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tarnalberry

Member Since 30 Dec 2003
Offline Last Active Jan 19 2014 08:47 PM
*****

#613569 Dealing With Stress

Posted by tarnalberry on 29 May 2010 - 05:03 PM

you won't like my reply, but it comes from being in a similar place, and getting fibromyalgia as the "reward": cut back.

yes, you can. you can say no to anything (for me, this included my job). you won't like having to do it, you won't like the choices it requires, but that's how you deal with it. deciding *what* you cut back on is never easy, but something's got to give, or you'll find yourself - well, curled up with a carton of ice cream a little too often. :)
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#603559 Did gluten-free Diet Get Rid Of Restless Leg Syndrome For Anyone?

Posted by tarnalberry on 08 April 2010 - 07:59 PM

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.
I developed RLS well after going gluten (and dairy) free.
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#599858 Feeling Helpless

Posted by tarnalberry on 20 March 2010 - 03:11 PM

Therapy won't help..I need to feel physically better...thats the only way my mental health will improve


Wrong. Those with chronic physical conditions - especially chronic pain conditions - know this well; you CAN improve your mental health even when you can't improve your physical health. No more excuses.

(I'm the designated "tough love" poster for the day. Or something like that. :P)
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#599792 This Might Be A Sensitive Subject But I Must Ask...

Posted by tarnalberry on 20 March 2010 - 07:44 AM

While I'm not certain about it for the male, for the female, even "standard use" involves mucus membranes - the vaginal tissue can act as one.
Condoms are definitely an exception, even with "limited use" to the "only worry about what goes in your mouth" rule.
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#596228 Crazy? Or Actually Gluten Intolerant?

Posted by tarnalberry on 03 March 2010 - 11:05 AM

None of your tests for celiac were worth anything - you were either gluten free, gluten light, or hadn't been back on gluten long enough to make a difference. (Two days is CERTAINLY not enough time to show up on a biopsy - even four days isn't. It's three slices of bread a day (or the equivalent) for three months.)

What struck me about your description, at first, is that it sounds fairly classic for reactive hypoglycemia. For some, this can be connected to celiac, but not for everyone. It is NOT diabetes, and most tests for diabetes aren't going to pick it up, because it's not about a high fasting blood sugar, it's about a drop in blood sugar that occurs to quickly *for your body* after eating. There are "guidelines" as to what your blood sugar should be, but there is no absolute. (My blood sugar "tests" normal, but every doctor I've been to concurs that it's almost guaranteed that I have reactive hypoglycemia based on symptoms and reaction to treatment.)

But you went gluten free, and you felt a big change. That is an important test right there. It does sound like you may still have reactive hypoglycemic symptoms while on a gluten free diet, but the gluten free diet will not "cure" all cases of reactive hypoglycemia. If the diet makes you feel better, if you notice a change, why go back to eating wheat? You don't need a diagnosis to keep yourself from feeling crappy - you just need to make the choices that keep you feeling good.
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#596181 Don'T Want To Biopsy

Posted by tarnalberry on 03 March 2010 - 08:48 AM

As you can see - there are reasons for and reasons against.
It's a personal decision, and I would encourage you to give it due consideration, but also realize that it doesn't HAVE to be done in order to be gluten free. Good luck navigating this difficult decision.
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#595031 Aack! Puppy Opened Spay Incision....

Posted by tarnalberry on 25 February 2010 - 03:31 PM

I sympathize, but you absolutely need to keep her in the crate.

When Neo had his shoulder surgery (7 months old), he had to be kept crated for four to six weeks. NOTHING outside the crate for the first two weeks, outside of pottying (we even had him on leash as we took him from the crate through the house to outside). After that, it was gradually increasing twice-daily walks 5 minutes every week, and keeping him crated any other time. (I'm not suggesting she needs that - he was recovering from surgery on both shoulders!) He wasn't regularly out of his crate for two months (and that was faster than might have been ideal, but the healing was going fabulously).

Normally, Neo is a running, bouncing, crazy boy, so this was NOT easy. But it needs to be done. She can (and absolutely should) be able to stay in a crate by herself even if you're in the house. You may need to do more training on it, and she might not be thrilled about it, but it's something every dog should be able to do. (Neo is not a fan over staying in his crate, but he will. It helped dramatically when we got a wire mesh crate that had AMPLE space for him as he doesn't like things pressing down on his head or the darkness/closeness of the plastic vari-kennels.) And you may want to talk to your doctor about some sedation as well. We kept him lightly sedated for about four weeks - just enough to calm him, as it was simply FAR too risky to let him run around.

If she's whining/barking in the crate while you're home, that's a training issue that you need to work on. But it's doable, and you guys will get there.

