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Member Since 11 Oct 2013
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Topics I've Started

Crohn's Disease, Help!

28 October 2014 - 08:26 PM

Hello, this is what has been happening to me  http://www.celiac.co...rawal-symptoms/ (sorry for posting so many links!! i do this so i can extend less this post)




My symptoms have not improved yet, i've had diarrhea for 14 days now, and bright bloody diarrhea for 5 days or so, the blood was a very common symptom for me before going gluten-free, i had a colonoscopy one year ago, it was all normal but they couldnt check the 1st portion of my colon, so i was thinking i may have Crohn's disease in the end of my small intestine or beggining of my colon. (i'll see a doc in a month)


The only bad symptoms i have are the bloody D just every time i eat, lots of pain, then i dont eat to stop the pain and get extremly weak.. i have kind of flare ups every several months, these flare ups usually last 1 month, so i think i'll still have this D for 2 more weeks, fun.

It makes it impossible for me to eat, today i only ate cookies, a couple in the morning, a couple at 4pm and a couple some hours ago, i still had bloody D but less frequently and had a lot less pain, i found not eating is the only way to stop the pain.


Some hs ago i was really starving so i ate some rice, and the symptoms were VERY BAD, horribly painful bloody D, really bad.


I found imodium makes the pain more bearable and made the bleeding stop, but as soon as i stop taking it, all the  symptoms return. (it doesnt work on stopping the D)


As you can read in my other posts, im not diagnosed with celiac disease, i started a gluten free diet exactly a year ago, it was a strct gluten-free diet in the beggining, then in january i switched to a not so strict diet for personal reasons, still had not horrible immediate symptoms.


In february i ate a lot of gluten cookies for like a week or so, and i got one of this flare ups, i got really sick! i went gluten free again and got the flare up to last only 15 days or so.. this was an improvement since i had only had 1 month flare ups before.


In april i cheated a lot, usually one gluten sandwich or so, i got bloated, "normal" pain (compared with the pain im suffering now) A LOT of very bad smelling gas and tons of intestinal weird and loud sounds, i remember i just avoided gluten because i was ashamed of those weird sounds, because i was going to the uni and all the class was silent and my stomach was like: hbeuceeuri hbeqiracdwxmcrei nnvinemdcowcoiinwekjjm grrrrrrrrrrrrrrrrjniewcedc.. I got those symptoms every time i cheated "lightly" (a cookie, a little sandwich)


Then in june or july i tried to reintroduce gluten once again, eating it progressively but i failed, it ended in another flare up, i dont remember how much it lasted but i think it was less than a month.


I remember that even on a gluten light diet, i got relief from almost all of my symptoms, my hair stopped falling out, the leg cramps and numbness stoped, i gained a lot of weight, the dizzyness also stoped, the rash i had on my feet cleared up, etc, however i still had some symptoms like bloating some days, stomach aches and bearable stuff but i wasnt feeling 100% good so ---->


I went strictly gluten free again i think in oct 1st, and my severe acne cleared up.  i think i was glutened 15 days after, but it may just have been a little glutening, just cross contamination, i think it triggered this flare up im still having now, with my classic creepy symptoms, bloody D that wont stop, etc. 


Im bleeding and it looks like im dying but my face is clear (lol?) the little in between hours i dont eat and get pain free, im really pain free, no bloating and gas! (maybe a coincidence)


So as you can see, my body reacted or reacts bad to gluten, now i doubt it because of the extreme symptoms im experiencing, but then i look back at all the improvements and its clear for me that i have celiac or a gluten intolerance, besides, my mother, grandma and 2 brothers have tons of symptoms of celiac disease, my little brother has a rush that looks like DH, he gets it on his knees and elbows! my mom has always been anemic and was recently diagnosed with hypothidoidism or whatever its spelled.. so i think i have gluten issues.


I'm so confused because i dont really know whats wrong with my body, i shouldn't be reacting to nothing this way, this only happened when i ate big amounts of gluten before, and these dont look like normal celiac symptoms, i strongly suspect crohn's disease, i have an appointment with my gastro in nov 25, by that time my symptoms will be gone..


This crohns stuff has been driving me crazy for the last couple of days since the idea of a chronic horrible illnes like crohns is the last thing i would wish, i get sad every day (just some hours) when i start to think i'll never be healthy again and that my health is going to get worse and worse with time, that i'll have a higher colon cancer risk, liver and kidney issues (probable) and most of people with crohns eventually need surgery during their lives, then i think of the extremely expensive medications!! there's a lot of stuff going on my mind, mostly because it isnt a disease that can be stoped with the correct medication like other autoimmune diseases, i may get symptom free for some months and suddenly my medication wont work and i'll have to adjust it or change it for another stronger one, then if nothing can stop the inflamation, i'll get surgery, repeat. So there's not basically a way to see if i'll stay as healthy as im now for a long time, some people get retired for disability and i really dont want that, i dont want that life. im 18, i had a lot of dreams, a lot of stuff to do in life and now this happens to me, most people may say you must not but i feel sorry for myfelf!


