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Member Since 16 Jan 2014
Offline Last Active Nov 04 2014 04:53 AM

#930421 Refractory Celiac Disease

Posted by on 11 September 2014 - 01:33 PM

My first doctor started throwing around the refractory diagnosis possibility very early too because I actually got much worse on the gluten-free diet (I have been dairy free for many years before I even knew what celiac was), but I switched hospitals to U of Chicago and we finally figured out that I have fructose intolerance (malabsorbtion in the proper term I believe). I have had to cut out ALL fruit, the fructans group, and sweeteners. I pretty much only eat meat, potatoes, rice and corn very occasionally, and the non-fructan veggies. That has drastically helped my circumstances.Try a low fodmap diet with the slow reintroduction it may help. I also second getting checked for SIBO or just treating it if your doctor thinks that's ok. I tried treating the SIBO it wasn't my problem but it helped me know that was not a concern at the time.

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