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tarnalberry

Member Since 30 Dec 2003
Offline Last Active Jan 19 2014 08:47 PM
*****

#885093 Is This Far-Fetched? Breastfeeding Question

Posted by tarnalberry on 20 August 2013 - 07:29 PM

I would find a way to try to take one Sunday off (short staffed or no), so you have a little more information before quitting.


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#883190 Am I Crazy?

Posted by tarnalberry on 06 August 2013 - 01:02 PM

What was your full testing?  Only one IgA antibody, and if so which one?  Or were there others?  Did they do a total IgA test as well?

 

I would strongly urge you to get a copy of your results.


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#882417 Baby Needs To Gain Weight Need Suggestions Advice Please!

Posted by tarnalberry on 01 August 2013 - 08:53 PM

My daughter was diagnosed 2 months ago..she is just soo tiny..at birth she was 8.14lbs shes 14 months today and 18.6lbs she hasn't gained much weight since 6 months old (at 6 months she was 17.6lbs) she goes for bi weekly weigh ins at the drs sometimes she loses weight sometimes its the same..its been such a battle. Shes been gluten free for 2 months and I was really hoping to see some improvement in her weight gain by now! I feel like im doing something wrong...the thing that I don't understand is she eats like a 300lb man..she out eats her 3 year old sister!!! What gives?!? I cant posiablly feed her any more then I am if shes up shes eating!! any one with celiac babies have this issue??

 

this is a tough time for them to gain weight period.  they're starting to walk, they're going through cognitive leaps... they're busy!  they're burning a lot of calories!  if you're not seeing her regress regularly, I wouldn't freak out.  though I do understand you're concern!

 

what are you feeding her?  a lot of toddlers this age end up eating a lot of crackers, and cereal, and freeze dried fruit and so forth.  these are not calorie dense foods, and so she may need more things like avocado (if she can do it), nut or seed butters, eggs, cheese/full-fat yogurt (if she can do dairy), rich fish (salmon) and meats, veggies cooked in lots of olive oil, nutritious pancakes (flax meal and almond flour!!) with lots of butter, things made with coconut oil, etc. 


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#881826 We Need To Start A Thread On Stupid Stuff Doctors Say!

Posted by tarnalberry on 29 July 2013 - 06:53 PM

They don't take a " vow" to not say anything bad about other practitioners. There are internal hospital ways to handle things. For instance, we took away a surgeon's privileges to do anything more complicated than a tonsillectomy. He was good at the simple procedures but not the harder stuff. Every death in a hospital is reviewed by several people. Believe me, if people in the hospital saw a nurse or a doctor doing the wrong thing , it would be reported and taken care of.

There are laws that keep a medical professional from discussing someone's medical experience with other people. There are laws against slander/ libel that keep people from saying bad stuff about another person.

 

http://www.huffingto..._n_3653114.html

 

The research disagrees with the statement "if people in the hospital saw a nurse or a doctor doing the wrong thing , it would be reported and taken care of".  

 

In particular:

"Researchers surveyed more than 3,200 doctors, nurses and midwives on labor and delivery teams, and asked if they had observed a colleague taking a shortcut, such asnot washing hands or failing to change gloves. The health care providers were also asked if they had ever witnessed a colleague having problems with his or her job performance, being disrespectful to a co-worker, or lacking the skills or knowledge needed to do his or her job.

More than 90 percent of doctors and midwives, and nearly 100 percent of nurses, said they had observed such problems within the last year."

And:

"Most said they did not directly speak to the colleague who caused the problem because they worried he or she would become harder to work with, or because they did not want to start a conflict in front of a patient. Many participants said they did speak with someone, such as a manager, about the issue, but the manager did not always speak to the person responsible for the behavior."


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#881348 Need Some Advice

Posted by tarnalberry on 26 July 2013 - 07:08 PM

 I've been trying to figure out how to politely respond during the majority of my daughter's bedtime.

I'm sort of at a loss.

