to make friends, especially if you live on campus.


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#941119 When I Exhale Through Nose I Smell My Feces?

Posted by on 27 February 2015 - 07:13 PM

Unless you have a medical reason to avoid anesthesia, I highly recommend getting the sedation, makes it quick and easy.  If you are afraid of the anesthesia, then it is better to do it without than not at all, I suppose.


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#940613 Could This Neuropathy Caused By Celiacs Disease, Or Gluten Sensitivity?

Posted by on 19 February 2015 - 12:13 AM

While this does not sound like the typical onset of Celiac disease-associated neuropathy, given your history of vitamin deficiencies and IBS, it would not hurt to get tested for Celiac disease.  However, in reference to the numbness and changing sides- that sounds like it is something different.  Have you had your neck examined and have the nerves checked or an MRI of that area?  Problems with the neck, nerves, or musculoskeletal system can cause those kinds of symptoms, and can be very dangerous if left untreated, so I would ask to have someone look at your neck and associated areas as well.

 

We are not doctors or experts in this area, so please get back to a doctor ASAP to have them look further into this.  If you do get tested for Celiac disease, do know that you have to be consuming gluten for the tests to be accurate, so don't start a gluten-free diet without talking to your doctor first.


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#939768 Gaining Weight/muscle Mass With Celiacs.

Posted by on 05 February 2015 - 01:56 AM

Welcome to the forum, Woolsey!

 

We like to keep all information on here based on legitimate sources, and unfortunately, the claims made by the people selling the expensive cross reactivity tests are based on poor science.  Per the University of Chicago Celiac disease center, these claims are all untrue.

http://www.curecelia...ross-reactivity

http://www.curecelia...ons-in-the-body

 

Now, people can have separate issues with things like corn, soy, dairy, and others, but this is a separate issue.

 

Here is a well written article that goes in depth into the myth of cross-reactivity:

http://paleomovement...reactive-foods/

 

Here is an old forum thread from here that has some great discussion:

http://www.celiac.co...-test-accuracy/

 

And for our newly diagnosed friends, here are some great articles that were written by bloggers covering the Celiac Myths talk at ICDS 2013:

http://prettylittlec...myths-debunked/

http://celiacandtheb...m-myths-busted/


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#939678 Chance Of Gluten In Meds Very Low

Posted by on 03 February 2015 - 06:59 PM

Medications are held to a much higher regulatory standard than supplements are.  Medication manufacturers have things called Good Manufacturing Practices they have to adhere to... one big thing is preventing contamination from other medications. That is hinted at in the article when they talk about the air quality control that is required.  Basically, if they are keeping dust that contains other medications out of your medicine, everything else is being kept out, too, at the manufacturer's level.  I like how they talk about Olmesartan in this article and how it causes Celiac-like symptoms.  It is important to remember that not just that medication, many really, can cause gastrointestinal side effects, and remind ourselves that not everything is because of gluten.  

 

It makes me think of people who say they are allergic to medications because "it made me feel a little jumpy" or "it made me constipated", etc.  Not a true allergy.  Lots of medications cause stomach pain, "D", etc. and that is important to keep in mind.

 

Okay, I will end that rant... pharmacy technician/ pharmaceutical manufacturer in me talking here.  


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#939567 New To All Of This

Posted by on 02 February 2015 - 12:57 AM

If you aren't able to get them done with current resources, then going ahead and trying out a wheat free diet is the next step for sure.  If you are able to keep a diary of what you eat and any symptoms you have, you may be able to pinpoint whether it is a gluten issue or a wheat issue.  I would lean towards avoiding all gluten for now, as that is more common than just a wheat issue.  But that is your decision to make.  Just know that if you ever want to be formally tested for Celiac in the future, you would have to have a period where you consume gluten again before the tests are done.  There are many people here on the forum that don't have a formal diagnosis for various reasons, and they are okay with that.  

 

So, check out that newbie 101 thread I linked, there are lots of things to start from there.  Give away all wheat/gluten containing items from your pantry, and to keep costs down, focus on whole foods like fruits, meat, and veggies, instead of buying the pricey gluten free substitute items.  If you do actually have Celiac disease that is so far undetected, there can be many months of healing time until symptoms get better.  So give it a good while before you decide whether or not a gluten-free diet or wheat free diet is working for you.  For ideas of what to eat, check out this thread where we share what we make for dinner:   http://www.celiac.co...r-tonight-chat/

 

More people will be in when morning comes with some other great input for you.  Feel free to ask any specific questions you may have.


