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Member Since 16 Apr 2014
Offline Last Active Mar 25 2015 01:17 PM

Posts I've Made

In Topic: Dairy Sensitivity Question

25 March 2015 - 08:55 AM

I have now had it confirmed that I have a dairy intolerance as opposed to a true dairy allergy. After having hives for a week (from an unrelated cause), I finally saw an allergist who did some skin-prick tests on me. While some of the food test areas did appear red, none of them developed a weal of 3mm or more. It was pointed out to me that I have very sensitive skin because the control test of saline also turned red (which it shouldn't have).


He did say that, since it isn't a true allergy, it wouldn't kill me to cheat and have dairy once in awhile. I will keep that in mind, but for now I'm still staying away from it.


While I was there I tried to ask the doctor about the meaning of just a positive IgA test when the rest of the celiac panel was negative. He wasn't familiar with the test I was asking about. All he could tell me was that there is no test for NCGS. So I'm still stumped on that one.

In Topic: Question About Gliadin Iga Result

26 February 2015 - 11:17 AM

The blood was drawn at her office and sent to the lab. We talked about which tests would be run before she drew the blood, so both of us were perplexed at the lack of results. I've asked her to check with the lab to see what exactly happened.


It turns out that my other tests revealed that I'm currently fighting off a virus and so the naturopath is less concerned about gluten sensitivity at the moment. She said that it is possible that my immune system is so out of whack from fighting this other virus that it might be over-reacting to all sorts of things (including dairy). So even if I had gotten the results, I might have ended up with a false positive which wouldn't have meant anything.


Also, in Jan I had a stomach ache that lasted for over a week. On the fourth day I went to the ER to get it checked out. They couldn't find anything wrong but they did a CT scan while I was there. There were no signs of inflammation on the CT scan. If I were sensitive to gluten, inflammation should have been apparent (at least in theory). So, right now, I'm supposed to just not worry about it.

In Topic: Question About Gliadin Iga Result

25 February 2015 - 03:46 PM

Update (sort of):

I'm not really sure what happened but I didn't get results from a full celiac panel. Instead all I got results for was the Tissue Transglutaminase Ab IgA - which were negative (<1.2 with negative being anything less than 4). It certainly didn't answer the question I was trying to resolve. It's possible that the lab ran out of blood before they got to those tests, since I was having other tests run also. It will be at least 3 months or more before I try again to get tested.

In Topic: Question About Gliadin Iga Result

18 February 2015 - 08:39 AM

Thank you Gemini and Cyclinglady.


I know that there is an autoimmune something going on. Trying to figure out what has been the challenge. The only way to deal with anemia of inflammation is to treat the underlying cause, so that's why I'm still searching.


I agree that the problems I had after going gluten free for a month were probably related to dairy. I don't think of it as an allergy because I don't have a severe reaction to it (I think of allergies as equaling hives and anaphylaxis), but the first things I noticed when I gave it up were an increase in energy and that my sinuses improved.


I'm such a finicky eater that the prospect of eliminating all things containing gluten along with dairy (which I suspect I won't ever get back) would severely limit the number of things I'm willing to eat. I can understand an attitude of 'just get over it' because it seems like a normal person would just adjust. However I have a history of simply not eating (anything... over extended periods of time) when faced with choices I find unappealing, so it is an actual problem for me. That's why the naturopath is of the let's-make-sure-this-is-really-the-problem mindset before I actually commit to it.


I know there were multiple duodenal and gastric biopsies during my upper endoscopy but I don't recall how many. About a year before that endoscopy I had tested positive for parietal cell antibodies, yet there were no signs of gastric atrophy either (which is good, but puzzling). Gluten sensitivity wouldn't affect parietal cell antibodies would it?


I was originally, back in 2008, told I have pernicious anemia because of my low B12 level and positive parietal cell antibody test. A year later I tested negative for both parietal and intrinsic factor antibodies and so was told that it couldn't be PA after all. I realize now that testing for PA is pretty unreliable. Unfortunately that really doesn't help me narrow down the actual culprit and leaves me wondering whether I have PA or not. Same thing with celiac.


If it is celiac, then going gluten free could potentially mean that I would not need to keep injecting B12 for the rest of my life. So that'd be a nice plus. Or I might have both problems, since autoimmune diseases seem to like to have company. That's not a fun thought.

Injecting B12 is really not that bad actually. I'd really like to find the cause of the anemia of inflammation though, because if I can't then I'll probably need iron injections and those are worse. :(

In Topic: Question About Gliadin Iga Result

17 February 2015 - 10:59 AM

Just to update: I'm still trying to figure out the answer to my last question about whether gliadin IgA antibodies could trigger an autoimmune response. I have a good naturopath who is working with me to figure out the mystery of where my (very mild) anemia of inflammation is stemming from.


I've been back on gluten for months. My original experiment only lasted 6 weeks because, after 4 weeks, my body started having some serious GI issues. When those didn't clear up after two weeks, I switched back to my regular diet (and it still took another week to get back to some semblance of 'normal').


In September I gave up dairy (which I probably should have done back in 2011 when I first found out I might have a problem with casein and whey).


This week I had blood drawn to get the celiac panel retested (among other things). Unfortunately, because of the holiday on Monday, my doctor wasn't too sure if my blood would actually get processed, so I may have to go get blood drawn a second time. Otherwise I'm just waiting for results.


I'm hoping this was just psychosomatic, but I made sure to have a big helping of pasta (in addition to the regular amount of gluten in my diet) the day before the draw. I felt fine the day of the draw, but the day after that I had gas and bloating worse than normal. If I hadn't specifically been trying to eat a large helping of gluten containing pasta, I probably would not have associated that meal with the GI distress two days later. They could be unrelated.


So, at this point, I'm hoping for negative test results because I'm really not keen to have to give up both gluten and dairy. But if it comes back positive I am willing to make changes for my own well being. More to follow.