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skullgrl

Member Since 05 Nov 2013
Offline Last Active Nov 25 2014 04:58 PM
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Posts I've Made

In Topic: Feeling Pretty Sad About The Whole Gluten-Free Thing Right Now

23 November 2014 - 06:00 AM

I've had B12 deficiency/low iron for years. I just give myself B12 injections now. They work great. You may be able to find lactose free yogurts. 

 

Edit: Oops, pardon the last sentence. I didn't realize it was an allergy! My apologies.


In Topic: How Do I Cope?

25 September 2014 - 04:37 AM

Some tips, since everyone has covered the basics:

1. Don't apologize. You bring your own food and enjoy it, if other people are offended by your health problem it's their issue, not yours.

2. Don't be forced into eating something you aren't sure about. People generally won't do things like, "Oh but Mr. Diabetic, it's just a little sugar in this cupcake, you'll be fine!" "Oh but Ms. Peanut-Allergy, it only touched a peanut a little, I can just wipe it off!" Not OK there, not OK for Celiacs.

3. Find joy in the little things.

4. You will mess up, it sucks but it will get better again.


In Topic: Finally Broke Down And Filed A Complaint

26 August 2014 - 11:42 AM

If anything ever happens to you again that happened with the appendicitis, and you are in serious pain (obviously, you were, I'm just saying for others who may have problems in the future) or for whatever reason you are in a hospital and they aren't treating you properly and you know something is wrong I have a very simple solution that has worked for both my Mother and I.

 

Start screaming. And I mean screaming. Have you ever wanted to vent all your earthly frustrations like when you were a baby? Do it. I waited over 3 years for a referral to a rheumatologist. My GP (at the time) wouldn't give me one, no walk-in clinic would nor would anyone at a hospital (and there were no new GP's around). Fastest referral I have ever gotten, and he actually figured out what was wrong with me (not the Celiac disease mind you, but sorting out the nerve pain condition was good enough).

 

If you are in trouble and no one is listening, then you have to be louder. You don't have to be rude but you do need to advocate for yourself. In Emergency, if you don't have a visible representation of how bad things are then you need to tell them. 

 

Fun Fact: 2 Hours in my Dad found the Emergency doctor asleep a few halls over, on a bench. 


In Topic: Not Sure What To Do.

15 August 2014 - 12:40 PM

Make sure they are monitoring for psoriatic arthritis, if you have psoriasis.  


In Topic: Jason Certified gluten-free Facial Products

02 August 2014 - 02:42 AM

Thanks for sharing! I think I might try them.