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mamatolilianna

Member Since 27 Jan 2004
Offline Last Active Feb 02 2004 07:25 PM
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Topics I've Started

Hello I'm New Here And Wanted To Say Hello

27 January 2004 - 05:18 PM

Hi everyone :) My name is Heather. My daughter Lilianna, was diagnosed this past June with celiac disease with a positive blood test. I have been postponing getting a biopsy done b/c she also has a milk protein allergy as well. We were hoping that it was just that causing her illnesses. Well, in the meantime my neice and brother in law were diagnosed received that information last night. I had done lots of research and asked them to get checked b/c they seemed symptomic unfortunately they both have it so now I'm heading to make some calls to get my Lily in to have the biopsy and need to get out of DENIAL :( A little about my Lily, she's 2 1/2 years old. She has been in and out of the hospital for blood transfusions due to IDA RBC of under 4 :( SHe's been a sick girl. We have removed all dairy from her diet and she's been maintening a low iron count but mangable. The problem we are having now is she isn't gaining weight she has held at 23lbs for over a year now. I'm devestated by her having this and as you all know it's a hard diet for a child to have to live with especially a very picky eater and with the addition of no dairy it's very challenging. Anyway I'm thankful to find this board and meet parents, share stories, and find interesting toddler friendly foods lol. Support is what we all need and I'm sure at times this is very overwhelming and it's nice to come to a place where other moms and dads face these daily challenges. Thanks for reading and I look forward to meeting all you :)