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#938968 Girl Scouts Rolls Out 3 New Gluten Free Cookies

Posted by on 24 January 2015 - 07:17 PM

I got my gluten-free cookies!  I picked up four bags of the trios cookies... they are really good.  Those are the oatmeal peanut butter chocolate chip ones.  Soft and very good.  They only have oats in them, no other gluten-free flours. I want to try and get a hold of the toffee tastic ones, I had someone tell me they are like pecan sandies, which are a cookie I miss dearly. 


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#938613 Do Your Pets Eat Gluten Free?

Posted by on 18 January 2015 - 06:35 PM

My SO plans on bringing his kitty over from Germany. It is currently living with his parents. We will be feeding her Royal Canin. His father is a Veterinarian and is the lead guy for RC in Germany so I am given NO SAY in the food his kitty will eat. hahaha  I will be getting a kitten soon too and I refuse to pay the price tag on RC so I was looking at Blue  Freedom as they have a grain free variety. I really wish I could convince my SO to get his kitty grain free too. That way the kitties can BOTH be around me and I will never worry about it. If we have a child together, I will demand it if the baby turns up Celiac though.

The gluten-free version of Blue is around the same price as Royal Canin.   My cat now eats the Royal Canin Feline Urinary SO prescription food, it helps with her urinary tract problems.  The regular one is gluten-free, the lower calorie one has wheat gluten as a top ingredient, so we just make sure to be strict on portion control.  We fed her Blue before, she liked it a lot.  The can version of her RX food is gluten-free as well, we feed her those sparingly as a treat when we have to mess with her to clean her and such.

 

I feed her gluten-free because I keep the food in my kitchen, she licks herself, I pet her, etc.  I am sure the risk of transmission and issues is very low, but it is worth the peace of mind for me to make sure her food is gluten-free.

 

We do occasionally give her greenies which are not gluten-free.  They work wonders on that bad cat breath!


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#938475 The What's For Dinner Tonight Chat

Posted by on 14 January 2015 - 07:16 PM

That grilled cheese sounds really good!  Tonight I am treating myself to gluten-free pizza.  Nomnomnom.


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#937988 Celiac For 1 Year, Having Trouble Eating Almost Anything For The Last Month

Posted by on 07 January 2015 - 12:17 AM

Did you do any other tests?
 interested.

Maybe stay away from vegetable oil, soy, cornstarch.  Gluten allergies can turn into multiple alllergies.

Celiac disease is not a gluten allergy. As you are new to the forum, please feel free to read around and check out http://www.curecelia...th-celiac/guide for scientifically accurate information.  


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#937971 Do You Guys Change Your Toothbrushes After Accidentally Eating Gluten?

Posted by on 06 January 2015 - 04:07 PM

I always keep extra toothbrushes on hand for after someone is sick, etc.  If I ate a large amount of gluten and used it after, yes I would toss it.


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#937135 Lindt Lindor Chocolate And Barley Malt Ugh!

Posted by on 19 December 2014 - 06:57 PM

Ghirardelli is a good choice (they have shared equipment but great practices to clean lines in between), and my favorite is See's Candy, of which everything is now gluten-free.  They are a bit pricey, though.


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#933591 Celiac And Continual Gluten Consumption?

Posted by on 27 October 2014 - 10:36 PM

I met a lady who had a lot of health problems, multiple autoimmune issues and had just had a bout with cancer.  A while after meeting her she nonchalantly tells me she was diagnosed with Celiac disease 10 years ago, but just never went gluten-free, and maybe she will do it now.  I thought inside my head for a few seconds and decided I would just respond to her with complete kindness and not criticize her, let her know that there are a ton of risks and it is probably affecting her more than she knows, and offered to go to her house and do grocery shopping and such with her.  I hope she does, but with someone like that, you just can't force someone, just educate and hope for the best.  Sadly, with the age of easily accessible information on the internet, much of that is wrong, and many people will believe what they want to because they want it to be, as with the Italian wheat thing.  Italy has it's fare share of Celiacs, but people won't believe what they don't want to sometimes.  Same thing happens with morbidly obese people after  they have heart issues, diabetics who still eat an uncontrolled diet against what is needed... some people just will not take care of themselves.  A very sad thing to watch, indeed.  


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#933469 Yakitori Sauce....not Good!

Posted by on 25 October 2014 - 04:43 PM

I would buy another brand next time, people who try to say they are safe on a technicality like that are not going to get my money.  


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#930169 New Here And Need Help With School Policy

Posted by on 09 September 2014 - 05:20 PM

Okay guys, let's please reign this in here.  Back to the original question.

 

Happyplace, Unless it has been totally shot down, I would open conversation with the school administration back up.  You may be able to ask for your child to be sat away from the peanut allergic child(ren) and while you won't blatantly send nut items there, not worry about shared facilities, etc.  Bottom line is you can't let your kiddo starve and have a non-balanced diet and there has to be a better solution that can be reached with more understanding of everyone's needs.


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