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Member Since 30 Dec 2003
Offline Last Active Jan 19 2014 08:47 PM

#869347 Celiac Signs In 3 Year Old ~

Posted by on 17 May 2013 - 12:00 PM

You have an appointment in three days - I would keep her on gluten until then, and do everything you can to get her blood tests, but know that they aren't as reliable in kids. (Under two is the really difficult gae for blood tests.)
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#868279 Battling No Food

Posted by on 12 May 2013 - 12:40 PM

The fridge is full of goods all with Gluten, but you're starving and you haven't eaten all day.

No shops are open


Discuss your next decision here and your reasoning...


Seems to be my downfall alot. My general decision is given in to hunger pains and pray for a better tomorrow (it never comes)


1) Find a 24 convenience store that sells nuts and bananas or apples.

2) Knock on a neighbor's door and see if they have a piece of fruit you can eat.

3) Don't eat, get up early the next day, and go shopping to fix the ridiculous state of food in the house.


Ok, #3 is a little snarky, but also meant a lot seriously.  If there is literally *NOTHING* in your house that doesn't have gluten in it, you have a very poor diet (and poor emergency planning skills)..  (Oooo... Come on people, flame me!  This is totally flame worthy!  I'll stand by it, but it's ripe for the bashing. :) )  Why do I say this?  Because fruit and vegetables do not contain gluten.  Because dairy (milk, yogurt, cheese, ice cream, etc.) do not contain gluten.  Because beans do not contain gluten.  Because rice does not contain gluten.  Because fats (oils, butters) do not contain gluten.  Because nuts and dried do not contain gluten.  (And many of these items (canned beans, canned vegetables, nuts, rice, canned meats) are useful "emergency" foods to have on hand in the case of a natural disaster.)  If *EVERY* food in your house contains gluten, you simply don't have a healthy variety of nutritious foods around you, which - many studies back this up - almost certainly means your diet as a whole does not have a healthy variety of nutritious foods.


I don't actually mean to sound like a "w"itch about this.  And it's not actually personal, though I'm responding to your (OP's) post.  It's a pet peeve of mine that people choose to bring unhealthy foods into their house and choose NOT to bring healthy foods into their house.  It's your responsibility (unless you are under ... let's say 15), to have some choices.  (Of course, there is the obvious exception for, as stated by PP, being homeless, destitute to the point where you have no food, and so on.  But, you have food in your house, and I don't recall you being a pre-teen, so that doesn't apply in this situation.)


Personally, in your situation, I would go find a store that was open (even if I had to drive half an hour) and fix the problem.  My health and my body is too important to treat it badly.

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#866902 Do I Need To Be Diagnosed?

Posted by on 04 May 2013 - 08:26 PM

I don't think that "the world" is in agreement on monitoring celiacs when a gluten free diet is adhered to.  Some docs want to monitor antibody levels somewhat regularly, and/or vitamin levels, and/or a few other things.  Some docs will take the knowledge of one autoimmune condition into account when working with other issues that come up.  Some docs don't want to do much of anything.  In my (completely layperson) opinion, a lot of it depends on your general health.  If you're *otherwise* fairly healthy, and if you're *otherwise* totally happy staying gluten free and you feel healthy that way, I simply can't fathom the need for lots of followup testing/monitoring.  If you're not, however, it could make a difference.


There's no clear cut answer, but I would suggest that just because a doctor doesn't want to test you for something, that doesn't mean you should keep making yourself sick by eating gluten if you know it bothers you.  Testing be whatever, your health is ultimately in your own hands.

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#865175 What Do You Do At A Wedding?

Posted by on 24 April 2013 - 07:18 PM

  I can't say enough about how comforting it is to read through all the posts on here. Sometimes when I'm down or glutenized, I just read through them till I feel better...

  My question though is what to do you if you have to attend a wedding? At my own wedding the catering was amazing and provided me a truly delicious gluten-free meal (with sauce!). The chef was trained to cook gluten-free by taking an additional culinary course--praise to them.

  But my cousin is getting married in June and my husband's friend the week before that. I'm thinking of replying that we are both coming, but that I won't be eating. I think I will stuff myself with food beforehand and just drink champagne or wine at the wedding. I've learned there is not one restaurant I can eat at safely (well, ok one). The rest are not an option and I'm in tremendous pain if I get glutened. I'm thinking that's the only safe option.

   Also, for the other wedding we have to travel so it is very difficult to stay safe when traveling and then also with a wedding in the same trip. I'm thinking of buying food at Whole Foods and stocking up, eating before that wedding too...


