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breadguebad

Member Since 28 Sep 2013
Offline Last Active Nov 25 2013 05:51 PM
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Posts I've Made

In Topic: Celiac Testing

14 October 2013 - 06:08 PM

 Yes, I believe that is what my current doctor is doing, but I have to wait another week to see him. Hopefully it will go by fast because eating gluten all the time is making me feel pretty crappy. I have read on here that some doctors, and this includes mine feel that since the transglutaminase IGA is such an accurate test that most times some doctors do not even feel the need for an endoscopic biopsy procedure.  
  I think he is going to schedule me for the procedure anyways even though he feels that my moderate positive is accurate due to the lack of results from the other conditions that can cause a positive test, plus all of my common symptoms that point to celiac. 


In Topic: Celiac Testing

01 October 2013 - 11:22 AM

Thanks for your insight it has been helpful.  I have read that  tTg IgA is the most specific test for celiac. As for the anti-gliadin antibodies tests I have came back with moderate levels on the last two tests but I haven’t been eaten a lot of wheat when I was tested so they were not high enough. Since I have had a positive result tTg IgA result and its 95% correct, and I have been pretty sick this last week eaten gluten especially gooey gluten foods (muffin, doughy cookie: just one, white bread) it seems like I have my answer.  

I have had vitamin deficiencies  in the past from vit D, and magnesium. I also have low calcium, and potassium but both were just in the range so they were not negative. I have heard that everybody is different in vitamin levels anyways I guess? Although, usually my levels come back normal but are always in the low range.

As for the thyroid I have been tested a quite a bit over the past three years, because since I was told I was not a celiac it was thought to be my thyroid, but I have always had levels that were in range. Now one doctor told me that testing wasn’t always accurate and started me on thyroid replacement, which made me hyperthyroid. The last time my levels were checked I had a .9 tsh and low t4, ft4. So my doctor who believes I’m a celiac had my pituitary gland scan, but came back normal so he sent me to a specialist at the Mayo Clinic. The endocrinologist there said that my off levels were off due to the fact that my thyroid was trying to make up for another issue such as my weight loss. He tested my thyroid again and it was within the normal levels. 

I have felt better when I have gone gluten free such as less joint pain, fatigue, mood, and muscle twitches. The digestive problems go away completely unless I eat gluten, contaminate food, or very greasy food. I have never gone to long without eating gluten or contaminate food since I was told I was fine.

 I feel people, and even some medical sites seem to downplay all the affects gluten can have on your body, and they make recovery seem like such an easy and speedy process for celiacs. Will probably go see the GI whenever they schedule me, but since the tTg IgA is positive I may just start trying to get healthy now. Therefore I plan on going gluten free and hoping all my symptoms subside.

thanks for reading and taking the time