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Member Since 09 Oct 2005
Offline Last Active Aug 30 2015 04:50 PM

#815235 Are All People Allergic To Wheat, Celiacs?

Posted by on 01 August 2012 - 03:25 AM

I was thinking about this. I know that alot of us say we are "allergic" to wheat to make someone understand - like the counter person at Wendy's. So, even tho I'm not allergic to wheat, I sometimes say I am. I think its easier to understand sometimes.

I’ve been taking the opposite approach (i.e. correcting people so they know celiac is not an allergy). The problem is that when people think in terms of an allergy they use what they know about other allergies in order to understand celiac. That in itself leads to misunderstandings.

Consider a common allergy that everyone knows about, such as hay fever.

If I have hay fever and inhale a single grain of pollen, I probably won’t have an allergic reaction. If I do, it will be so slight that I won’t even know it. On the other hand, if someone throws a handful of pollen in my face, I will have a strong allergic reaction.

People understand that the severity of an allergic reaction is proportional to the exposure to the allergen.

Using this understanding of allergies, people who are told celiac is an allergy will believe that a gluten reaction is proportional to the exposure to gluten. If a celiac eats a loaf of bread, they will get very sick. Conversely, if they eat a single bread crumb, they will not sick.

Using this understanding, people have a very difficult time understanding the significance of cross-contamination. If a lot of gluten must be consumed, how can bread crumbs in a toaster or a little wheat flour dust cause any problem. Obviously, celiacs must be whining babies.

Also, understanding celiac as an allergy and not as an autoimmune condition causes people to not consider the damage done beyond the supposed allergic reaction of gas, bloating and D.

That said, I certainly agree with everyone that making people understand is a difficult, if not unsolvable, problem.
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#814723 Outrageous Things I Have Said And Done!

Posted by on 30 July 2012 - 03:15 AM

The envelopes may not have gluten in the glue, but we all know from watching Seinfeld they aren't safe to lick. A sponge is safer and and easier too.

Sponges can be used...but only if you are worthy. :)
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#800401 Celiac Dating Sites?

Posted by on 03 June 2012 - 03:39 PM

Thinking about it another way, if there aren't any good celiac dating sites, that means that everyone with celiac is on a non-celiac dating site. If they are on a dating site that is. And for exactly that reason, they couldn't find a good celiac specific site. So your search on a regular dating site may work better than expected. Just a thot.

Speaking of the non-celiac sites, I often wonder why it is even necessary to have celiac-only dating sites when there are mainstream sites that could work just as well. If your profile includes the word celiac or gluten, then searches on one of those words will find your profile.
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#799750 Doctors

Posted by on 31 May 2012 - 04:02 PM

There are compassionate and educated doctors out there (a few but they do exist)

I've also heard that there is an Easter bunny and an old guy named Santa.
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#779969 If You Have Celiac Disease, Would You Keep Your Children Gluten Free For Life...

Posted by on 11 March 2012 - 05:29 AM

This is an interesting question. I assume you are talking about children who do not have celiac disease.

If I had a non-celiac child, I would not want to penalize or handicap them with my diet. That said, I have often thought that if I had known in time I would not have had kids at all. There are lots of reasons.

One is that I would not want any of my kids to go through what we all experience daily, including inconsiderate family/friends, brain-dead doctors, etc.

At the same time, allowing gluten into the house would create an unsafe environment for me. It is the same reasoning that dissuades me from ever wanting to date any non-celiacs.

My daughter just had a child and I reminded her that the baby should be tested since I have celiac disease. She surprised me by responding that she knew already because she had recently discovered that she has it. I did not know that.

Celiac disease simply is not something I would want to knowingly pass on.
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#774983 Why Do We React With Anger When People Do Not Get It?

Posted by on 21 February 2012 - 07:00 AM

For me the anger comes when the person who doesn't "get it" has put me in a position where I am forced to either risk eating gluten or not eat entirely.

A very long time ago, I worked in a child care facility for troubled kids. One of the things we were taught during our training sessions was that anger usually comes from frustration. When people experience frustration, that frustration can express itself as anger.

It is safe to say that the life of a celiac is one of constant, continual and unrelenting frustration. Even “healed” celiacs with the diet under control still have to deal with incompetent medical professionals, cross-contamination of otherwise gluten-free food and unintended glutenings from well-meaning family and friends. As a result, it is understandable for celiacs to be angry. While the expression of that anger, esp. when directed at the causes of the frustration, is rarely productive, the expression on this forum in the form of a rant is probably therapeutic.

