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Member Since 18 Sep 2013
Offline Last Active Feb 26 2015 09:53 AM

Posts I've Made

In Topic: No Printed gluten-free Menu At Red Robin

22 February 2015 - 11:43 AM

iPads here too.  Honestly, I like how I can click the boxes of our needs and go from there.


But, yeah, the food is nothing to write home about.  We eat there maybe once every six months when the kids are Jonesing for fries.  Luckily we have a local place around the corner that has gluten-free friers (the owner's kid has celiac).  Much better food.

In Topic: New + Serology, 2 Yrs Old

19 February 2015 - 06:45 PM

Welcome to the board.


Like you, my youngest was DX when she was very young.  No weight gain and dropping off the chart between 12 and 18 months caused her DX.  At the time I thought her only symptom was no growing, but looking back I can see other things that I blew off because I had other kids (never slept, screaming at night in pain, nursed around the clock, etc).  Like I said, we just didn't put all the pieces together.  Looking at pictures of her at that time vs now it's a night and day difference.  Her skin looked shallow, her cheeks were gaunt, etc. 


Once one person is DX then all first degree relatives need to be tested.  This led to the DX of the oldest (who had also been tested for celiac, among many other things, the previous year, but came back negative) and finding out the middle kid is going to develop it eventually.


The youngest wasn't given a biopsy based on her age and her enormously high numbers (run twice b/c they were so high for her age) - whereas the other two were.  Doctors have differing thoughts on biopsy for children, but they all seem to agree that testing won't work unless on a gluten containing diet.  So live and eat as usual and plow through this.


Good luck!  Don't hold back any questions.  Believe me, there is a wealth of knowledge on this board.

In Topic: 504 Question

06 February 2015 - 11:15 AM

Cara - I've heard from others that kids jump to an IEP and lose their 504 if there is a learning issue.  I wonder if that's law or just common practice?

In Topic: Toddler Friendly Snacks

03 February 2015 - 12:13 PM

My kids are insane about yogurt (you can sweeten with honey, but my kids prefer the organic Stoneybrook - strawberry flavor) and spoonfuls of sunbutter.


Have you tried giving her shelled peanuts?  Not really a daycare option, but 3 year olds can totally break them open and it's a massive time killer.

In Topic: Parents Of Pre-Schoolers: Play Dough Question

03 February 2015 - 12:09 PM

I wouldn't be comfortable with regular play-doh - too many chances for gluten.  Even just under fingernails.


At my daughter's preschool there are two schools of thought:

1. have an all-gluten-free play-doh room

2. have the necessary child use gluten-free play-doh on a separately colored tray


I've seen both styles work.  Since my kid is celiac and not intolerant we go with #1.  The school provides the gluten-free play-doh and the gluten-free manipulatives follow her as she ages up.  Plus, since it's a gluten-free room they only use play-doh and tools safe for her all the time so the teachers don't have to worry about switching things out.  It's a pretty awesome system.


eta: our preschool is through our school district so she has a 504 plan that they're required to follow.  And this was written in before she even started school.