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Member Since 18 Sep 2013
Offline Last Active Jul 21 2015 06:09 PM

Posts I've Made

In Topic: Gluten Challenge For Mother Of Breastfed 15 Month Old

29 June 2015 - 12:39 PM

My youngest was DX at 1.5 years and I immediately went gluten-free with her so she could continue nursing for another 1.5 years. 


StephanieL - I must have read different research than you, because everything I read told me to either wean or stick to a strict diet for her.  We never had any issues as I was crazy strict with what we all ate.


Pre-dx this kid would scream bloody murder all night long, couldn't sleep (in severe pain) and nursed all the time (way more than the average kid) to soothe her belly.  It was clear that her diet was hurting her.

In Topic: Do You List "gluten" As An Allergy?

26 June 2015 - 07:18 PM

Yep.  All of the above.  I write "Celiac Disease - can not eat or play with gluten (wheat, oats, rye, barley).  All food will be sent from home." in the allergy area AND the "other" area. 


I do it to get a straight flag to the nurse.

In Topic: A Week Away At Girl Scout Camp!

15 June 2015 - 08:26 AM

My oldest had a couple of summers at GS camps pre-dx. Now I refuse to send her. They tell me they can keep her safe, but I question that - and it's not worth the hassle when I can find alternatives.

Last summer she went to a gluten-free camp in Georgia. She loved not having to thing about food, but the camp wasn't what her dad and I envision as "camp." She's currently at a ymca camp outside Indianapolis that is having a gluten-free week - not all kids, but they tried to pull the gluten-free ones together. This will be her first year, but they seem to have a great department to focus on dietary needs.

I really want to just start my own darn camp!

In Topic: Daycare And 504 Plan

20 May 2015 - 12:45 PM

I would also caution leaving any food there for daily use unless it's individually wrapped/labeled.  The though of a butter tub in the community fridge would cause me heart palpitations all day long!  lol

This.  100%.

In Topic: Daycare And 504 Plan

20 May 2015 - 12:16 PM

Yep, get some food in the kid.  What about letting him pick some mom-approved junky food to eat along with his lunch?


I have a friend that would send in a treat at every lunch.  If any other food came back and the treat was gone she would stop sending in treats.  Sounds fair, right?  Until I had two kids that were struggling to not lose more weight.  That first year I was so focused on calories and fats.  My little stick children needed to get bigger.


Don't forget, you get him for dinner.  You can make that the most nutritious meal of the day.  It's ok.  I promise.  One day he will grow and you'll be amazed.  My 9 year old gained NINE pounds between her 8 yo and 9 yo well visit.  NINE!!  That would be a lot for an "average" kid, but when you're starting with these small kids with celiac...  I did a happy dance in the doctor's room. :)

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