It has been mentioned that people who “don’t get it” simply have not learned about celiac disease yet. The implication is that once they learn about the condition their behavior will change. I think that assumption requires a footnote.

The initial symptoms of glutening are gas, bloating and D. The fact of the matter is that these three are elements of something called bathroom humor. Whether we like it or not, there is a significant segment of our respective societies that think bathroom humor is funny, if not outright hilarious. In regard to celiac disease, these people “get it”. They just think it is funny.

A local radio station, WMMR, once did a send-up of a celiac singles site they came across. They had a clip that imagined a group of celiacs getting together to meet and socialize. Suffice it to say that the sound of celiacs passing gas was the running gag. There was also the celiac guy that walked over to the celiac girl and said he “heard” her (passing gas) on the other side of the room and couldn’t take his eyes off of her. The radio guys were ROTF while the clip played.

I think we have to accept that:

- there are people who will never “get it’.
- there are people who do not care enough to try to “get it”.
- there are people who “get it” and think “it” is hilarious.
- Non-celiacs will always pose a risk of unintentional glutenings.

Consequently, celiac anger is inevitable and will be with us for a long, long time.
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#655105 Dental Enamel Problems?

Posted by on 21 November 2010 - 04:28 AM

I'm well aware that dental enamel problems can be a sign for celiac.

Are there any published studies that show this?

I have enamel loss and my dentist is always on my back about "brushing too hard". If there are studies that show a link between celiac disease and tooth and/or gum issues, I'd like to mention them to him.

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#618145 Do Doctors Normally Do "maintenance" After A celiac disease Diagnosis?

Posted by on 20 June 2010 - 06:25 AM

I know there ARE good doctors - but sadly in my case (and in yours it seems) once it becomes clear there is nothing to make $$ on (no pills, no procedures, nothing a drug company will be funding) just a radical diet change, a lot just wash their hands of the whole thing.

The reason I'm still as annoyed as I sound is the same doctor actually had the gall to call me outright a hypochondriac and stupid when I forced the issue of getting the biopsy (because really, every gal just wants to spend the day with a hose up her backside! :angry: ) and when I finally found out WHY I had been sick for so long he just shrugged it off and was even ruder.

There is a reason I'm pretty hard to get into a doctor's office anymore.

I can really identify with this and I am sure a lot of other celiacs can as well.

It just does not make sense that medical treatment should only consist of pills, drugs and surgery. The conviction that there is no medical treatment once a celiac goes gluten-free implies this. It posits that, since there are no pills, drugs or surgical procedures for celiac disease, then doctors can rightfully wash their hands of us when we go gluten-free. I think that is just wrong.

Years and possibly decades of damage is not undone overnight by going gluten-free. The common immediate symptoms should clear up as may the symptoms that prompted doctor visits. However, it may take quite a while for other damage to heal. During that time, celiacs need care.

Simple common sense should dictate that anyone with a diagnosed, life-long condition should be monitored throughout their life. There should be an established protocol for doing this. Once a celiac is diagnosed, their medical record should be flagged and certain monitoring should take place. This is similar to other protocols such as the one for being older than 50.

All things considered, I would think this will be one of the next advancements in celiac awareness among the medical establishment. Some day, doctors will have to realize that celiac disease is a life-long condition that needs life-long care. That way, it will not become out-of-sight, out-of-mind because the patient is on a gluten-free diet.
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#616266 Anyone Have Problems With Caramel Coloring/ Or Soda?

Posted by on 12 June 2010 - 08:54 AM

This is simply not true. They are not coated with anything.

Have you read the info on the MacDonald's site at:


If you click the link for "Nutrition", the following will display along with other info:

Ingredients: Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*, citric acid [preservative]), dextrose, sodium acid pyrophosphate (maintain color), salt. Prepared in vegetable oil (Canola oil, corn oil, soybean oil, hydrogenated soybean oil with TBHQ and citric acid added to preserve freshness). Dimethylpolysiloxane added as an antifoaming agent.
CONTAINS: WHEAT AND MILK *(Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients).

As you pointed out, there is no mention of flour. However, there appears to a coating of other ingredients. As a result, it may not be correct to say they are not coated with anything at all. Correct me if I am mistaken.
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