Yup - I bring my food (and eat before hand).

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#864688 Just Diagnosed With celiac disease And I Don't Feel Full!

Posted by on 22 April 2013 - 12:13 PM

Stick to whole, naturally gluten free, unprocessed foods and you will find lots and lots to eat.  Shop the produce section, meat/fish/dairy/eggs, and beans/rice and you're good.

What sort of things do you usually eat?  That will help us help you fastest. :)

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#863018 I've Decided I Don't Want This...

Posted by on 11 April 2013 - 10:14 AM

Lol, that's a problem entirely independent of needing to eat gluten free! :)
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#863014 Gluten Dinner Party

Posted by on 11 April 2013 - 10:02 AM

We don't cook gluten in my kitchen. I want one place, in the entire world, where I know my food is safe.
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#863012 I've Decided I Don't Want This...

Posted by on 11 April 2013 - 09:56 AM

Myself, my husband, my three year old daughter, my family when visiting, my friends when over for entertaining, and anyone who comes over for a party/gathering gets gluten free food. And pretty much everyone has raved about nearly everything I've made. Gluten isn't what makes a meal - reasonable quality ingredients put together in ways that appeal to you are. And, no, it doesn't have to leave you in the kitchen all day.

I don't know if you've read the blog about 100 days of real food, but they get at my philosophy even better than just a gluten free diet is. Eat whole foods, and minimally processed foods. And that can easily include starchy carbs. Make your own bread (it's actually not that hard to make bread for dinner - sandwich bread is harder, IMHO), make your own chips, make your own pizza, and even pasta.

You can, of course, get this premade gluten free (Udi's bread, Tinkyada pasta, even gluten free beer), though they can be expensive. Same with cookies and cakes and other treats.

Maybe some of this is suggesting changing the way you eat, but hey, I think almost everyone could use a change to make their diets healthier, more varied, more interesting, and more fun. But this introduces you to new foods.

Ok, more immediately practical:
1) Learn to pack your own lung again. In my experience, this is a skilled learned with pratincole and practice, but lost very easily without continued practice. :)
2) Find the easy-to-cook recipes your family likes. For us, these are things like stir-fry, chicken soup, and grilled steak/chicken/salmon with sautéed veggies. None of these need to take more than half an hour to prepare, and can be made from a fairly wide range of "whatever you have on hand".
3) Make large batches of dinner and have leftovers for lunch. All of those things listed above are great for lunch, and take as long to prepare as opening and closing the fridge. (Ok, stir-fry isn't great without heating up in a microwave, but chicken soup is, as is lentil soup and beef stew, and even grilled salmon.)
4) Do some baking, but in large batches and freeze leftovers. We have about seven dozen almond-meal banana muffins in the freezer right now, and they can e pulled out whenever you want a snack and they don't even have to be thawed. Do the same with pancakes for a quick breakfast, or waffles (hey, peanut butter and jam waffle sandwiches are pretty darn yummy!).
5) Experiment with new, easy foods - roasted chickpeas, peanut butter balls (no cooking, store in fridge), and cornbread rolls are all thins we've tried out in the past month that are great easy snacks.
6) We all have different opinions on this one, but I strongly believe in makin your house entirely or nearly gluten free, and all shared food gluten free. You need someplace that feels completely safe to eat without worry and stress.

I know my response is less sympathetic than others will be, but that's just my bias against eating food that we don't make or know how to make or know about all the ingredients.
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#862570 Can't Get Good Sleep

Posted by on 08 April 2013 - 08:10 PM

I'm going to assume that you're already doing the normal things to bolster good sleep:

1) try to wake/sleep with the sun as much as possible

2) turn down lights in the house along with the setting sun

3) avoid bright screens (TV/monitor) for an hour or two before bedtime

4) go outside, every day, for a reasonable length of time

5) avoid beverages (particularly stimulating ones) in the last hour or two before bed

6) get exercise, every day (even just a walk around the block), but not within the hour or two before bedtime

7) keep the bedroom just for sleeping (and sex), not playing, reading, TV, etc.

8) keep the bedroom dark and sufficiently (but not too) warm

9) establish some sort of bedtime routine (the same sequence of events, not necessarily the time on the clock)


Other things that might help with insomnia are yoga and meditation.  There are a number of yoga practices that are meant to help with isomnia, and a number of meditation techniques that can help too.  None of these would help over the course of time that you've been trying what you have.  Changes to sleep take many weeks, not just days.