 

Your boyfriend is acting like an immature child.  If he can't accept that something that makes him different is going to make him different, well... he needs to grow up.  Don't get me wrong - I realize that isn't easy.  But five years?!  He's had to deal with this for five years and he still can't find composure and confidence in stating his basic needs clearly and without embarrassment?  Yeah, I do call that a hold-off-on-the-wedding sort of red flag.  (Maybe not a dump-the-guy-already red flag, but still a red-flag.)  If he can't graciously handle someone doing something small for him - and for themselves ('cause having a gluten free kitchen makes YOUR life easier too) - then he is acting like an immature child.  And if he was new to celiac, or much younger, I'd cut him more slack.  But he's not, and he's not.

 

You made this statement: "He said that he feels "weak" and "vulnerable" when I purposely eat gluten-free." And while it may be true, it is not your fault that he feels these things over a valid choice of yours.  Your choosing a particular food does not actually make him anything.  It's your own choice.  Would he feel weak and vulnerable if you ate ice cream?  If you ate a salad?  If you ate a grilled steak, with roasted potatoes and veggies?  All of those things are gluten free.  It's ridiculous for him to blame YOU for his own personal response.

 

You write: "The face he makes when I do that though, I just have to sarcastically apologize for loving him. One of our friends even said, "It must be tough having someone care about you."" Apparently, he's passive aggressive too.  (But hey, you're being passive aggressive in this situation as well, as are your friends, so it all rounds out, right? :P)  He sounds *deeply* insecure about a basic part of himself.  And, I don't think that conversations between the two of you are going to magically snap him out of it.  So, and I realize this sounds like a leap, and I could be reading between the lines, but if this really has been going on for three years, I'd encourage you guys to go to couples counseling so you can get tools for productive discussions and problem solving as a couple.

 

And, speaking as a woman married for 11.5 years, I don't think it's really entirely "controlling", to be doing something other than just letting him gluten himself and letting him be.  Maybe it's because we have a kid now too, but if you're in a committed relationship, you aren't *just* an individual, you are *also* part of a dyad (a single thing made of two).  His choice to get glutened and feel like crap DOES affect you - it affects your emotional life (especially if he gets moody when glutened), it affects your relationship (especially if he's going to pull the "don't tell me what to eat - why didn't you stop me from eating that" crap), and it affects your social/active life (if, for instance, you have to cancel plans because he's not feeling well enough).  It's not that you each get to control each other (one end of the spectrum), or that you can't offer any guidance to each other either (the other end of the spectrum), but there is a middle ground where you both have influence over each other, and you both have the responsibility to support each other.

 

Anywho... that was long winded.  You guys have stuff to work through.  He has stuff of his own to work through.  Be patient and gentle with him, but don't do yourself disservice either!


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#881340 Going Gluten-Free How Bad What Is At First?

Posted by tarnalberry on 26 July 2013 - 05:56 PM

Oh and for my sleep, I go to bed at the exact same time every day except on weekend where I allow myself to sleep 10-14hours I take 10mg of melatonin 1h before and another 10mg right when I step in bed, when I do that I feel so lethargic that I actually fall asleep every time. Otherwise without melatonin I would stay awake most likely and get only like 6 hours. I do wake up at a minimum of 5 times per night, either cause I gotta pee or THINK I gotta pee or just wake up from a dream.

 

Yet I sleep rather well despite waking up so often again thanks to melatonin.

 

You seem to have an answer for everything, so I don't know that you'll listen to this, but no, you don't sleep well. And, all efforts aside, your BS'ing yourself if you think that your getting good quality sleep.  Chronic sleep deprivation can occur even when you get a large enough quantity of sleep, if the quality is low.  You've spoken nothing to the quality (how deeply into rest did your brain go?).  But you have spoken about the continuity of sleep (you don't have it), which is one of many things that prevents you from getting into the deeper stages of sleep.  Those deeper stages of sleep are necessary to repair the body and brain and to feel fully rested.  (I've gotten to do plenty of research on the topic as well as first hand experience as I have a kid who took nearly two years to let me get more than three consecutive hours of sleep.)  It is feasible that the poor sleep alone is causing the fatigue (though I'd bet other things are going on too).

