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Member Since 29 Sep 2005
Offline Last Active Feb 26 2015 09:53 AM

#822100 My Frustration Level Is At An All Time High

Posted by on 07 September 2012 - 09:46 AM

Thanks for the response, IrishHeart.

I haven't eaten out since that post of many weeks ago.

Since then, I have eaten ONLY steamed, unseasoned, broccoli & cauliflower, fresh unseasoned beef, chicken, and pork, and Applegate organic, grass-fed beef hot dogs that are labeled as gluten-free, as well as casein free, Ocean Spray Cranapple juice, in addition to water.

I have an incredibly small possibility of CC. I have my own cooking utensils, dishes, and flatware. My roommate uses the kitchen almost not at all - but when he does he is respectful of my space.

Out of the blue, last week, I suddenly was getting symptoms from my daily latte made with 3 ounces of whole milk. I cut that out and recovered. Since cutting that out last Friday I have been back on track until yesterday when I had a banana and my body reacted as if I'd eaten a gluten pizza.

My reaction was just what I listed - brain/vision fog, severe joint pain, very tired, bloat, constipation. In the research I did last night, I noticed the list that you mention - I'm not having those symptoms.

That is my frustration, I guess, I am very confident that there is not a possibility of gluten contact, yet my reaction (in a very very limited diet)is in line with a gluten contact.

Hi Ron, I understand. I had an awful time at the beginning--I was so careful and still had reactions where I couldn't pin down the cause. I even sought the help of an allergist and asked him to run food intolerance testing but he refused, saying an elimination was really the best way to figure things out. He told me that the tests can produce a lot of false positives, and that people at that point have to do an elimination diet of the positive foods. Anyway, that's my experience with that. I did do an elimination diet and discovered that at the time I couldn't tolerate corn, soy, dairy, legumes, coconut, eggs, and tapioca :( .

It is 7 years later, and I have been able to add about half of these back. It gets easier, really. :)

In looking over your present diet, I wonder if possibly the few (albeit safe) processed foods might be contributing. I know I would not have gotten away with the hot dogs or, believe it or not, the juice. Again, not saying they are not safe, but anything processed would put me right back to my classic symptoms as I was still healing.

I had to go down to fresh meats/poultry, potatoes, olive oil, fruits (except citrus), veggies (except legumes), spring water, and tea. Salt only for seasoning. I stayed there until things settled down and then added one new thing at a time--like rice, eggs,etc. Some of us have to go very slowly.

Another thing that made a difference for me was going to unscented personal care products, unscented laundry products, and basic Castile soaps.

It's a pain in the patoot, but you will get it figured out. A simple food journal can be invaluable in tracking your symptoms and how they relate to your diet.

Best of luck!
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#821253 Cat Advice

Posted by on 03 September 2012 - 08:23 AM

Cats think of you as staff.

Boy, that's the truth! :P

Karen, the kneading is a soothing thing for cats, as Jess said. I'm so happy you and the wee one found each other :)
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#820329 The 100% Positive Thread

Posted by on 29 August 2012 - 09:35 AM

I'm still alive.

Thank goodness for that :)

For me, gone is the anemia that I had for years (despite supplements), tingling and numbness in my lower legs, face and arm, night sweats, constant nausea (when I worked outside the house I never ate breakfast because of it), chronic diarrhea, fatigue, brain fog <_< , easy bruising, in the last 6 months before diagnosis unexplained weight loss. My gynecologist poo-poo'd the idea that my endometriosis was linked somehow but I wonder.

I lived with all that for 20 years--medical tests always came back normal so I managed to work around it thinking it was just me.
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#818785 Newly (Mostly) Gluten-Free And Acting Wacky

Posted by on 20 August 2012 - 02:22 PM

I agree with Karen, I think he needs a workup to determine what, exactly, is going on. Best of luck to him :)
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#815325 Irishheart, Come Home!

Posted by on 01 August 2012 - 10:26 AM

Ha, then you understand my less than stellar computer skills.... add that to a temperamental laptop and it makes for some pretty hard to read posts.

Glad you were able to decipher it:)
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#815320 Irishheart, Come Home!

Posted by on 01 August 2012 - 10:07 AM

So please, let us know if you're alright.

She posted here just this morning--


(scroll up one--sorry, computer acting up)
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#815161 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 31 July 2012 - 06:30 PM

Wow! Probably a blessing in disguise that you had to carry your lunch around with you. You could get lost and wander for hours;)
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#812107 Hot Enough For You?

Posted by on 19 July 2012 - 09:55 AM

"hot town, summer in the city......."

I know that you know that song.

Yep, old enough to remember the hot a/c-less summers and the song :lol:

... I got a couch........

A Big Comfy Couch? :P

....probably dating myself again..... :unsure:
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#807096 Unusual Combinations

Posted by on 28 June 2012 - 02:46 PM

Mmmm I can't do peanuts anymore but I loved peanut butter and banana sammies on toast.
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#801957 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 09 June 2012 - 06:10 AM

This is a hard issue to come to terms with, and that sucks. We can't just blow it away. :ph34r: :ph34r: :ph34r:

<snort> B)

Did I hear someone summon the Goddess of Altoids? :P

Hey--it's old home week! Hi Karen :)
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#801850 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 08 June 2012 - 06:02 PM

I think it was the mini ones that had gluten?
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#798333 Going Gluten Free With Your Pets

Posted by on 25 May 2012 - 11:32 AM

Our cat climbs on the table, so her tracking wheat around would be a problem for me.

Ours too. We use Scoop Away but as Peter said most are fine.
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#776077 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 24 February 2012 - 06:50 PM

and has really big shoes. B)

B) Well now....

I could view it using the link--must be because I'm on FB and on Lisa's friend list?
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#757129 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 15 December 2011 - 06:02 PM

As Katherine Hepburn said "growing old is not for sissys".

Ain't that the truth!
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#749291 Pres Obama

Posted by on 20 November 2011 - 06:30 PM

I'll 'plus' ya mom!

Me too ;)
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