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Member Since 17 Nov 2013
Offline Last Active Nov 27 2013 08:25 AM

Posts I've Made

In Topic: How To Live With Those Who Don't Have Celiac

17 November 2013 - 04:01 PM

Hey Jon,


I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!


Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.





Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)


If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.


You can do this. Welcome to the forum and the celiac family. 


Thanks for the great advice!

In Topic: How To Live With Those Who Don't Have Celiac

17 November 2013 - 10:56 AM

hi jon and welcome!


before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright....grams/rdfinder/


make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.


hope this helps!

Honestly I don't know if she does or not; you make a really good point.  I'll contact her and make sure.  She helped me with IBS (which was what the doctor initially thought it was), but I'm not sure if knowing about IBS would translate into Celiac nutrition.  And I'll check out the link.  Thanks so much for your help.

In Topic: How To Live With Those Who Don't Have Celiac

17 November 2013 - 10:25 AM

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.co...ing/?hl=nesting


You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.co...ewbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 


You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

I just read your previous post about how you are handling your kitchen.  Really good information.  I would have never thought about a lot of those things.  Thanks so much for your help.

In Topic: How To Live With Those Who Don't Have Celiac

17 November 2013 - 10:24 AM

hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

Thanks for pointing me to the Newbie 101 section; I didn't know where to start or even where to post.  Last year I went through being diagnosed with Diabetes, so I'm used to change.  Hopefully dealing with celiac disease will become as second nature as diabetes has.  It's nice to meet you and thanks for your help.  

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