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Member Since 16 Apr 2014
Offline Last Active Jan 27 2015 10:20 AM

Posts I've Made

In Topic: Dairy Sensitivity Question

11 December 2014 - 01:42 PM

It is neither lactose intolerance nor true allergy. It seems to be a sensitivity to casein and whey. The very mild reaction I seem to get after just a trace amount is only a stuffy nose. I did consume dairy for about 40 years before going off of it, so I know it wouldn't ever cause a life-threatening reaction for me. I think the only symptoms dairy generally gives me are sinus problems and gut issues. I had thought that I'd be able to tolerate at least trace amounts without a problem because of the fact that it isn't a true allergy. I guess I'm just confused about whether more is automatically going to be worse or if it could end up just being the same reaction as a trace (which isn't that big of a deal if it's just a stuffy nose). I'm also a little confused about why I'd react to a trace even though I've had dairy all my life up until 3 months ago. I don't know whether to interpret it as needing to stay away from all dairy forever, or whether I should experiment with adding some dairy back in to see how much is really too much.


A trace amount gives me such a mild reaction that I just don't know what it means. :unsure:

In Topic: Newly Diagnosed Ncgs - Can't Stop Bingeing On Gluten!

19 November 2014 - 08:48 AM

The others have offered really good advice. I recently, finally, managed to go dairy free (I know it's not quite the same, but the struggle is surprisingly similar). It was my second attempt at going dairy free because the first attempted failed spectacularly. I had binged on dairy before giving it up and that made staying away from it much harder. I was craving cheese like it was a drug. So I gave in and went back to eating dairy.


The second time I tried to go dairy free was much more successful for, I believe, a couple of reasons:

1. I tapered down before going completely dairy free. I had things in my pantry that I wanted to use up and I didn't want to feel rushed to get through the last of them, so I just slowly went through my supply until it was gone and didn't buy any more.

2. I focused on what I could eat rather than reminding myself of what I couldn't. That way I spent more time being happy about new discoveries of things I could have, rather than disappointed about things I was giving up. (And tapering down also gave me more time to discover alternative products to be happy about.)


The other reason it was so much more successful for me the second time is that my gut problems had worsened and it had become really evident that dairy had to go, so I was pretty determined to make it work this time. I also noticed a nice boost in my energy level in the first week I gave up dairy. That boost in energy level made me reluctant to cheat because I didn't want to give that new found energy up.


I guess what I'm saying is that it's a combination of factors that go into the success you are looking for. You know you'll feel better without gluten, so you'll be doing your body a favor to stay on track. There are gluten free alternatives to many things, so, with planning, you can keep yourself fed and healthy and not have to feel like you're really giving up anything. If you can get your mind around the idea that you are simply changing your tastes to some new products rather than thinking of depriving yourself, it will go a long way.


My biggest recommendation is to taper down slowly though. Binging on it as a 'Last Time' sort of thing is just going to cause problems because it triggers an addiction-like reaction through gluteomorphins.


I hope you succeed and feel much better. :)

In Topic: Glutened Or Vitamin Deficient?

18 November 2014 - 01:09 PM

The symptom of your hands and feet being tingly or numb could suggest a vitamin B12 deficiency. B12 is a really difficult vitamin for the body to absorb. Anywhere in the methylation cycle something could go haywire and then you don't get the benefit of the vitamin even if you have it in your system. I've found this page which gives a good explanation of how the absorption process works: http://www.active-b1...-b12-absorption (notice that it mentions celiac disease as a cause of malabsorption).


Sublinguals are one method to try to address the problem (there are also skin patches and nasal sprays on the market too), but if your symptoms are severe enough to cause tingling and numbness (which is caused because of nerve damage that adequate B12 would normally repair), then you should talk to your doctor about getting an injection of B12. You might need injections until your gut has healed sufficiently to allow you to absorb B12 normally again.


Also keep in mind that B12 only naturally occurs in animal-based products (meat and dairy). Some cereals are fortified with B12 but that particular vitamin doesn't naturally occur in any plants. If you do not eat animal-based products, you will need a good supplement that includes B12. B12 also needs adequate folic acid and iron to be the most effective, so you may need to find out and address your other vitamin deficiencies at the same time.


I've had B12 issues for years and I learned a lot about the subject and how to manage it from the Pernicious Anaemia Society

The first thing I learned was that it's always a good idea to get printed copies of all the lab work that is done on you so that you can see the results yourself. This is especially helpful when you are managing deficiencies so that you can start to keep track of what works and what doesn't.


Sorry for the long post, but it's the one topic I actually know something about! lol

In Topic: What The Doctor Said

09 May 2014 - 08:03 AM


Did you have the deaminated gliadin test or just the regular AGA?

It was just the regular AGA gliadin IgA that came back positive. DGP tests weren't available at the time. All the rest of the tests, including biopsies, came back negative. I don't get the feeling that my doctor is willing to retest. She would just point out that I already tested negative. That might be why she's labeled it as IBS.


I really don't know what it is that caused me to get sick. I know that taking gluten out of my diet really shouldn't have made that type of impact. I also don't think it was gluten withdrawal because it didn't start until I'd been gluten free for 5 weeks. It seems like there has got to be some other component that I'm not aware of. I'm not aware of having introduced any 'new' foods into my diet. I suppose it is possible that making the change somehow disrupted the balance in my gut. I just don't know.


But I also don't know what path to take from here. Do I continue to eat gluten? Is she right that, with just a gluten sensitivity, there is no damage and therefore no real benefit to me from stopping? Or should I pursue gluten free because of the test result?

In Topic: Withdrawal Symptoms

08 May 2014 - 07:13 AM

I googled gluten withdrawal and found a couple of articles like this one:



and this one:



It sounds like withdrawal symptoms usually come on in the first few days and can last as long as six weeks. My GI issues must be something else since they didn't start until five weeks later.