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Member Since 27 Nov 2013
Offline Last Active Jan 05 2014 04:25 AM

Posts I've Made

In Topic: Stevia Is Not Necessarily Gluten Free

29 December 2013 - 10:17 PM

The issue with Stevia (especially the liquid) is that most of them are processed in a gluten facility. I'll be passing my new bottle along to someone else and opting for pure stevia powder.

In Topic: Sick, Shocked And Scared

29 December 2013 - 09:35 PM

I'm not on any medications. I will see the liver doc and a immunologist in the next two weeks. Overall am feeling better though I begin to have foot and joint pain along with "attack" symptoms when I get glutened. I was shocked to find out that Trader Joe's pink salt is processed on a machine that processes wheat. Also, sashimi can still be cross contaminated from a cutting board or towels the sushi chefs use. I may never eat out again! I knocks me back over and over! 

I'm beginning to wonder if I shouldn't try an SCD diet for six months since I seem unable to eat grains, soy, coconut, dairy, eggs, honey, many fruits, tomatoes, etc. My diet is so limited and restricted right now. Frankly, I'm afraid of food at this point.

I've read that it may take a year to recover and being to add some of the above items back in but I really wonder if anyone fully recovers on a gluten free diet or if there will always be some lingering fatigue and stomach issues. ugh!

In Topic: Sick, Shocked And Scared

17 December 2013 - 05:52 PM

Thank you all for the posts. I'm starting to feel a bit better. I haven't had an "attack" for two weeks. I did eat some gluten-free pizza at CPK and threw up but rebounded by mid day the next day. I'm still quite fatigued and somewhat brain fogged but dry skin, yeast and sciatica are my chief complaints right now. I will go for the endoscopy and biopsy after the holiday. Fingers crossed we get to the bottom of this. No matter what, the elimination diet and gluten-free eating are here to stay. When I now reflect back on all of the times I've had a stomachache or what I thought was food poisoning over the last few years, I'm amazed that I didn't figure out it was the bread. All this time, I thought it was something else. Ugh.

In Topic: Sick, Shocked And Scared

30 November 2013 - 01:09 PM

My main symptom's are neurological (tics and whatnot). Its clear that something in my body is stimulating excess electrical activity in my brain, could something similar be happening to your heart? I know that Adrenaline, Cortisol, and Norepinephrine regulate the heart. Could your diet be stimulating overproduction of these hormones? I have an abundance of Norepinephrine which causes my involuntary movements and I've also had moments where my heart beats strangely and I can't breathe and see stars. Lasts anywhere from a few seconds to 45 seconds. 


Cortisol taken over four days: 


Cortisol 9.1 9.5 9.9 30.2


(not 100% sure about the last result - it has the same collection date/time than the 3rd one - maybe this is after they administered a Cortisol shot to test my response to it - the first time they tried to give me this test I thought it was going to kill me! My chest got hot and tight so I asked them to stop)

In Topic: Sick, Shocked And Scared

30 November 2013 - 01:01 PM

Thank you both for the replies. I'm touched that you would take the time out of your Thanksgiving holiday to show your support. I have considered that the source is something other than gluten foods. I'm now on a meat, avocado and potatoes in jackets diet down from the mixed veggies, meats, and avocados. I'm drinking Aloe vera juice and mixed greens in between small meals. I'm also drinking herbal or green tea with Stevia. I've quit the green tea to get rid of the headache after staying up for two nights. I've recently replaced my hand soap, shampoo, cutting boards, and wooden utensils. I don't wear cosmetics but have lip gloss with soy bean oil. Should I discontinue that? I've also been receiving castor oil packs for my abdomen - I don't notice any results there but don't really care for those packs. Any other thoughts and suggestions while I wait in purgatory? I'm hoping for genetic results and a new liver panel on Monday or Tuesday. I'm striving to enjoy endless hours of historical drama.


Thank you again for your kindness!

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