I've also read that if you find yourself staying awake in bed, to get out of bed, and try again in a little while.


three other thoughts:

1) there is a theory that human brains operate on a sleep/rest cycle that is (approximately) 90 minutes long.  so, aim for a half nap (45min) or a full nap (90min), but not in between.  And try to time your bedtime to the schedule as well, so if you get up at 10:30am, you might make your bedtime midnight or 1:30am, but not 2am when your rest/sleep cycle is moving into it's more active phase.

2) are you oversleeping? that can make you tired as well.  is 10:30am a by-the-alarm wake up or a natural wake up time?  if it's by the alarm, you might consider setting your alarm a little earlier (by the same theory as above, I would aim for 2am to 9:30am, if I were to try this experiment)

3) 2am is a very late bedtime if you're not an evening shift worker.  don't get me wrong, I know some of us are night owl's, but it conflicts with the signals your brain gets from the light of the sun during the day, and may well interfere with a good night of sleep.  I would encourage trying (for at least a week), different sleep times.  perhaps 1:30am for going to bed would work better, perhaps midnight?  if possible, I might even try to be in bed no later than two hours after twilight fades.


good luck!  insomnia and sleep deprivation sucks!

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#859124 Why Can't I Lose Weight?

Posted by on 18 March 2013 - 08:27 AM

A couple of thoughts:

1) Assuming you're not sitting on your butt the other 22 hours of the day, that is likely too much intense exercise.  Your body needs more rest days - or at least days where you SIGNIFICANTLY vary what you are doing with it.

2) Are you getting enough sleep?  Sufficient sleep is vital for proper metabolism.

3) Are you eating late at night?  A recent study showed that eating, even a small amount, a few hours after dinner time but before bed changed how the body metabolizes fat during the rest of the night.  Going for 10-12hrs without eating appears to help the body's metabolism pattern.

4) Can you exercise before eating breakfast?  It has been shown to give a small boost to fat burning over eating first and then exercising later.

5) Are you keeping track of your caloric intake and expenditure using some variety of tracking program?  This could be very helpful, regardless of how healthy you are eating.

6) How are your stress levels and how do you feel about how you cope with stress?  Outside of that cortisol reading, because cortisol is not the only stress hormone.


Besides all of that, yeah, it totally sounds like something else is going on, and you know that.  Please try not stress about the weight until you can work out the medical issues behind it.  Keep healthy habits, but don't stress about the results just yet.

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#855014 "you Can Eat Just A Little Bit, Can't You?"

Posted by on 20 February 2013 - 12:57 PM

Ugh some people  :angry:  I had something similar happen recently.... working lunch, they ordered a huge salad (for me and the vegetarians) it was SWIMMING in croutons!!! So the meeting organizer starts picking the croutons out and making me a plate LOL (I could see crouton pieces all over the plate)  She said "oh one or two won't hurt you"....  Luckily I had brought my back-up stash of food, but honestly  :blink:

I would absolutely, without hesitation, look them in the eye, and with full sincerity, ask "With what scientific evidence do you make that statement?"

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#854844 (16 Mos Old) Introducing Gluten Back Into Diet For Testing, Potential Hospita...

Posted by on 19 February 2013 - 01:46 PM

Wait - they agree that every time he gets gluten, he has horrible symptoms, but they won't diagnose him until he has horrible symptoms for a month?  This is completely illogical, and I would point it out to them.  Diagnosis CAN be made on dietary response alone.

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#853116 Ideas For A Celiac Living In A Non-gluten-free Home?

Posted by on 09 February 2013 - 08:23 PM

I'm in the "make most of the shared stuff gluten free". My husband has his granola bars, Fruit Loops, and wheat-based buns. But all the meals I cook, and we eat together are gluten free. (Outside of those buns on hamburgers, of course.) Chicken soup, beef stew, lots of stir-fries, bbq'ed meat and veggies, roasted veggies, salads... We just eat foods that are naturally gluten free. (Ok, I do use Tinkyada if I'm making pasta salad, and wheat-free tamari.)
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#849765 Extreme Constipation

Posted by on 22 January 2013 - 04:25 PM

Ditch the dairy, keep up on the magnesium and lots of water, and if you need to go to a sliding scale clinic, go!
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#848830 Son With Conflicting Test Results, Unsure What To Do Next

Posted by on 16 January 2013 - 11:37 AM

What if the endo is negative? Chances are it would be very hard to keep him gluten free, even if you wanted to.

I would skip it, since you can get a formal dx. The likelihood of him cheating is related to many other factors, many psychological, IMHO. The manner of diagnosis is less likely, I would think.
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