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jvdb

Member Since 15 Oct 2013
Offline Last Active Oct 21 2013 01:02 PM
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Posts I've Made

In Topic: Absolute Frustration Getting Tested In Canada

17 October 2013 - 07:31 PM

I agree Porcelina, I will be especially grateful for the gastroenterologist referral if this does not end up being celiac since at least he will know the next step in figuring this out. What frustrates me is that three years ago when I told him about all of my symptoms he just said "probably just ibs" and didn't even ask if I wanted to look into it. Because I have experiences these symptoms for so long they seems normal to me, however looking back on it if a 22 year old girl tells you she gets abdominal pain, extreme fatigue and 80% of her bowel movements are diarrhea that is NOT normal or something to be brushed off.

In Topic: Biocard Home Test - Faint Positive? You Be The Judge

17 October 2013 - 07:21 PM

I won't stop eating gluten until I have gotten satisfactory test results. Which to me means at LEAST proper blood test results. I has been ten days since my blood was drawn and no word yet. If the result is positive I will speak to my dr about endoscopy but may or may not have it done depending on how long the wait will be. If I have a positive test and feel better gluten free then that is all the answer I need. If my dr pushes for endoscopy and the wait isn't too long I will do it to make the diagnosis official.

I my blood test ends up negative I will likely try gluten free anyways just to see if it does make a difference in how I feel. If I feel much better then great, if not then we are back to square one. Although celiac sounds like the perfect match to every symptom I have experienced, there are still other possible causes and perhaps it isn't gluten at all. I am keeping my mind open but would really like to get to the bottom of this. As difficult as it is to go gluten free I much prefer the idea of a dietary change to solve my problems rather than some of the possible alternatives such as crohns or the dreaded "we don't know what is wrong with you"= IBS

In Topic: Biocard Home Test - Faint Positive? You Be The Judge

17 October 2013 - 05:19 AM

Thank you to both the answers. I'm well aware that it could be simply the moisture revealing the area that would react simply due to a possible change in texture on the paper or who knows what. It is hard to see in the pictures especially, but there is no doubt the line did exist. From my experience reading pregnancy tests I know that often people would think they had a faint positive due to a situation like this, however I also know from my own experience that a line this faint can really also be a faint positive ( my husband thought I was imagining things when I showed him the test for our daughter, it looked very similar to my biosure test lol)

Nvsmom, I too had issues getting enough blood into the tube, it filled to about 70% despite having more blood ready on my finger. I have actually emailed the company about this and requested the possibility of receiving a retest since the purpose of purchasing this test out of pocket was to GET answers not to raise more questions.

The line did start to develop about 5 minutes in and I was able to see it at the ten minute mark. My husband and sister both agreed that they saw the line however they looked at the test an hour and two hours later when the line had darkened even more (you are not supposed to read it after 10 minutes, so them seeing a line that late is not really that helpful.)


In Topic: Absolute Frustration Getting Tested In Canada

15 October 2013 - 05:53 PM

Glucose test is not for Celiac! It's has to do with blood sugar. I'm sorry.

Sorry BAD TYPO, definitely did not mean glucose.  It said (Celiac) in brackets too:)

 

 

....Wow.  I'm a registered nurse, I definitely know the difference but feel pretty stupid that I can't spell properly tonight.


In Topic: Absolute Frustration Getting Tested In Canada

15 October 2013 - 05:08 PM

Thanks Porcelina,  its too bad people have to pay out of pocket even when technically Canadian healthcare should cover it.  I know it IS covered in Manitoba and I delivered the requisition to the lab myself and clearly read that "Gluten Sensitivity". 

 

It is so frustrating that doctors don't seem to care at all.  Do you think I am asking for a blood test that will likely lead to an endocospy because it sounds like FUN?  Do you think I WANT to stop eating bread, pasta, pizza and countless other things just because I FEEL like it?  The only reason I have been pushing so hard for this test is because I know what I am experiencing is not normal and I'd prefer Celiac over Crohns, Colitis, Colon Cancer or anything else and I know that it is a smart first step in figuring out the cause of all this suffering.  "Oh It's probably just IBS" has got to be the laziest excuse ever, sorry I just told you I have gotten diarrhea (among other symptoms) nearly every day for 10 years... thanks a lot.

 

Sorry for the vent but I am actually that the very system I work in is so inefficient, it is the frustration talking now.