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NoGrainNoPain

Member Since 14 Sep 2013
Offline Last Active Jan 02 2015 09:39 PM
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Topics I've Started

When Is It The Proper Clinical Context?

16 March 2014 - 10:15 PM

Just in the midst of a gluten challenge for two months now. My old friends diarrhea, bloat and bad gas are back along with reflux...which I didn't realize I had until it was gone, and eczema. There's a newbie though—migraines. My IgA test was negative before going gluten free, but my MD thought I should try the diet anyway. It was great, but I was shocked at my sensitivity to cross contamination. Not convinced that I didn't have celiac, I went to a GI specialist...who coincidently does not specialize in calling patients back with a diagnosis. 

 

Pathology report says that I have esophagitis from chronic reflux, reactive gastritis and increased leukocytes in my duodenum..."see note below". The note below reads: "the findings of the duodenal biopsy reflect gluten sensitive enteropathy in the proper clinical context." I don't have cancer, no ova nor parasites. The nurse called me back, said I had reflux and everything was fine. Since I had privileged information I asked her about the pathologist's note. She hadn't seen the note. She said, "well, you don't have celiac's. You're not having symptoms are you?" Hello, anyone home????

 

Gluten sensitive enteropathy is celiac disease. My IgA panel was negative, but I was mostly gluten free three to four weeks before mostly because I was too sick to eat anything. I ordered a genetic test, and it hasn't come yet. I have the leukocytes...not sure how many, don't know what the crypts look like. I have experienced improvement on a gluten-free diet. Is that enough for the proper clinical context? Still eating gluten and thinking about doing another IgA panel...but I'm basically over it. Wish the MD would call back. He must be skiing.