Hello, this is what has been happening to me http://www.celiac.co...rawal-symptoms/ (sorry for posting so many links!! i do this so i can extend less this post)
I APOLOGYZE IN ADVANCE FOR THIS LONG TEXT HAHA, I NEEDED TO VENT.
My symptoms have not improved yet, i've had diarrhea for 14 days now, and bright bloody diarrhea for 5 days or so, the blood was a very common symptom for me before going gluten-free, i had a colonoscopy one year ago, it was all normal but they couldnt check the 1st portion of my colon, so i was thinking i may have Crohn's disease in the end of my small intestine or beggining of my colon. (i'll see a doc in a month)
The only bad symptoms i have are the bloody D just every time i eat, lots of pain, then i dont eat to stop the pain and get extremly weak.. i have kind of flare ups every several months, these flare ups usually last 1 month, so i think i'll still have this D for 2 more weeks, fun.
It makes it impossible for me to eat, today i only ate cookies, a couple in the morning, a couple at 4pm and a couple some hours ago, i still had bloody D but less frequently and had a lot less pain, i found not eating is the only way to stop the pain.
Some hs ago i was really starving so i ate some rice, and the symptoms were VERY BAD, horribly painful bloody D, really bad.
I found imodium makes the pain more bearable and made the bleeding stop, but as soon as i stop taking it, all the symptoms return. (it doesnt work on stopping the D)
As you can read in my other posts, im not diagnosed with celiac disease, i started a gluten free diet exactly a year ago, it was a strct gluten-free diet in the beggining, then in january i switched to a not so strict diet for personal reasons, still had not horrible immediate symptoms.
In february i ate a lot of gluten cookies for like a week or so, and i got one of this flare ups, i got really sick! i went gluten free again and got the flare up to last only 15 days or so.. this was an improvement since i had only had 1 month flare ups before.
In april i cheated a lot, usually one gluten sandwich or so, i got bloated, "normal" pain (compared with the pain im suffering now) A LOT of very bad smelling gas and tons of intestinal weird and loud sounds, i remember i just avoided gluten because i was ashamed of those weird sounds, because i was going to the uni and all the class was silent and my stomach was like: hbeuceeuri hbeqiracdwxmcrei nnvinemdcowcoiinwekjjm grrrrrrrrrrrrrrrrjniewcedc.. I got those symptoms every time i cheated "lightly" (a cookie, a little sandwich)
Then in june or july i tried to reintroduce gluten once again, eating it progressively but i failed, it ended in another flare up, i dont remember how much it lasted but i think it was less than a month.
I remember that even on a gluten light diet, i got relief from almost all of my symptoms, my hair stopped falling out, the leg cramps and numbness stoped, i gained a lot of weight, the dizzyness also stoped, the rash i had on my feet cleared up, etc, however i still had some symptoms like bloating some days, stomach aches and bearable stuff but i wasnt feeling 100% good so ---->
I went strictly gluten free again i think in oct 1st, and my severe acne cleared up. i think i was glutened 15 days after, but it may just have been a little glutening, just cross contamination, i think it triggered this flare up im still having now, with my classic creepy symptoms, bloody D that wont stop, etc.
Im bleeding and it looks like im dying but my face is clear (lol?) the little in between hours i dont eat and get pain free, im really pain free, no bloating and gas! (maybe a coincidence)
So as you can see, my body reacted or reacts bad to gluten, now i doubt it because of the extreme symptoms im experiencing, but then i look back at all the improvements and its clear for me that i have celiac or a gluten intolerance, besides, my mother, grandma and 2 brothers have tons of symptoms of celiac disease, my little brother has a rush that looks like DH, he gets it on his knees and elbows! my mom has always been anemic and was recently diagnosed with hypothidoidism or whatever its spelled.. so i think i have gluten issues.
I'm so confused because i dont really know whats wrong with my body, i shouldn't be reacting to nothing this way, this only happened when i ate big amounts of gluten before, and these dont look like normal celiac symptoms, i strongly suspect crohn's disease, i have an appointment with my gastro in nov 25, by that time my symptoms will be gone..
This crohns stuff has been driving me crazy for the last couple of days since the idea of a chronic horrible illnes like crohns is the last thing i would wish, i get sad every day (just some hours) when i start to think i'll never be healthy again and that my health is going to get worse and worse with time, that i'll have a higher colon cancer risk, liver and kidney issues (probable) and most of people with crohns eventually need surgery during their lives, then i think of the extremely expensive medications!! there's a lot of stuff going on my mind, mostly because it isnt a disease that can be stoped with the correct medication like other autoimmune diseases, i may get symptom free for some months and suddenly my medication wont work and i'll have to adjust it or change it for another stronger one, then if nothing can stop the inflamation, i'll get surgery, repeat. So there's not basically a way to see if i'll stay as healthy as im now for a long time, some people get retired for disability and i really dont want that, i dont want that life. im 18, i had a lot of dreams, a lot of stuff to do in life and now this happens to me, most people may say you must not but i feel sorry for myfelf!