 

I would encourage you to work on getting off melatonin (it has its place, but it is a known side effect that it can leave you tired.  But I would also work on adjusting your body so that you don't have to pee so much (alter when you drink, alter what you drink, adjust the temperature (sleeping cold encourages more peeing), and so on - possibly even talking to your doctor about whether or not you think you have bladder irritation that is causing this).

 

I don't see those occasional glutening to be that bad, I had digestive issue for 3 hours after being glutened last week followed by a mid headache but later during that day I was fine.

 

Again, BS.  The auto-immune reaction when exposed to gluten is self-sustaining for up to two weeks.  If you're getting glutened three times a month, your body is *never* in a state where it's fully devoted to recovering.


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#881054 Toddler W/celiac?

Posted by tarnalberry on 24 July 2013 - 06:59 PM

I wonder if your docs aren't taking you seriously.  I'd encourage taking pictures of the explosions and bringing them with you to the appointment.


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#880188 Pretty Sure Im Slowing Dying. - Past Gluten Free

Posted by tarnalberry on 18 July 2013 - 09:21 PM

...

 

I don't see what I am doing wrong, I try to get my 9 hours of sleep and the last 2 days I slept about 5-6 and last night 6-7, it gets very difficult to fall asleep due to many external factors like my arms being extremely numb, nose's noise and simply not falling asleep because of high stress. Which btw, stress has also been the highest it has EVER been in my life.

 

From low energy to having to find a job because i was only working 2 days a week and since those last 2 days, I been working a new job that will be full time but I don't see how I'll be able to pull this through from feeling so energy deprived.

 

...

 

My daily meals consider of the following.

 

Wake up-Spaghetti sauce: Beef,Tomato,tomato sauce,Mixed colored Peppers,Garlic, spices. (All nutritions that are Pro Blood Type diet, which btw I am O, not sure if + or - but both parents were +.

1H Later:Coffee with Coconut oil and milk, and organic honey.

2H Later-(Corn, Amaranth,flaxseed, buckwheat) cereal, Coconut milk, frozen berries(blueberries,strawberries,black cherry and mango) with cinnamon and almonds that make sure not to mentioned any presence of wheat.

Follow with

3H Later-1 Chicken breast with brown rice mashed with sweet potatoes and salad with butter and cumin.

3H Later- 2 Slice of Glutino Corn bread and others ingredients with 3 organic eggs.

Then if I have I have time I'll also have Rice Noodles 3hours later.

 

So that's it, I don't get how I feel so tired, I eat my proteins my fruits and avoid the bad stuff, yet here I am, like I am going to die.

 

So hopefully anyone can help me figure this out, thanks.

 

Why do you have numb arms?  What's wrong with your sinuses?  What are you doing about the stress?

 

While I'm NOT going to say "it's all in your head", chronic stress can cause very, very real physical, biologically based symptoms.  But all the diet changes and exercise in the world won't help much if you don't address the cause of the stress and your own personal resources for handling it.  Meditation, therapy, cognitive modification... there are lots of ways to work on changing your perspective on stress that can physically reduce your stress.  (Various types of meditation, for instance, have been shown to lower blood pressure and cortisol (a stress hormone) levels, as well as change cognitive patterns.)  Removing partiuclalry stressful triggers is also important, and sometimes dismissed as being "impossible".  (For me, it was my job as an engineer and not keeping it cut our take home pay in half, but it was absolutely worth it.) 

 

You may also have real, physical complications - like the nerve issues that are causing numb arms.  (It points to something going on with the lower vertebrae of your neck.)

 

I also see a fairly high carb diet here. Not super high, but might be an issue. I also see far less than 5 servings of fruit and vegetables (think 3 and 3, really), and I know that not getting those makes me feel much more fatigued.


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#876054 Mental Health?

Posted by tarnalberry on 22 June 2013 - 07:39 PM

Nothing wrong with being family centered for a while.  Perhaps a friend can come over and be a part of the family for a day - so she's not totally inward centered, but she's still in her comfort zone?  Heck, even playing with the family requires a lot of outward facing attention, so I wouldn't worry too much.


