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par18

Member Since 02 Oct 2005
Offline Last Active Sep 11 2008 06:16 AM
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Posts I've Made

In Topic: Should I Do A Self-diagnosis Experiment?

31 July 2008 - 07:18 AM

Yes. I don't have health insurance and I have a hard time getting involved with the Western medicine runaround except in the event of an life-threatening emergency. I figured I'd start with the most basic step by simply eliminating what I think is causing the issues. It certainly won't hurt me, and if the results are obvious then gluten-free is the solution. If nothing changes, then it's on to Plan B, whatever that may be.


This has been my position exactly since I was diagnosed over 3 years ago. If a person does the gluten-free diet correctly only a couple of things will happen and none will be bad. One it will work, two it will not (and then it is on to your plan B without money spent on testing ) or three it will help to the extent that if something else is wrong it may allow this to become more apparent. The worst thing someone can do is to go about the diet in a less than 100% fashion (lack of knowledge or willpower) and then it will can make diagnosing anything almost impossible. Take it one step at a time. If gluten is only one of multiple issues then control that portion and move on the the next step. If it appears after being on the diet that it "is" the culprit then decide whether or not to go back to eating it and trying to get a diagnosis. Like I have said before then you know you are traveling in the right direction. This way "you" will control the process without putting it into the hands of the health care profession whose track record on diagnosing this condition (about 3%) leaves something to be desired.

Tom

In Topic: Enterolab Tests

30 July 2008 - 07:24 AM

What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.


I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

In Topic: Do I *really* Have To Get A New Toaster?

19 July 2008 - 06:24 PM

I was in the same position when I started the diet. We had a pretty expensive toaster and I decided to try to clean mine. I used an air compressor and completely blew out all four slots with the bottom removed. Only gluten-free bread was used after that and in the 3 plus years since I have had no symptoms. I guess it would depend on the individual and how sensitive he or she may be. For the most part we bring very little gluten in the home and if it does happen it is "isolated" until consumed. We also did not replace all the wooden or non-stick items but rather clean and not expose them to gluten again. I was a biopsy confirmed Celiac with the classic symptoms so I know I will react to exposure to gluten. So far so good.

Tom

In Topic: Do Celiacs Have A Weaker Immune System?

21 May 2008 - 04:44 PM

I think something like this varies with the individual. I for one have not had so much as a cold in the past three years since going gluten free. A couple of times I thought I was beginning to feel the effects of a "bug" but nothing has lasted more than about 24 hours. I feel as though my immune system is stronger than the average person since it is no longer reacting to "gluten exposure".

Tom

In Topic: Would You Get Tested?

08 May 2008 - 03:59 PM

Unfortunately I still believe the majority of the doctors out there don't understand the cause/effect of gluten intolerance enough to make a diagnosis based on diet response. That said I for one would like to have known that a diet change was a possibility for my years of symptoms. Even if I might not have gone or stayed on the diet at least I would have known the doctor was thinking it (Celiac) was a possibility. The only way I think real progress will be made as far as early diagnosis and treatment is if more people like yourself prove through diet response that your problem is related to something yhou are eating. I for one applaud anyone who has the knowledge and willpower to give the diet a chance and if successful be satisfied with the results and get on with their life. Whether you spend a lot of money on testing or "figure" it out for yourself the treatment is still the same. Good luck.

Tom