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Member Since 24 Oct 2013
Offline Last Active Oct 28 2013 12:11 PM

Topics I've Started

Anemia, Gi Symptoms, Negative Antibodies

24 October 2013 - 06:07 AM

Hi All,

I am extremely frustrated with my gastroenterologist.  I am not sure if there is an issue with diagnosing celiac or really what the underlying issue is.

I have had abdominal pain ranging in severity of a few hours to a few days.  This abdominal pain has been going on for years, and I was often told it was due to lactose intolerance. I avoid lactose, so I was confused why that was still the diagnosis. 

In addition to abdominal pain I also developed severe acid reflux following consumption of inert foods like english muffins, pasta, tortillas or anything in between. 


I went back to the doctor 2 months ago for the acid reflux and they did blood work and were actually willing to work me up this time. 

I was diagnosed with severe iron deficiency anemia.  Hgb=6 and Ferritin at 1

I was rushed to the hematologist and they started iron infusions, which I feel fine.

They were immediately worried that I had Celiac and did all of the blood tests, but all of my antibodies are negative.

I decide to try coming off gluten, and I have been 98% gluten-free for the last two months and feel better than I have in years.  No abdominal pain and no acid reflux.



The gastroenterologist says that Celiac would be the logical answer with the abdominal pain, acid reflux, and iron deficiency anemia but since my blood tests were negative he will not diagnose me with Celiac disease.  However, he had no cause for the iron deficiency anemia or acid reflux. 


Endoscopy and Colonoscopy were negative. 

has anyone had a similar symptoms?  I would just like a definitive diagnosis.

I am going to stay gluten-free, but it would be nice to have a diagnosis.