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#875740 "mild" Celiac

Posted by tarnalberry on 20 June 2013 - 09:05 PM

There's a common saying around here about having "a slightly positive result" or a "mild case" of celiac.  It's like being pregnant - you can have a slightly positive test on a pregnancy test - you're still pregnant.  You have a "mild" case of celiac, then you have celiac.  Great, you don't have a lot of damage!  But still, celiac.

 

Anywho, welcome to the forum!


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#874817 Celiac Equals A Lonely Life

Posted by tarnalberry on 15 June 2013 - 06:53 PM

It IS hard mentally.  But so are crappy friends, and that seems to be what you've got there.  I'd encourage you to tell them "please don't exclude me just because I have to eat differently.  it makes me sad and I miss seeing you."  But I'd also encourage you to find new, better, friends.  'Cause you're aren't being very friendly. :(


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#874655 The Stuff Doctors Tell Their People...sad

Posted by tarnalberry on 14 June 2013 - 05:55 PM

You want to read bad stuff people's docs tell them (though not about celiac), check out www.myobsaidwhat.com.  But don't check it out if you're having a baby soon, or you might scare yourself.


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#872843 Battling No Food

Posted by tarnalberry on 05 June 2013 - 12:57 PM

Firstly people need to calm down on the judgement and rhetoric, so I didn't answer in a week so what!

My doctor diagnosed a Coeliac at 86 calm down on the you'll be dead by 30 business, genetics overiding factor in everything why do some smokers die at 30 and some at 90 genetics.

 

Yes planning is working I've been Gluten-Free for a while now somewhere between 2 and 4 weeks and it's just getting easier.

I am not definded by Coeliac and reserve the right to disregard it at any point I so choose.

Hasn't anyone seen fight club fridge? This is what the fridge of a bachelor generally looks like.

 

If you don't want to take responsibility for who you are and what your body is, ok.  But if you make that choice - and you're right to make that choice - don't go whining about the crappy outcome.  You made your choice, hence, you also accepted the consequences.  If you don't want to take responsibility for stocking your fridge at all, ok, but don't complain about being hungry, it was your choice to go hungry.  If you don't want to take responsibility to eat gluten free, ok, but don't complain about feeling unwell; it was your choice to feel unwell.

 

I know I sound unsympathetic.  And to a degree I am.  It's not "feathers ruffled" at all, it's just, why should I bother helping you when you clearly don't take any personal responsibility?  I require more personal responsibility out of my three year old.  (I'm not kidding either - not on big things that she's not cognitively able to handle, but things that are within her developmental range.)

 

If you want ideas on how people do take responsibility with minimum effort, great!  We can do that.

If you want ideas on how people find resources to make it easier to stay minimally responsible, great!  We can do that!

If you want ideas on how people deal with the psychological side of being dealt the crappy hand that is celiac, great!  We can do that!

 

If you just want to act like an irresponsible loaf who doesn't like that actions and choices sometimes have unpleasant consequences... Well, go ahead, but you'll probably get a lot more judgement, so be prepared for that consequence from that choice.

 

(And, by the way, the single guys I've known over time have a FAR better-stocked fridge than that.)


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#871522 gluten-free Oats Have A 1 In 20 Chance Of Causing Celiac Attack

Posted by tarnalberry on 29 May 2013 - 07:23 PM

It isn't super well known, unless you are on a forum like this, but yes - I've seen in the scientific literature numbers between 5% and 10% of celiacs will react to avenin (the oat protein) because it is structurally similiar to gliadin (the wheat protein in play for celiac).  Other celiacs can eat them just fine.  It has nothing to do with the company in particular.

 

OP, I'm sorry that you got bitten by this and didn't know about this fact.


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#870392 Struggling To Get On Top Of Celiac

Posted by tarnalberry on 23 May 2013 - 07:03 PM

If she is in school (preschool, grade school, any kind of school), there is a risk of contamination there.  (Sensory tables and playdoh for the younger one, snack food contamination for all of them). 

 

If you are buying *any* processed foods, there is a (extremely small) chance of cross contamination, which you might want to elminate for now.

 

If you are using gluten free oats, you probably want to ditch that for a good long while.  10% of celiacs react to even uncontaminated oats because the protein molecules in it are very similar to wheat protein.

 

Keep trying! You'll get there.


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