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angelsea

Member Since 05 Oct 2005
Offline Last Active Mar 20 2006 09:13 AM
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Posts I've Made

In Topic: Hello To All

08 October 2005 - 01:53 PM

Hello to everyone :D This is my first time here. Dx of celiac disease in February, gluten-free since THAT DAY. It's been such a change for me and my whole family. All so supportive and refer to me as the "No Wheatie Sweetie". Anyway, ALSO I am newly pregnant as well with my second child. So happy, but a little nervous as far as the celiac disease is concerned. Anything I should increase, decrease, watch out for, or advice is MUCH appreciated. Thanks!

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Oops, your message posted twice somehow, so I had to choose one or the other to reply to!

Welcome! I'm also new here, but unlike you, I don't have my definitive answer yet. As I've said elsewhere, I am seriously considering adopting the gluten-free diet for at least myself and possibly also my son (with not much hope of convincing my husband or daughter -- yet!) no matter what.

Congratulations on your pregnancy! (And you'll also appear pregnant for the right reason!) So this is your second? How did your first go? Were you experiencing any problems or symptoms before or during that pregnancy? I wish I had some advice for you, but at least you are on the right track with the gluten-free diet.

Good luck!

In Topic: Hello, New Here, Awaiting Tests

08 October 2005 - 01:43 PM

Ok, it's been a while, but I was awaiting results. Now I have them and I DON'T have Celiacs, but they still don't know what's wrong. So, since I don't have it, I probably won't be around much, but thanks for being there.  ;)  Take care, all of you.

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Yes, please consider what "floridanative" just said. I believe you said you are in the UK -- I wonder if you might have access to the book "Dangerous Grains" by James Braly. I got a copy from my library yesterday and am only about halfway through and am convinced that many, if not most of us, celiac or not, symptomatic or not, can benefit from a gluten-free diet (not that this is any indication that it would be an easy task!). I'm just realizing how naive I was to think that celiac disease was the only reason one might want to avoid gluten.

Good luck in your search for finding the solution to what ails you.

In Topic: Pf Changs

07 October 2005 - 07:28 AM

Finally!  :D  :P  :)  :lol:

I found a place that has a gluten-free Menu consisting of a whole bunch of NONGLUTEN food. The food is amazing!!!!!!.....gluten-free chinese food at PF Changs. .....I encourage anyone to try it out. They have places in may states. I went to the one in NY.

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Wow! I hadn't heard of them before reading this. I've rarely eaten Chinese in my days (whether gluten-free or not) and will definitely put this place on my list of things to try since I did an online search and found that there is one not too far from me(and I was thinking the entire time there was no way I would locate one)!

Thanks to everyone for sharing your great discoveries!

In Topic: At My Wits End.....

06 October 2005 - 06:06 PM

One thing that I have learned by having been so ill the past few months and having to many tests run by several docs is that I always feel better when I see my results.  I have begun asking for copies of them in fact.  One of the main reasons I asked about the lipase, potassium, creatanine and ldl levels is that I'm wondering if maybe my pcp or gi didn't just miss this.  I would have thought that with my symptoms, one of them would have considered celiac disease.  Neither one of them even considered a screening for food intelerence (sp).  My point is -- if you want your test results, tell the doc and don't take no for an answer.  B)

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Thanks for mentioning this. I think from now on I'll ask for copies of my tests. I've been testing high for cholesterol for several years now (and my doctor's office does always give me ALL the numbers, so at least I know my HDL isn't too out of line with my LDL or I'd worry more) -- I didn't know that could also have something to do with celiac disease. Well, it makes sense -- just about everything has something to do with how well (or not well) nourished we are.

I'm not sure exactly what got me started looking into celiac disease as a possibility (I don't have any close relatives who have or had symptoms, but a first cousin who was only a year older than me had Crohn's disease for years then died of colon cancer a few years ago, so that made me more aware of intestinal problems). My doctor did get me to thinking along the lines of food intolerance and/or allergy after my last annual physical when I showed him how my eczema was flaring up again and he said the rash looked like it could be from a food allergy. When I had it really bad as a toddler, I know my parents were told to not let me eat chocolate. I guess maybe they thought it was a problem with milk, but I was still given plenty of milk throughout my grade school years (and had almost constant eczema, with maybe an occasional break from it during the summer).

I don't know if I have fatty stools or not (don't really check all that much for it) and had read in someone's book (maybe Anne Lousie Gettleman's "Fat Flush") that it is GOOD to have your stools float (I THINK mine sink, but not always, and I'm not positive). One website described stools for one with the condition as sticking to the toilet bowl -- THAT does describe my usual experience (I need to clean the toilet bowl almost every time I use it, but I also live in a very old house that probably has an extremely inefficient flusher!).

In Topic: At My Wits End.....

06 October 2005 - 04:57 PM

I am new to this site and would just like to find out if others have certain symptoms.  I have the classic symptoms, fatty stools, floating stools, D, some constipation, constant stomach pain (upper middle, especially after eating), irritability, fatigue, trouble concentrating, etc.

The symptoms I am curious about are:
Pain up under the left rib cage, almost constant.
Lower back and lower left back pain.
Muscle spasms w/tender, sore muscles to follow.
Tired all the time
Don't always have regular bm, sometimes twice a day, sometimes 3X a week
Anxiety
Low Potassium
Low Creatinine levels
High LDL Cholesterol
Elevated Lipase levels

I have lost about 18 pounds over the last few months, and although it seems I am no longer losing weight, I can't seem to gain weight.  I am barely maintaing my current 116 to 117.

I have calls in to both my PCP and GI docs trying to get one of them to test for celiac disease.  I just recently discovered what celiac disease actually is, and to tell you the truth, I kind of hope that's what my problem is because they can't find anything else wrong with me.

Oh yea, do some bouts seem worse than others?  Like if I were to consume considerably more gluten at one time than another, I would be sicker for a period of time than others?  Does that make sense?  I haven't had any D for a while now, but have the stomach pain almost all the time and can't gain weight.  I am hungry a lot, but still have trouble maintaining my weight.

I would appreciate all the input I can get.  I think the docs are ready to write all of my symptoms off to anxiety, but I know better.

Wish me luck on getting the test done.  :P

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I'm not diagnosed (I seem to keep repeating that in my posts this evening) but have symptoms similar to yours that led me to go to my PCP and ask to be tested. He didn't put me off like the time I thought I might have insufficiently treated Lyme disease going back to the 80's (a whole other topic). Before asking, I was afraid he would tell me that celiac disease is actually pretty rare, but he did acknowledge that diagnoses (is that the correct plural spelling) for it seem to be increasing. He did think it odd that I could possibly have it without having trouble maintaining my weight. I'm so glad I asked (prefaced my theory with "I'm afraid you might think I'm silly for thinking this...") but am now on pins and needles waiting for the results, which will probably take at least another week or two because he's not always in that one office and likes to look over the results of all tests and sign off on them before anyone calls the patient.

I say definitely go with your instinct that this could be what is ailing you. If it isn't, then you'll know. And if it is, you can take the steps to heal yourself and help to avoid even greater health risks down the road. Even if I find out I do NOT have celiac disease, all the research I've done has convinced me that it is grossly underdiagnosed and I want to lend my support to those who have been diagnosed and those who have it and don't know it.