Good luck to her on a speedy recovery.
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#595013 I Can Ow Sooo Appreciate The Frustration Celiac'S Feel!

Posted by tarnalberry on 25 February 2010 - 01:05 PM

If a doctor "accused" me of doctor shopping, I would find the only appropriate response to be "yeah, damn right I'm doctor shopping. why should I pay for crappy service when I can get better? are you going to provide that better service or do I need to find someone else?". And no, I'm not kidding. If they don't want to be a SERVICE PROVIDER then I'll find someone who does.
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#594396 Celiac Kids And Sports

Posted by tarnalberry on 22 February 2010 - 01:25 PM

He loves to play, and is one of those kids who goes all out. Years of pain prior to his diagnosis have made him a tough cookie, and he doesn't complain a lot or use his fatigue as an excuse, but he is sore all the time and everything he does seems to take huge effort. I have been thinking about taking him to the doctor, but doctors don't seem to worry too much about fatigue. One doctor gave me an inhaler in the past "in case" he had exercise induced asthma. (He doesn't.) Like many celiac kids, he has had numerous CBCs, and I don't know what else we should check on.


I would encourage you to take him to the doctor and emphasize not that he is tired, and it's hard to do strenuous exercise, but rather that he is fatigued and it interferes with regular daily life. A CBC isn't going to measure vitamin levels or thyroid levels, or most other things. CBC Components at MedicineNet If it seems unusual for him, go with your instinct and keep searching until you find the answer. It is possible that it's just going to take him a while (months/years) to get stamina back, but if you think something else is going on, keep investigating, even trying new doctors if that helps.
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#590625 Finding Celiac Really Hard To Live With

Posted by tarnalberry on 05 February 2010 - 02:14 PM

As for the being gluten free on a budget (and having to read labels), as much as possible, avoid things with ingredient lists. Buy whole, naturally gluten free foods, and cook yourself simple meals. Fresh fruit and veggies, fresh meats, and rice/corn/beans/etc. can make a relatively inexpensive, and VERY healthy meal. You may want to spend some time browsing websites for recipes (stick with wimple) until you feel comfortable with the cooking without them.
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#588590 Argh... Stupid Toothpaste "glutened" Me!

Posted by tarnalberry on 26 January 2010 - 08:47 AM

Whether it did or not at the time, Sensodyne has since then said that their toothpaste *is* gluten free. Old threads on gluten-free status are definitely not trustworthy.
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#586877 We'Ll All Be Eating Gluten In About 15 Minutes...Sorry

Posted by tarnalberry on 15 January 2010 - 07:26 PM

If someone asks me to bring food, I'm not bringing it unless I can eat it. I think it's inexcusably rude to expect someone to bring something that is harmful to them, and I would suggest you not let your friends get away with that.

As for the pizza and the lasagna... Well, there are a lot of things that I and my husband eat differently. Sometimes, I like to make chili, but he can't stand the stuff, so he scrounges on his own. We don't have to eat the same things, and if it's your own expectations making you unhappy that you're eating something different - then what needs to be worked on are the expectations. Not that it's easy to do that, not that it'll be accomplished overnight.

As for the "not allowed to go buy food I can eat" thing... I think you totally did the right thing. I also would never go back to a house with that rule.
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#577298 Need Advise On What To Say

Posted by tarnalberry on 23 November 2009 - 08:27 AM

Since I'm gluten and dairy intolerant, if I don't know the people well, I want to do the least explaining possible. I'll generally start with "I have a number of dietary restrictions. It's far easier for everyone if I just bring my own food." And I'm very clear that it is, indeed, easier that way. I don't even intone that the last statement there is a question. I state it as end-of-story truth.
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#570329 How Careful Do I Need To Be?

Posted by tarnalberry on 24 October 2009 - 01:33 PM

the "processed in a shared facility" question is tricky. if you have a shared kitchen - even if your friend brings a granola bar into the house - you have a shared facility right there. it is certainly possible to avoid cross contamination in shared facilities, and it is also certainly possible to have consistent problems with cross contamination. you have to decide for yourself based on your experience and other people's experience what the right answer is FOR YOU, as there really is not a universal answer.
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#557275 Buttered Popcorn?

Posted by tarnalberry on 24 August 2009 - 05:45 PM

want 'air popped' popcorn without pulling out the air popper?
put a 1/4 cup of popcorn (kernels) in a lunch sized paper bag; roll the top up two or three times, and staple each side (at least three inches apart). pop in the microwave (the staples are far enough away that they will not arc and are safe) for somewhere between 1.5 and 3 minutes (take out when the rate of popping really falls off).

tasty, and easy!
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