Gluten Withdrawal Symptoms

21 October 2014 - 03:21 PM

Hello, i wrote this thread some days ago: http://www.celiac.co...oning-or-both/ 


I started a gluten free diet about a year ago before being tested, tried to reintroduce gluten several times and failed, got so sick, etc so i decided i will follow a strict gluten free diet forever as if i have celiac


So i went gluten free again about 1 1/2 months, it was kind of progressive so i think ive only been strictly gluten free for 1 month.


I started having symptoms in the first days of october, then i wrote that thread of the lemon pie (10/7/14) and the ice cream (10/12/14) and ive been having diarrhea for a week or so now, i may have got glutened with some jam, my sister touched it but i thought i was being a little obsessive so i ate it (10/15- 16/14) went to mc donalds (10/17/14) and ive had diarrhea since october 16th.


its not as bad as it was before, only a 3 or 4 times a day, i used to go to the bathroom 12+ times but it doesnt seem to get better. i started taking charcoal today, i dont see any difference but i'll keep taking those pills for some days.


I also have some other symptoms along with the D, some days ago i was very tired, yesterday i had a headache, and today i feel nauseated but im only in real pain after eating, im not bloated all the time! this is really weird..


Does this seem to be gluten withdrawal? i thought it was a glutening, but i should feel better now, 5 days after, right? :/ im kind of lost.


I followed a non strict gluten-free diet for some months and never got D unless i ate really big amounts like a piece of pizza and now i get sick for nothing..


Has anything like this ever happened to you ?

Airborne Gluten, How To Avoid It

19 October 2014 - 09:01 AM

Hi, here where i live it's mom's day so i just came to my grandma's house, they're gonna make asado (a kind of barbaque) they dont care of cross contamination, no problem with that, i brang my own food!! but when i entered the house, surprise surprise!! i saw my grandmother with a package of flour in her hands, she told me she would make empanadas.  im recovering from a glutening i had 3 days ago, i dont want to get worse!

will it be enough if i stay in another room until she is done with the cooking? and then go back to the kitchen, or should i wait some more minutes?

Glutening, Food Poisoning Or Both?

09 October 2014 - 04:38 PM

I did many things wrong in the past 48 hours. 2 days ago, i made lemon pie, i ate 1/4 of it that same night, other quarter in the morning.. i felt like it was too much but didnt feel bad,  i shared it with my family and wasn't clear enough on how to avoid cross contamination.. then i was angry, because they probably glutened my lemon pie, i really wanted to eat some more so i ate around the parts they probably touched (i ate another quarter).


Some hours later i started feeling terrible, that was yesterday and i still feel bad. I know both things i did were bad, i shouldnt have eaten 3/4 of that lemon pie, but it was delicious xD 


I dont know how to recognize my glutened symptoms, so i dont know if i was glutened, or i ate too much lemon pie (probably this is the reason) or what, but i dont feel bad enough to go to the ER. 


Is it normal to feel bad after eating too much lemon pie?  I feel so dumb..

How To Convince My Mom I Need To Be Strictly Gluten Free

25 September 2014 - 10:25 AM

Hi, some of you must know my story, i'm not diagnosed with celiac disase because i started the gluten free diet some months before being tested.


I dont doubt i have gluten issues, i've tried to reintroduce it like 3 or 4 times this year, in all the attempts i ended with severe diahrrea (15-20 times a day, bright blood, pain..) but here's the problem: my mom thinks that cross contamination is exagerated because i tested negative and it's not necessary for me to follow a strict gluten free diet.


She said she is not against me, she thinks she supports me!, some days ago she told me she agrees i have some sort of gluten problem but then told me that when i get symptoms of cross contamination i's probably my head! and i feel so bad because she doesnt really support me! I know she thinks i'm crazy because im following a strict diet without a diagnosis, and she gets angry when i ask het to be more careful when cooking for me, because "i dont have any disease"


I cant really cook all my food because she doesnt give me any money. I've been trying to wash all the dishes, because sometimes she just rinses everything and they eat gluten all the time, and i know rinsing is not enough.


She also takes some snaks while cooking and then touches the food with her gluten hands.


The good news is that i at least got her to buy and use all certified gluten free stuff, and every time she cooks for me (and for everyone) , she uses my special brands.


So my question is, how can i get my mom to understand cross contamination is bad for me even if im not diagnosed with celiac disease? Can you give me some ideas?


I'm still trying to get a diagnosis, next step is taking the biopsy to other hospital and get it analyzed again.


Everything's difficult here where i live, because doctors dont even believe in gluten sensitivity!