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Member Since 16 Apr 2014
Offline Last Active Apr 30 2015 07:19 AM

Posts I've Made

In Topic: Celiac Type Forum For Dairy Intolerance?

30 April 2015 - 07:18 AM

If you find a good forum for dairy intolerance, please post a link to it. I would be interested in that also!

I have one friend who has lactose intolerance and does well by taking something before eating dairy. It's a pill of some kind. I don't know what it is called though.

In Topic: Question About Gliadin Iga Result

29 April 2015 - 12:24 PM

I had more blood work done. Unfortunately the only celiac tests run were the TTIgA and TTIgG tests (which still confirm that I don't have celiac). I don't think I will ever manage to get the gliadin tests rerun. I don't think I'm even going to try. I do plan to go gluten free again and see if it makes any difference with my remaining gut issues. Going dairy free has really helped and I feel like I need to at least try to be off of both for a bit to see if gluten is the missing piece of my ibs puzzle.


I prefer to avoid the withdrawal symptoms so I plan to go off gluten slowly. That also gives me more time to find alternatives that are both gluten and dairy free. I have a strong sweet-tooth and I can foresee dessert being a problem. I've grown too reliant on chocolate oreos :(  My other major hurdle will be the fact that I don't cook (and have zero interest in cooking). I'm doing my best to get over that particular problem. It's been more of a challenge recently because my anemia has killed my appetite and made me even less inclined to try to prepare any foods.


What's that saying? Some mornings it's just not worth chewing through the restraints. Yeah, that about sums it up. Plus there's wondering if the restraints are gluten-free/DF. Lol 

In Topic: Dairy Sensitivity Question

25 March 2015 - 08:55 AM

I have now had it confirmed that I have a dairy intolerance as opposed to a true dairy allergy. After having hives for a week (from an unrelated cause), I finally saw an allergist who did some skin-prick tests on me. While some of the food test areas did appear red, none of them developed a weal of 3mm or more. It was pointed out to me that I have very sensitive skin because the control test of saline also turned red (which it shouldn't have).


He did say that, since it isn't a true allergy, it wouldn't kill me to cheat and have dairy once in awhile. I will keep that in mind, but for now I'm still staying away from it.


While I was there I tried to ask the doctor about the meaning of just a positive IgA test when the rest of the celiac panel was negative. He wasn't familiar with the test I was asking about. All he could tell me was that there is no test for NCGS. So I'm still stumped on that one.

In Topic: Question About Gliadin Iga Result

26 February 2015 - 11:17 AM

The blood was drawn at her office and sent to the lab. We talked about which tests would be run before she drew the blood, so both of us were perplexed at the lack of results. I've asked her to check with the lab to see what exactly happened.


It turns out that my other tests revealed that I'm currently fighting off a virus and so the naturopath is less concerned about gluten sensitivity at the moment. She said that it is possible that my immune system is so out of whack from fighting this other virus that it might be over-reacting to all sorts of things (including dairy). So even if I had gotten the results, I might have ended up with a false positive which wouldn't have meant anything.


Also, in Jan I had a stomach ache that lasted for over a week. On the fourth day I went to the ER to get it checked out. They couldn't find anything wrong but they did a CT scan while I was there. There were no signs of inflammation on the CT scan. If I were sensitive to gluten, inflammation should have been apparent (at least in theory). So, right now, I'm supposed to just not worry about it.

In Topic: Question About Gliadin Iga Result

25 February 2015 - 03:46 PM

Update (sort of):

I'm not really sure what happened but I didn't get results from a full celiac panel. Instead all I got results for was the Tissue Transglutaminase Ab IgA - which were negative (<1.2 with negative being anything less than 4). It certainly didn't answer the question I was trying to resolve. It's possible that the lab ran out of blood before they got to those tests, since I was having other tests run also. It will be at least 3 months or more before I try again to get tested.