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Member Since 29 Sep 2005
Offline Last Active Feb 26 2015 09:53 AM

#840444 Liver Problems In Celiac

Posted by on 02 December 2012 - 03:37 AM

I also have liver issues . I was diagnosed with gilbert's disease becasue of elevated level of unconjugated bilirubins. My liver enzyme levels were also all over the place. My GI doc said if my emzymes kept getting worse he would want to do a liver biopsy for liver disease as a precaution but he felt it was because of my celiacs. My enzyme are still off somewhat but not getting worse , and my bilirubins are still elevated. . The main thing is they are not getting worse.

1956, I have also been diagnosed with Gilbert's, my bilirubin fluctuates as well as my enzymes. I was told by the doctor to be careful not to get dehydrated, as that would cause it to dip.
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#840410 Liver Problems In Celiac

Posted by on 01 December 2012 - 07:20 PM

My liver enzymes still fluctuate between normal and slightly elevated after over 7 years on the gluten-free diet. I had a work up 3 years ago--lots of blood work, ultrasound, endoscopy-- and the GI basically said it was "sprue related", as no other cause was found.
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#840154 The What's For Dinner Tonight Chat

Posted by on 30 November 2012 - 06:33 AM

actually it does get better if it leads to healing

So true. It is very frustrating at first, and the longer you have been ill before diagnosis, the longer it can take. I did the whole allergist testing/elimination diet stuff and stayed gluten, dairy, soy, legume, tapioca, coconut, grain lite, and corn free for 5 years. Not fun, but walking that thin line allowed me to feel almost well more days than not.

As I slowly (the operative word here) had more good days than bad, I tried adding dairy, which to my amazement went well. Then corn several months later. I figured at that point I had more variety and was satisfied. Earlier this year, I tried the dreaded (for me) legumes and I find if I limit to a couple times a week, I'm good. The biggest surprise though was tapioca--which had previously caused me such pain that I avoided it like gluten. After gingerly trying some in a cookie, I was floored to discover I was now ok with it.

Soy (which I would avoid anyway) and coconut are still no go's, but who cares! My point is, healing is taking place--even if it doesn't seem like it. It just takes (a lot <_< ) longer for some of us. Threads like this just go to show how resilient, creative, and tough you all are--eating so well on what is available to you. I love it!! :D
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#835019 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 07 November 2012 - 10:51 AM

Was eating lunch, suddenly started coughing and salad came out my nose :( :lol:

It is snowing! :unsure:
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#834983 Myths About Gluten In Everyday Non Edible Objects?

Posted by on 07 November 2012 - 08:33 AM

As for new people, I'm sure they're not dim-wits. It is nice to read different reactions and make up your own mind - not alone in the struggle.
Probably put my foot in it :ph34r:

Not at all, Lady:). I think you summed it up very nicely, and I wholeheartedly agree.
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#834932 Myths About Gluten In Everyday Non Edible Objects?

Posted by on 07 November 2012 - 04:49 AM

I don't look at buying gluten free shampoo as adding stress, I look at it as eliminating it.

Ding Ding Ding

I use gluten free personal care products. Personally, when I'm in the shower, I want to shower and not worry about getting shampoo in my mouth as the water runs down my face.
Early on, I was glutened by using a hair gel that contained wheat. (Wasn't diligent enough to wash it all off, I sometimes chew on my nails a bit) No question, and if my hair had been long and blew onto/into my mouth as it does now on occasion, it would have been a direct hit.
When a person new to the gluten free lifestyle asks the controversial topical question, I say do what is best for you. If you can use your gluten containing stuff without issue, go for it. You can always try to eliminate it if you have continuing reactions after you are sure your diet is clean and see if it makes a difference.
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#832703 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 27 October 2012 - 06:14 AM

I think we have had several phlipovers causing this storm.

I'm not seeing the smiley guys!

Several phlips would make sense (and get me off the hook). The storm itself is an unfortunate hurricane/nor'easter combo--no?

The smiley guys appear across the bottom of the reply box when you click on the icon.
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#832462 gluten-free Cornbread/ Cornmeal

Posted by on 25 October 2012 - 01:16 PM

I use Gluten Free Pantry.
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#831839 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 23 October 2012 - 01:38 PM

Ummmmmmm. . .. .. .. . ...:unsure:... . .....why has Patti's post count stayed at 19,993 for the past three pages?..... . .Perhaps word has gotten out to Skaughtt, and to ward off impending phluid apocalypse he has put a stop to the automatic post-count..... . ...

:unsure: Tis odd. Oh well, it's making me kinda nervous anyway. :lol: I tend to lose track, and I want the big 'un to be on this thread :D

After all, I couldn't have done it without ya's B)
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#826027 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 28 September 2012 - 11:59 AM

Hee!! Pointless. <snort>
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#824187 What's Your Go To Recipe

Posted by on 18 September 2012 - 01:42 PM

I'd have to say breakfast for supper too. I make pancakes with either bacon or sausage. I always have Gluten Free Pantry Pancake mIx in the pantry.
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#824080 Glutened By Vapors

Posted by on 18 September 2012 - 05:32 AM

Chopper, I'm not gonna beat a dead horse here but if you do have evidence to support your theory, I wouldn't consider it an "I told you so", rather information that would benefit all of us. I'd be very interested to read what you have.
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#823704 Glutened By Vapors

Posted by on 15 September 2012 - 07:46 AM

I've been gluten-free as long as Lisa, and agree with her completely as well as what others have posted. As far as personal experience, I cooked regular pasta a while back (I normally wouldn't have allowed it in my kitchen but this was a special circumstance). My head was directly over the pot and when I drained it, the steam was right there in my face. No problem whatsoever for this sensitive gal.

I think in this case, it is possible that the problem was a result of cross contamination but sometimes it's next to impossible to figure out the exact cause.
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#822850 Had To Laugh - Most Idiotic Blog Ever

Posted by on 11 September 2012 - 04:07 AM

She probably tested originally through Enterolab, which can detect a gluten intolerance but can not diagnose Celiac.
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#822151 Getting Worse

Posted by on 07 September 2012 - 01:11 PM

This is going to be a quick one. I can't stay out of the bathroom. I just ate a little chicken and a sweet potato and it has gone right through me. I never had these kinds of symptoms before. Is it STILL from the CC'ed rice I had a couple of weeks ago? And why is it getting worse now? I haven't eaten anything BUT chicken and sweet potatoes for several days now. Why am I getting sicker by the minute?

I have a full lesson schedule today. I can't AFFORD this!

If it's getting worse now, after 2 weeks glutened, it may well be a virus. I don't know where you live, but here in NJ, there has been a nasty stomach virus going around. My non-Celiac son came down with it.

Hope you feel better soon!
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